Florida Institute for Pediatric Rare Diseases @FSU
@FSUIPRD
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Our mission is to advance research, education, clinical care, and advocacy for pediatric rare diseases.
Joined April 2024
Missed the big announcement? Revisit the key takeaways from the Sunshine Genetics Act News Conference! 🌞. Visit our website to learn how Florida is revolutionizing newborn genetic screening and pediatric rare disease research:
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RT @FSUResearch: The Sunshine Genetics Act will support @FloridaState in its work to address pediatric rare diseases and help millions of c….
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RT @PresMcCullough: Thanks to the leadership of @AdamAndersonFL, the Florida Legislature and @GovRonDeSantis, the Sunshine Genetics Act off….
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RT @AdamAndersonFL: ☀️🧬We had an amazing turnout at the 1st stop of our “Sunshine Genetics” road show! There’s so much excitement & energy….
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📢 A recent BBC report highlights that NHS England is planning to offer genome sequencing for every newborn to assess their risk of hundreds of diseases over their lifetime. Explore how this aligns with IPRD’s strategic initiative:
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🎙️ We spoke with renowned geneticist David Ledbetter, about his bold vision as Associate Director for Precision Medicine at IPRD. From launching a cutting-edge whole genome sequencing facility to developing a new master’s in genetic counseling, his work is driving real change.
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Learn about the impact of IPRD:
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Celebrating a milestone session in Florida!. Thanks to @AdamAndersonFL's leadership, we’re one step closer to a future where genomic medicine gives every child and every family a reason to hope. 🧬 New funding. 🤝 New partnerships. 🚀 Real momentum.
Sine Die 2025—What a Session!. This session, I poured my heart into a mission that matters deeply: expanding access to life-changing healthcare and unlocking the power of genomic .medicine for families facing rare diseases. We brought universities together. We built new
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Dr. Kantor brings decades of experience in development of AAV and lentiviral vectors for research and clinical applications. The new Core will provide state-of-the-art services in viral vector design, production, and genome editing, supporting research across FSU and beyond.
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We are pleased to announce that Dr. Boris Kantor, Ph.D. will join the FSU Institute for Pediatric Rare Diseases (IPRD) as Director of our new Viral Vector and Genome Editing Core Facility.
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🎉 Congrats to Dr. Qing-Xiang Amy Sang, recently named as a Distinguished Research Professor at FSU!. 🔬 A leader in cancer research, Dr. Sang has secured major research funding from the @American_Heart, @AmericanCancer, @NIH & more. Learn More:
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A new study published by Dr. David H. Ledbetter, PhD, FACMG reveals why differences in X and Y chromosome dosage play a major role in height. 🧬. Read the full study 👉
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RT @FloridaState: The Institute for Pediatric Rare Diseases (IPRD) at the @FSUCoM is revolutionizing rare disease research, treatment and a….
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A baby with a fatal genetic disorder was saved by a personalized CRISPR therapy in Philly—delivered directly to his liver. A breakthrough. At IPRD, we are working to bring this future to Florida by advancing precision gene-editing therapies. Learn More:
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RT @FSUResearch: 🌟 Congratulations to these @FloridaState faculty members from @FSUCoM, @FSUartssciences and @FAMUFSUCOE for receiving Deve….
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This marks a powerful milestone in Florida’s commitment to Prader-Willi Syndrome (PWS) and all pediatric rare diseases. Visit our page on Prader-Willi Syndrome to learn more: @FSUResearch @patientsrising
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