Gianna Kohl
@GiannaJKohl
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Postdoc @UofIllinois @AHSIllinois I Marie Skłodowska-Curie fellow @DTdementia 🍊 I Research on #Dementia #Stigma #Disclosure #Technology l 🐱 & 🪴 enthusiast
Illinois, USA
Joined September 2019
📢Please RT - PARTICIPANTS NEEDED. I'm exploring how people living with #dementia and family carers talk to others about the diagnosis. Please take part in my INTERNATIONAL survey by clicking here: https://t.co/PsrncQs41i Thanks to everyone who took part already & for the RTs 😊
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Excited to be heading to Liverpool for the #LiverpoolDementia & Aging Conference! 🚂 Looking forward to presenting our research on carers' experiences of supporting people with #dementia in their use of social media 🖥️ 📱#DementiaCare
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RT plse. Nice way to show the 1533 kids excluded from school that they'not forgotten. Any nifty crocheters out there? @UCL_DClinPsy @Uclusresearch @GiannaJKohl @AgingPsychol @LilyScior V happy to post squares on behalf of London posse, just drop in my UCL tray w a note + ur name.
Hello! I'm doing a project with parents of children who have experienced exclusion from school (or lack of inclusion). We're making 1533 crochet squares 10 x 10cm, one to represent each of the 1533 children excluded each school day in 2022. Would anyone like to help? Please share
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#33AEC Introducing to you the winners of the @AlzheimerEurope Anti-Stigma Award 2023 @TBmedementia @Touchstone_Spt 🙌🏼💃🏻 Feeling honoured and humble. So proud to have put #Leeds on an international map 🥳#Helsinki We Love You ❤️
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Grateful to have been able to present my @DTdementia work at #33AEC. Fantastic to have had such an engaged audience & to receive great feedback 💪
Thanks to everyone who attended and supported the parallel session on #technology and #dementia with Distinct and @INDUCT_MSC ✨ #33AEC @BudakBeliz @josephinertan @GiannaJKohl @Golnaz_Atefi @simonefelding @HeinsPascale @SaraLBartels DavidNeal
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Hearing from @GerritzenEsther about the value of online peer support for people with young-onset #dementia at #33AEC. Great example of involving people with dementia in research!
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New article by our PhD student @GiannaJKohl on social media use by pple living w dementia to share their diagnosis. Well done Gianna! @AgingPsychol @KScior
tandfonline.com
Social media can facilitate self-disclosure of a stigmatized identity. This mixed-methods study explores self-disclosure by people with dementia on social media, comparing patterns and purpose of u...
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Grateful to everyone who took part in our study 🙏
Thank you to all 143 people with #dementia who contributed to our new paper on Social Media Use by people with dementia @GiannaJKohl @InterdemEurope @DTdementia
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Thank you to all participants, @beatdementia, @YoungDemNetwork & @DementiaVoices for recruitment support, & #EWGPWD of @AlzheimerEurope for the PPI work for this study 🧡
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📢 Paper alert: How do people with #dementia use social media & share their diagnosis on it? Excited to have my PhD research published in #IJHCI. Please check it out ➡️ https://t.co/cL2fzDkUVR
@Uclusresearch @weiqi_koh @KScior @AgingPsychol
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Great collaboration and presentation by @EstherKHui at #33AEC on diabetes and dementia risk 👀
Check out my poster at #33AEC on the impact of treatments for diabetes on the risk of developing dementia, MCI/cognitive decline (POS1-14) @Gill_Livingston @Naaheed_Mukadam @GiannaJKohl
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Check out my poster at #33AEC on the impact of treatments for diabetes on the risk of developing dementia, MCI/cognitive decline (POS1-14) @Gill_Livingston @Naaheed_Mukadam @GiannaJKohl
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"It is a myth that older people & those with complex needs are too risky to include in research. They can and should contribute to identifying important research questions, priority setting, designing & participation in studies & disseminating findings."
academic.oup.com
AbstractBackground. Older people are often explicitly or implicitly excluded from research, in particular clinical trials. This means that study findings m
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Our @SonnetStudy on social connection in care homes is now recruiting in the UK! We would like to speak to 🟢care home residents 🟢relatives 🟢care home staff and clinicians @UCLPsychiatry
Do you live, visit or care for someone in a UK #carehome? @SONNETStudy is looking for residents, families, staff & care providers to participate in a research study that aims to improve the way social connection is measured.
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Excellent piece on (lack of) #female professors, current barriers & potential solutions by @dr_yvonne_couch. Great (albeit slightly frightening) read 👩🏫 #WomenInSTEM @dem_researcher
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📢Recruitment Call! Take part in our study exploring autistic people’s experiences of self-compassion. Formally diagnosed and self-identifying autistic people welcome. Link: https://t.co/UoHo0UqA2f Email: compassion@kcl.ac.uk
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NEW Correspondence published in @NatureHumBehav today by Hannah Franklin @neuroblonde and I: UK PhD Students’ Call to Action Amid The Cost-of-living Crisis Link to access here -> https://t.co/dKt63ZN40g (1/5)
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Its so important to raise awareness about #dementia in south Asian communities. Produced by @BlueBell_Film as part of last years @alzheimerssoc campaign, Bhagwant explains this in this beautifully shot film. Visit: https://t.co/qmRWZkyL7e to watch the film in full. #DAW2023
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A new research article about young onset #dementia has been published: "Peer support through video meetings: Experiences of people with young onset dementia" by @GerritzenEsther, @GiannaJKohl, and Orii McDermott. Take a look at the article here 👇 https://t.co/p8InmQRXjX
journals.sagepub.com
Background People with young onset dementia can experience stigmatization and social isolation. Peer support provides an opportunity for social connection and s...
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.@simonefelding presents an overview of #PublicInvolvement activities in @DTdementia and highlights the collaboration between @AlzheimerEurope, #EWGWPD & DISTINCT. #AlzAcademy @Ana_M_Diaz @DianneGove @GiannaJKohl @weiqi_koh @HeinsPascale @mason4233 @jaynegoodrick @KevinQuaid3
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I was recently looking for a new room to rent in London. Here's some of the outrageous/bizarre/probably illegal things I encountered 🧵
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