FAMILIAR Study
@FamiliarStudy
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FAMILIAR Study is researching co-production methods in preconception care for women with inflammatory arthritis. Health & Care Research Wales portfolio ID 44828
Cardiff, Wales
Joined April 2019
Hi lovely folk, I'm not closing this account, but I am branching out... if you're also on @bluesky, you can find me @ https://t.co/MHKiR6xqCw, see you there! 😊 @FamiliarStudy updates will continue to be posted here too.
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#Lleswyl2025 🎉 The only #inclusive virtual festival by @DaringtoDream5 , shining a light on adults with illness in #Wales. Many miss out on events & festivals due to illness! Lleswyl comes to them! Get your FREE tickets now! 👉 Register on Eventbrite! https://t.co/zlhLLLoc2u
eventbrite.co.uk
Daring to Dream's free, fantastic, fun and for everyone wellbeing festival! Livestreamed from 7pm 21st February 2025 from You Tube
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. Thank you to everyone who has been part of this valuable research to date, participants and stakeholders, the brilliant patient co-researcher @LibbyHumphris, my amazing supervisors, my family & loved ones. I couldn't be so close to finishing this without any of ye 🙏🏼 3/3
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. ...and even writing them up for my examiners. I am able to start writing again now, and will be working to get the work and findings written up and shared with you all as soon as I can. I hope 2025 sees you get the right support, whatever that means for you. 2/
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Researching a condition you also live with is a challenge. This past 10 months my #rheumatoid was not managed by my meds at all. I am so grateful to finally be on a drug which is managing my condition again, but this has had a HUGE affect on bringing you the study findings 1/
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Biggest thanks on this #InternationalDayOfTheVolunteer goes to my long standing Patient Co-Researcher, @LibbyHumphris, who has stuck with this project for over 6 years (yes, SIX!). Expertise, encouragement, and comradery. Thank you, Libby 🫶🏻 🦜
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Today is #InternationalDayOfTheVolunteer: I would like to thank every person who has given their time to the @FamiliarStudy making it a success, as a participant, supervisor, or expert stakeholder. Thank you for making this study work, and helping it exceed initial expectations!
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On #InternationalMensDay2024 and want to acknowledge how #axialSpA can impact men with a reminder of our discussion with Matt Daly who combines personal & medical experience: https://t.co/h35MIS13VZ
#AxialSpA #AxialSpondyloarthritis #AnkylosingSpondylitis #AxSpA
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Do you want to be a Changemaker? Our awards are open to healthcare professionals working to reduce the delay to diagnosis for #axialSpA. For more information visit https://t.co/LJ72aJgANj
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ICU admissions drop to zero in pregnant woman who have had 3 doses of the covid vaccine. Most women who become seriously unwell in pregnancy from covid have not been vaccinated. An effective safe vaccination in pregnancy.
Another lovely infographic from the @BMJMedicine team illustrating the @NPEU_UKOSS data on omicron SARS-CoV-2 and pregnancy and the impact of vaccination on reducing disease severity. Full paper here https://t.co/ZpbezFQohf
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I'm not closing this account, but I am branching out... if you're also on @bluesky, you can find me @ https://t.co/ZSh2BhDpRc, see you there! 😊
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Highlighting inequities across MSK pathways - Supporting People With Musculoskeletal Conditions From Underserved Communities in the United Kingdom to Engage With Physical Activity: A Realist Synthesis and Q-Methodology Study
journals.humankinetics.com
Background: In the United Kingdom, 20 million individuals suffer from a musculoskeletal condition, for which physical activity (PA) is a core treatment. Minority ethnic communities experience a...
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Shape research into communication around women’s health. We would like women, girls and NHS practitioners to take part in a short survey to help identify the gaps in research around communication in all aspects of women’s health. Deadline on 25 Oct: https://t.co/JKv1tOcimT
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🌍💙 For World Arthritis Day 2024, BSR has launched new resources for individuals and healthcare professionals focused on Patient Initiated Follow Up!✨ Watch now to learn more👉 https://t.co/NwEBpukTgv
#WAD2024 #worldarthritisday
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🌐 Today is #WorldArthritisDay. 🏴 Around 970,000 people in Wales live with arthritis and musculoskeletal conditions. 👉 If you live with arthritis, @CymruVArthritis can help:
arthritis-uk.org
We’re here for you on our helpline, online community and arthritis virtual assistant. Together we’ll find the way forward.
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On #WorldArthritisDay, themed “informed choices, better outcomes” we’re launching a new Patient initiated follow-up toolkit! Designed for clinicians and patients, it empowers patients to schedule their follow-ups, reducing hospital visits. Download now https://t.co/WB5QOK6uea
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🌍 Today is World Arthritis Day! ✨ Understanding rheumatic and musculoskeletal diseases (RMDs) in children is crucial. Let´s ensure they feel empowered and included. 📚 Knowledge is Power! 🔗 Learn more: https://t.co/5qTky2G7H6
#WAD2024 #WorldArthritisDay #EULAR
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Today is #WorldArthritisDay, a day to raise awareness of arthritis and its impact. One of the biggest causes of persistent pain in Wales. The charity @CymruVArthritis is there to provide information, help and support for everyone living with arthritis: https://t.co/VPld98y3T8
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“PIFU is a complex and nuanced intervention. When it works, it’s brilliant. But when it doesn’t, it can be challenging. This project draws together a wide range of expertise to co-produce a toolkit for teams across the UK..." @DrLauraCoates Access now: https://t.co/WB5QOK6uea
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Good morning! ⛅️ We’re at #ResearchWales24 conference today @SophiaGardens. Pop along to the stand to meet the @EvidenceWales team and learn about our research. @ResearchWales
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