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Friends of the PBC Foundation, NFP Profile
Friends of the PBC Foundation, NFP

@FriendsofPBC

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Our mission is to improve the lives of the 130,000+ πŸ‡ΊπŸ‡Έ living with Primary Biliary Cholangitis (#PBC) through comprehensive support, education & advocacy

United States
Joined December 2024
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@FriendsofPBC
Friends of the PBC Foundation, NFP
20 hours
The 2025 PBC Patient Conference was fortunate to have Dr. Moore of Northwestern Medical provide valuable instruction on image interpretation and join the HCP panel to impart impactful information. Thank you for sharing your time and expertise! #Pbcawarness #mondaymotivation
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@FriendsofPBC
Friends of the PBC Foundation, NFP
21 hours
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@FriendsofPBC
Friends of the PBC Foundation, NFP
3 days
We'd love to hear from you, and the community would love to be inspired by you! Use the link below to record a short 2-minute video and email it to: tequoia@friendsofthepbcfoundation.org to be featured on our weekly "Story" post! https://t.co/zydZfBpmXY #PBChealth
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@FriendsofPBC
Friends of the PBC Foundation, NFP
3 days
This is our "WHY"... Listen to Vicki's story to understand more about her patient journey and the importance of awareness, education, and advocacy for PBC patients. Our work is essential and means the world to the community we serve! #PBCawareness #liverhealth #YouAreNotAlone
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@FriendsofPBC
Friends of the PBC Foundation, NFP
3 days
Primary biliary cholangitis (PBC), is only one of three major immune disorders of the #liver, the other two being autoimmune hepatitis and primary sclerosing cholangitis (PSC). Variant forms, commonly known as overlap syndromes, of these disorders also exist via @xiahepublishing
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@FriendsofPBC
Friends of the PBC Foundation, NFP
3 days
Answer is "C", the bile duct transports bile from the liver to the small intestine.
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@FriendsofPBC
Friends of the PBC Foundation, NFP
4 days
We sincerely thank Dr. K. Gautham Reddy for his informative speech on "Current and New Treatments for Primary Biliary Cholangitis (PBC)" at the 2025 PBC Patient Conference. Your contribution helped make the event a success! #pbcawareness #PBCtreatments #youarenotalone
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@FriendsofPBC
Friends of the PBC Foundation, NFP
4 days
QUIZ Friday!!! If you know the answer, drop it in the comments! πŸ‘‡ Answer revealed later today! #PBCQuiz #LiverFacts #MedicalTrivia #PrimaryBiliaryCholangitis #LearnWithUs
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@FriendsofPBC
Friends of the PBC Foundation, NFP
5 days
Let this be a reminder for our PBC community today. Your journey with Primary Biliary Cholangitis is a part of your story, not to be ignored or ashamed of. It is unique to you and an inspiration to others. Tag someone who needs to hear this. #PBCWarrior #InspirationalQuote
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@FriendsofPBC
Friends of the PBC Foundation, NFP
6 days
Although cases are much less common in men, they're rising in number. Raising awareness is the first step toward earlier diagnosis and better support. Share this to spread knowledge. #PBCAwareness #RareDisease #LiverDiseaseStats #PrimaryBiliaryCholangitis #Autoimmune
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@FriendsofPBC
Friends of the PBC Foundation, NFP
7 days
We'd like to thank our 2025 PBC Patient Conference sponsors, @GileadSciences , Ipsen, @PBCFoundation , @liverUSA , @mirumpharma , @GSK , @InterceptPharma , and @rarepatientvoic , for your contributions in making our inaugural conference a success! #PrimaryBiliaryCholangitis
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@FriendsofPBC
Friends of the PBC Foundation, NFP
7 days
For those living with PBC, proper hydration can help support liver function and manage overall well-being. Aim for 8-10 glasses of water a day. Carry a reusable water bottle and infuse it with fruit for a refreshing twist! How do you stay hydrated? #PBCHealthTips
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@FriendsofPBC
Friends of the PBC Foundation, NFP
8 days
We just signed up on the "TLMdX 2025 - Community Conversations" page for Community Conversation Session via @AASLDtweets https://t.co/hDlrVpAlkV #LiverHealth #Pbcawareness
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@FriendsofPBC
Friends of the PBC Foundation, NFP
8 days
We would like to express our gratitude to Dr. Aiman Ghufran from the University of Illinois for her insightful speech on nutrition diets for PBC patients at our 2025 PBC Patient Conference. #pbcawareness #pbcnutrition
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@FriendsofPBC
Friends of the PBC Foundation, NFP
8 days
For those navigating life with PBC, remember that every small step you take towards self-care is a victory. You are resilient, you are strong, and you are not alone in this journey. What's one small goal you're setting for yourself this week? πŸ’š #PBCMotivation #SelfCare
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@LmarieAsad
L. Marie Asad
11 days
@NM_Transplant @NorthwesternMed We need more women in #Hepatology. Welcome and congratulations. Hope to see you at @AASLDtweets #TLM25
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@FriendsofPBC
Friends of the PBC Foundation, NFP
14 days
Mirum Pharmaceuticals, Inc., a sponsor of the 2025 U.S. Patient Conference, discussed their clinical trials with our attendees. If you would like to learn more about the company and how they support the PBC community, please visit: https://t.co/PwXZFj6EZ1 #LiverHealth
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@FriendsofPBC
Friends of the PBC Foundation, NFP
14 days
Studies show that between 73% and 81% of patients report symptoms of itching or pruritus during their PBC journey, resulting from bile accumulation. There are treatments available to help. Consult a healthcare professional for the best options to meet your needs. #pbcawareness
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@RareDiseases
National Organization for Rare Disorders (NORD)
15 days
β€œDiagnostic access could have saved my brother's life," says Patricia. "Soft tissue #sarcoma mimics other conditions, making diagnosis and treatment difficult.” A rare #cancer diagnosis often comes without warning, but early testing and awareness give patients more options.
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@EuropeLiver
European Liver Patients' Association
16 days
Tomorrow we begin European Liver Screening Week πŸ“ Esplanade of the European Parliament πŸ—“οΈ September 29 – October 3, 2025 ⏰ 09:00 – 17:00 πŸŽ—οΈ Under the patronage of the European Parliament This year, we also mark the start of October Liver Cancer Awareness Month. Your liver is
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