Endometriosis Foundation of America (EndoFound)
@Endofound
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The Endometriosis Foundation of America strives to increase disease recognition, provide advocacy, and fund landmark #endometriosis research.
New York City, NY
Joined July 2010
We need funding that matches the burden: https://t.co/JjRw2WO1MV
#endometriosisawareness #WomensHealthResearchDay
endofound.org
January 25th is Women’s Health Research Day, a day that commemorates the implementation of the National Institutes of Health’s 2016 policy to improve the representation of women in clinical trials. Th
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Today is Women’s Health Research Day — and #endo shows why research equity matters. 1 in 10 are affected, yet the disease remains drastically underfunded, leading to delayed diagnoses and limited treatments. Progress is happening, but not fast enough.
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So much goes unsaid. Let’s talk about it. 👇 #endometriosis #endometriosisawareness #womenshealthmatters
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This two-day international meeting brings together over 35 leading experts to examine neuro-immune signaling, neuroangiogenesis, perineural fibrosis, and organ-specific pain, bridging molecular science with clinical practice. Join us:
endofound.org
Endometriosis 2026: A Nerve Centric Disease
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A paradigm shift in endo care starts here. #Endometriosis 2026: A Nerve-Centric Disease marks EndoFound’s 17th annual medical conference—and the first in the field to center the nervous system in endometriosis biology, pain, and surgical management. https://t.co/r8uSzkD84v
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For every #endo warrior doing what they can, when they can—this is forward. Honoring the words of Dr. Martin Luther King Jr.
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This is what progress looks like: collaboration, innovation, and a commitment to transforming patient care through basic science. An inside look into #endometriosis research at @CSHL: https://t.co/lmQngQfA1r
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📍 Patient Day 2026 is coming to NYC. Join us for EndoFound’s 17th Annual Patient Day on Sunday, March 8, for a full day dedicated to education, connection, and community for those impacted by endometriosis: https://t.co/hnSfgGuvvs
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It means releasing pressure to “bounce back” and using language that validates, not minimizes. As we move into the year ahead, let’s lead with empathy—and community.
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New year. Same realities for those living with #endometriosis. Supporting someone with #endo means flexibility, understanding at work, continued access to care, and compassion for fatigue and invisible symptoms.
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If you’re living with #endometriosis, know this: you are not behind. You are resilient beyond measure, and better days are worth fighting for. Here’s to progress, care, and hope in 2026.
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Bindi has been open about her own experience with #endometriosis, and is a passionate advocate for #endoresearch, education, and support for others living with this disease. We’re incredibly grateful to the Irwins, and to everyone who has supported Every Story Matters so far.
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That means every gift made between now and midnight on December 31 will be matched dollar for dollar, up to $3,000. If you’re considering a year-end gift, now is a great time to give and have your donation doubled:
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As we head into the final days of the year, we have some really wonderful news to share! The Irwin family — @BindiIrwin @RobertIrwin and their mom, @TerriIrwin — has stepped forward with a $3,000 match for the last three days of EndoFound’s holiday campaign, #EveryStoryMatters.
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When patients are heard, change becomes possible. By supporting EndoFound’s end-of-year giving campaign, you’re helping fund the research, education, and advocacy needed so fewer patients are left searching for answers for years—or decades. Donate today:
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Melissa spent two decades fighting to be believed as her pain was dismissed and minimized—an experience far too common in the #endometriosis community. This is why Every Story Matters.
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Maddison was just a child when doctors told her the pain, bleeding, and missed school days were “normal.” Her story is not rare. It’s the reality for millions living with #endometriosis: https://t.co/KWRFLxTQfI
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In my practice I’m seeing something interesting-#GLP1 medications seem to be offering relief. These women bravely share their experiences & I believe there might be a clinical clue here that we must study further w/ this class of drugs, particularly in how we manage endo symptoms
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Community, collaboration + progress 💛 Thank you to @jacksonlab for hosting the 2025 EndoRISE Fall Forum, uniting leading voices across the #endometriosis community to advance awareness, research & care for the nearly 200 million affected worldwide:
endofound.org
On December 8, 2025, advocates, researchers, clinicians, and patients gathered at The Jackson Laboratory in Farmington, Connecticut for the EndoRise Fall Forum, a powerful event that brought together
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To everyone carrying pain no one else can see—you’re not alone. We see you. We believe you. #endometriosisawareness #chronicpain
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