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EpLink Profile
EpLink

@EpLinkON

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EpLink was an epilepsy research program devoted to reducing seizures and improving quality of life for people with epilepsy.

Ontario, Canada
Joined July 2015
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@EpLinkON
EpLink
3 years
(1/2) An important announcement: As of April 1, 2023, EpLink will cease all activities. We are so grateful for the community we have built over the past decade & OBI remains committed to improving the lives of those living with epilepsy. For updates from OBI, follow @OntarioBrain
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@EpLinkON
EpLink
3 years
On March 26th, EpLink will celebrate #PurpleDay to raise epilepsy awareness worldwide and honour the 134,000 Ontarians affected by #epilepsy. If you have drug-resistant seizures, see what's new in Ontario’s 2023 epilepsy #guidelines here: https://t.co/bO0XfacK21
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@OntarioBrain
Ontario Brain Institute
3 years
“Every student deserves to have a great education that prepares them for the future.”  Learn more about “How to Have a Social Life as a Teen with Epilepsy” in Breaking Stigma, Building Empowerment: a storytelling project > https://t.co/LW8Eumehrm #BrainWeek #Epilepsy #Autism
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@ECHOEpilepsy
ECHO Epilepsy Ontario
3 years
#HCPs/#PrimaryCare providers: One-week away from the launch of our new Advanced Curriculum for "Epilepsy in Children & Youth"; 7-week #CME program, developing your proficiency in the management of epilepsy. Starts🚀: March 6 | 12-1pm REGISTER➡️ https://t.co/roSPOgkFqe #MedEd
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@EpLinkON
EpLink
3 years
ANNOUNCEMENT: Updated Ontario clinical #guidelines for the management of drug-resistant #epilepsy in children and adults who are not surgical candidates are now available. Read the full document below, and look for summaries in the coming weeks. https://t.co/7OqgrDoQM1
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@EpLinkON
EpLink
3 years
Coming soon: NEW #Ontario #epilepsy #guidelines for the management of drug-resistant children and adults who are not surgical candidates. This update to the 2016 guidelines provides revised recommendations for #diet therapy, #cannabis, #neuromodulation and more.
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@ana_suller
Ana suller
3 years
Our #research survey is open! If you're a #woman who works in #epilepsy🧠, tell us the work experiences & challenges you face. We have close to 💯 responses🌍! We still need to hear from you! @manuela8au @AlinaIvaniuk @yesILAE @CalleYamile @elmaparedes9 https://t.co/fkvENGdQ38
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@ECHOEpilepsy
ECHO Epilepsy Ontario
3 years
#PrimaryCareProviders our new "Foundational" curriculum in "#Epilepsy in Children & Youth" launches Monday. Dr.@elizjdonner, Director-Comprehensive Epilepsy Program @SickKidsNews leads with a "Seizure Intro" talk and case discussion. 🚀Jan. 9 | 12-1pm ➡️ https://t.co/ImXw9pSKAb
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@EpLinkON
EpLink
3 years
In EpLink's latest quarterly #newsletter, read about the year in #research, our latest data release, info on #epilepsy and #COVID-19, a new patient #engagement grant and more! See it here: https://t.co/WwWkcZIDra
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@EpLinkON
EpLink
3 years
NEW info sheet for people with #seizures: Find an overview of the latest evidence on #COVID-19 and #epilepsy, including illness severity, vaccine safety, drug interactions & more: https://t.co/tNPpYH0tms
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@EpLinkON
EpLink
3 years
#HCPs: Did you know that most antidepressants can be safely used to treat depressive symptoms in people with epilepsy? See the infographic below for more information about #epilepsy, #depression and #anxiety.
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@rajeshramnair
Rajesh Ramachandran Nair, MD, FRCP, FAES,FRCPC
3 years
Hope this paper on #ketogenic #ketodiet make people think differently. Thank you co-authors. @mch_childrens @EpilepsySWO @EpilepsyOntario @EpLinkON
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@EpLinkON
EpLink
3 years
Are you a #woman with #epilepsy? Dr. @ana_suller and her research team want to know if you're receiving the care you need for issues such as birth control, pregnancy or menopause. Let them know by completing this anonymous survey: https://t.co/ywMsxRWAP8
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@EpLinkON
EpLink
3 years
Decentralized #ClinicalTrials (AKA remote or virtual clinical trials) include participants located outside of the study site. @clinicaltrialON wants to hear your thoughts related to being in a decentralized trial: https://t.co/t6sMeohAeD
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@EpLinkON
EpLink
3 years
Seizure control can take time after #epilepsy #surgery: A new paper from @Epilepsia shows seizure freedom can be delayed by years after epilepsy surgery, but even those who continue to have seizures often have much fewer seizures. Read more here:
onlinelibrary.wiley.com
Objective This study was undertaken to better understand the long-term palliative and disease-modifying effects of surgical resection beyond seizure freedom, including frequency reduction and both...
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@OntarioBrain
Ontario Brain Institute
3 years
At the next OBI Public Talk on December 7 at 6 PM, join us for an in-depth look at how brain disorders – notably #multiplesclerosis, #concussion & epilepsy – impact women’s lives and meet the leaders creating change. Register at https://t.co/SqIft3SzUS 🧠
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@OntarioBrain
Ontario Brain Institute
3 years
#DATARELEASE: Announcing the release of a clinical #dataset from @EpLinkON that provides a deeper understanding of distance-delivery treatments to improve #mentalhealth in adults with #epilepsy. Read more at https://t.co/AHzIgTlV3k & explore these data on https://t.co/rcw6kKbYER
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@EpLinkON
EpLink
3 years
#ICYMI: EpLink's new report answers your most frequently asked questions about #epilepsy and #seizures. View the report here: https://t.co/qxzOnDsRZc
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@EpLinkON
EpLink
3 years
#DYK: Did you know that high blood pressure increases the risk of developing #epilepsy? Blood pressure can be treated with medication and/or diet and lifestyle changes. Talk to your healthcare provider about treatment options.
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