Hao-Fountain Syndrome
@FoundationUSP7
Followers
583
Following
279
Media
393
Statuses
814
Our mission is to cure Hao-Fountain Syndrome. We do this by funding research and identifying more patients. https://t.co/k9ugviDUKH
World Wide
Joined June 2017
Our latest newsletter is out! Make sure to check it out today. #usp7 #hafous #haofountainsyndrome
https://t.co/GF0FugkTUw
usp7.salsalabs.org
0
0
1
We can’t thank our researchers enough! We love you! @TTUVetMed @klementinafontacer #RareDiseaseDay2025 #haofountainsyndrome #RareDiseaseDay #usp7
0
0
3
Very happy to share our new collaborative paper describing a key role for USP7-PRC1.1 in neural differentiation, now in @GenesDev And congratulations to the PhD student, Axelle, on her 1st research paper. #USP7 #epigenetics #neural @FoundationUSP7
https://t.co/9oLl8wLzJr
1
3
6
Registration for our 2025 Hao-Fountain Syndrome Symposium and Family Conference is open. https://t.co/WWcGwj8nTq
#hafous #usp7 #conference
0
0
1
new international collaborative work incl our group on Hao-Fountain syndrome and the mechanisms underlying USP7 published in Genes & Development #raredisease #USP7 #epigenetics #drosophila #neurons @JeffreyHaren @YAtlasi, Peter Verrijzer, @druoph @FoundationUSP7 @ErasmusMC
2
2
9
Save the date! Our 2025 Symposium and Family Conference will be held September 18-19 in Nashville. Registration will open in February. #usp7 #hafous #symposium #familyconference
0
0
0
Riley’s Journey is written from her mother's perspective, chronicling the journey to Riley's diagnosis of Hao-Fountain Syndrome. Visit https://t.co/vYS8neajgt
#raredisease #usp7 #haofountainsyndrome
usp7.org
Riley’s Journey is written from her mother's perspective, chronicling the journey to Riley's diagnosis of Hao-Fountain Syndrome. Starting with a challenging birth to learning about Riley's developm...
0
0
1
We still have sponsorship opportunities available for our upcoming Hao-Fountain Syndrome Symposium and Family Conference. Sponsorships will directly contribute to the success of this event. We are offering five levels of sponsorship. Visit https://t.co/UUzuzmsOiC
0
0
0
Attending our Symposium and Family Conference on September 24? If so, make sure to book your hotel room by tomorrow, September 2nd, to get our exclusive rate of just $209 per night! Book now to take advantage of this exceptional rate. https://t.co/dw2oAAR5vP
#familyconference
0
0
0
Our conference is just around the corner! Make sure to register today and book your room before September 2nd to ensure you get our exclusive room rate of just $209 per night! We can't wait to see you at the Grand Hyatt Atlanta on September 24th. https://t.co/uwJIXPfJbv
0
0
1
One of our beautiful Hao-Fountain Syndrome Warriors, an amazing young woman from Australia is running a 10k in honor of Hao-Fountain Syndrome and raising funds for research. Show her your support by making a donation today: https://t.co/YmvZj7P1hr
#usp7 #hafountainsyndrome
0
0
0
Just launched in our merch shop - 2024 Hao-Fountain Syndrome conference shirts and tote bag! Order today. #symposium #familyconference #usp7 #haofountainsyndrome
https://t.co/e3yrVmvmVY
bonfire.com
We are a 501(c)3 non-profit dedicated to those affected by a mutation of the USP7 gene. Providing a a future of possibilities to those who are diagnosed with a mutation...
0
0
0
Be part of something amazing! Join us for our 2024 Hao-Fountain Syndrome Symposium and Family Conference in Atlanta on September 24. Register today! https://t.co/VEztjqf8qe
#HAFOUS #raredisease #HaoFountainSyndrome #USP7 #symposium #familyconference #atlanta
0
0
0
Our Lunch and Learn is on the calendar! Join us on June 17 for an amazing session all about precision medicine. Click the link to learn more and to sign up today! You won't want to miss it! https://t.co/8IRbdyeX0U
#usp7 #hafous #haofountainsyndrome #lunchandlearn
0
0
0
Calling all Hao-Fountain Syndrome families in the United States! Are you interested in learning more about your child's disease while also helping advance scientific research? Consider donating your child’s blood sample to an anonymous biorepository.
usp7.salsalabs.org
0
0
0
0
0
0
Recently diagnosed? Sign up for our New Family Orientation and Information Zoom Session on June 2! We will record the session so if you can't attend you'll be able to watch it later, but make sure to sign up so you can receive the recording. Sign up here: https://t.co/yEri9hkJ4u
0
0
0
Join us this September in Atlanta. Our symposium and family conference will be held on September 24. Now is your chance to hear from leading experts and make connections with other Hao-Fountain Syndrome families. Register today: https://t.co/VEztjqeAAG
#haofountainsyndrome #usp7
0
0
0
Register today and be part of a movement that's making a real difference in the lives of those affected by Hao-Fountain Syndrome. We look forward to welcoming you and your family to what promises to be an unforgettable event! 4/4 #usp7 #hafous
https://t.co/VEztjqeAAG
0
0
0
Don't miss this chance to be part of a transformative experience that aims to shed light on Hao-Fountain Syndrome and pave the way for a brighter future. Join us as we come together to learn, support, and inspire one another. 3/4
1
0
0