Susan Fairlie Hall
@FairlieHall
Followers
1K
Following
113K
Media
871
Statuses
35K
Wanting there to be more recognition for the impact ME/CFS has on peoples lives, hoping that better support will be provided.
Perth, Western Australia
Joined January 2016
Western Australia (state) voting intention (55+) 🟥 ALP: 39% 🟦 LIB: 38% 🟩 NAT: 3% 🟩 GRN: 6% ⬛️ OTH: 14% Two-party-preferred 🟥 ALP: 50% 🟦 L/NP: 50% DemosAU | 10-26 Nov
4
6
42
@JohnRuddick2 I have dance students who use social media to communicate with each other and share world trends in dancing. Their parents monitor their accounts and they are not at risk. We are punishing the majority for the sake of the minority.
0
1
14
🚨 Update on High Court Challenge re social media ban Have just ended a meeting with the legal team. The matter has been listed for a Directions Hearing before the Chief Justice of the High Court. That will take place at tomorrow at 4.30pm. I'll hopefully be in a position to
129
568
3K
This is exciting. People with covid vaccine reactions fit this box too for sure! So what can we do? Improve our lymphatic drainage? Support vascular health? Here are some tips for targeting the glymphatic system from @drwillcole
https://t.co/vNagB3DEF1
drwillcole.com
The best evidence-backed tips and practices to optimize sleep and brain detox via the glymphatic system.
Stanford author team including Ron Davis Glymphatic System Dysregulation as a Key Contributor to Myalgic Encephalomyelitis/Chronic Fatigue Syndrome https://t.co/fUs8EEjew2 Screenshot from latest Science for ME weekly update #MEcfs #CFS
0
1
4
Everyone has a different view of what Heaven looks like. Here is mine.
546
515
7K
Plan for the Ban Video #1 | NON-NEGOTIABLES | The introduction of the Social Media Ban on the 10th of December is approaching. What are your non‑negotiables? Draw your line in the sand, protect your digital data, and decide how far you’ll be corralled into the digital ID
1
8
16
@ausvstheagenda She is undermining parents and censoring kids freedom. A much better plan would be to teach kids how to be discerning and how to recognize how popular culture is being used to brainwash people. Life skills that will be invaluable after they reach the age of 16.
0
2
5
A recent story in @thesicktimes reported that less than 20% of exercise trials for Long COVID even mentioned post-exertional malaise. Not good!!! I spoke with Toronto journalist @SpichakSimon, who wrote the piece:
virology.ws
By David Tuller, DrPH According to the headline of a recent article in The Sick Times, “less than 20% of Long COVID trials involving exercise even mention p ...
2
38
125
Personal note re: Australia's #socialmediaban If I stop being active here it's because: 1. I think it's criminal of Aus gov to force ppl to send gov ID to some random foreign company to be 'validated' 2. I don't value this platform enough to pay for it or a #vpn
#Auspol2025
1
1
4
Interesting study on the burden of neurologic disease from 1990 to 2021 in the United States. Missing is a huge category of neurologic conditions that fall under the umbrella of #Dysautonomia. Dysautonomia affects the brain and the peripheral nervous system and is a common
What is the burden in the US of Parkinson's, Alzheimer's and other diseases? Spoiler alert: there are surges beyond the pure numbers and we need to raise awareness for the increases in both disability and burden. DALYs are a way to measure total health loss by combining years
1
17
78
Utterly heartbreaking to hear that #pwME Ella Copley has died aged 20 Deepest condolences to her incredible Mother Jo who could not have fought harder for her @tessamunt @JoPlattLeigh @AshleyDalton_MP unless measures are taken urgently this will continue to happen to #pwME
TW: death Ella Copley passed away two days ago. At just 20 years old, after 3½ years in hospital. I never knew her personally, but her story breaks my heart. Deepest condolences to her family and friends. Rest in peace, Ella. https://t.co/ojgQJjkpFu
5
32
96
1. It's here...... #GivingTuesday2025 ! In the next 24 hours help us raise 24K to support our mission of pioneering accessible, patient-led efforts to uncover scientific insights and improve overall quality of life for our global MECFS & Long Covid community
2
10
12
some new developments on those organising against the teen social media ban: - Human Rights Commission "considering" whether it would join the High Court legal challenge - Teens mass unfollowing Anthony Albanese's social media accounts on Dec 9 lol
6
27
102
Terracotta Dice from Harappa; an ancient city of Indus Valley Civilization (2600-1800 BC), now in modern-day Pakistan 🇵🇰 A cubical dice with 1 to 6 dots was found in rubble during excavations at Harappa between 1995 and 2001. Many dice were also found at Mohenjo-daro, and John
0
21
96
Dude walked into a field and started calling cows by their names like it’s roll call… and they’re all answering 😭🐄
420
6K
40K
I’ve been struggling to talk about gender ideology lately because all I can think about is the Giggle v Tickle decision. The days are weird when you’re waiting for three judges to decide whether woman is a category that doesn’t include men and if you can have your life back.
323
1K
7K
‘CBT and graded exercise therapy studies have proven that ME/CFS and long Covid are physical diseases, yet no one is aware of that’ Mark Vink and Alexandra Vink-Niese Front. Hum. Neurosci. Volume 19 - 2025 doi: 10.3389/fnhum.2025.1495050 https://t.co/2URoHhsFwh
#MEcfs #PWME
frontiersin.org
The cognitive behavioral model (CBmodel) (1,2) has dominated the world of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) since the 1990s. Accord...
0
2
2
@breannaweigel_ and NCNED researchers highlight the similar, significantly poorer quality of life and profound disability among people with #MECFS and people with #longCOVID in their recent systematic review. 📖 Read the full article here: https://t.co/lGtGq3QFA0
@BioMedCentral
link.springer.com
Journal of Translational Medicine - Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Post COVID-19 Condition (PCC) are debilitating, chronic multi-systemic illnesses that require...
1
5
7