
Endometriosis Foundation of America (EndoFound)
@Endofound
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The Endometriosis Foundation of America strives to increase disease recognition, provide advocacy, and fund landmark #endometriosis research.
New York City, NY
Joined July 2010
Behind every person with endo is someone who can help amplify their voice. At the #VSFashionShow, @dylansprouse took a moment to raise awareness for #endometriosis — in honor of his wife, @BarbaraPalvin. A beautiful reminder of what true support looks like. 💛
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As awareness grows, so does understanding. By investing in research and conversation, we move closer to a future where women are supported not just during certain decades, but across their entire lives. 💛 #WorldMenopauseDay
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For too long, #menopause has been treated as something to whisper about — or simply endure. That’s changing. With World Menopause Day coming up on Oct 18, we’re recognizing menopause as a vital part of women’s health — and how it intersects with conditions like #endometriosis.
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In all my years caring for women with #endometriosis, I’ve rarely been as moved as I was by @RobertIrwin’s love and support for his mother & sister. His Blossom Ball speech was a defining moment — a young man standing up for women’s health with grace, respect & compassion.
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Your honesty brings hope to millions still searching for answers. 💛
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Thank you, Elsie Hewitt, for bravely sharing your story with People recently and shining a light on #endometriosis. https://t.co/QAn0bNt4oK
#endowarrior #endometriosisawareness
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Endo warriors you are not crazy. I believe you. I’ve made it my life’s mission to find answers, raise awareness & educate the world about #endometriosis. With the new Seckin Endometriosis Center @CSHL, we’re bringing together the brightest scientific minds to find a cure.
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Her courage is a call for change. 💛
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Every story of endometriosis holds pain — but Katya Karlova’s story reveals just how devastating medical ignorance can be. https://t.co/iLyHWtjT80
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I am here to give you HOPE for #endometriosis. 💛 This week I had the honor of meeting at the White House to push for a National Endometriosis Awareness Initiative—covering early diagnosis, coding, & the critical differences between excision vs ablation.
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🩺 Did you know endometriosis can impact the chest — not just the pelvis? https://t.co/r3hw1yVUcn
#ThoracicEndometriosis #EndometriosisAwareness #EndoCommunity #WomensHealth #ChronicIllness
#EndoWarrior #InvisibleIllness
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We left energized by the partnership that was forged and are excited for next steps to move policies forward and unlock a new era for endometriosis innovation and care. #EndometriosisAwareness #Advocacy #WomensHealth
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Yesterday, EndoFound Co-Founder @DrSeckin, Board Chair Dr. @pirayebeim, and Alexis Joel traveled to the White House to meet with senior HHS officials to advocate for the millions impacted by #endometriosis. Endometriosis is more than a medical issue—it is a public health issue.
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Your experience is valid. Your pain is real. And change starts with awareness. 💛
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Painful sex is a symptom — and if you’ve experienced it, you are not alone. ✨ Too often, this reality is dismissed or minimized. #endometriosis
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More good news on the endometriosis research front - Semir Beyaz leading a major new Center @CSHL fostered from support through @Endofound and Tamer Seckin + Padma Lakshmi. He brings very creative perspective. https://t.co/pNUEqmFlE1
aamc.org
Despite affecting 1 in 10 reproductive-age women, endometriosis remains a mystery, difficult to diagnose and eluding a cure. Researchers hope to change that.
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“There’s been a sea change.” — @LindaGGriffith1 New research at @CSHL’s @DrSeckin Endometriosis Research Center is advancing care for the 1 in 10 with #endometriosis. Featuring Dr. Semir Beyaz + @DianaFalzone’s powerful story. Via @AAMCtoday:
aamc.org
Despite affecting 1 in 10 reproductive-age women, endometriosis remains a mystery, difficult to diagnose and eluding a cure. Researchers hope to change that.
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This is why awareness matters. The more we talk about it, the sooner lives can change. 💛#EndometriosisAwareness
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For many, the road to an #endometriosis diagnosis is long and painful. It can mean years of waiting, misdiagnoses, invasive surgeries, emotional exhaustion, and finally—mixed feelings when answers arrive.
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#EndEndo5K Final day! We’ve already blown past our $55K goal & are just a few thousand away from hitting our $70K stretch goal 🎉 Every gift today is still being doubled thanks to a $5K match from our Board Chair. Let’s do this: https://t.co/bLgoUXz5Kp
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