Endometriosis Foundation of America (EndoFound)
@Endofound
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The Endometriosis Foundation of America strives to increase disease recognition, provide advocacy, and fund landmark #endometriosis research.
New York City, NY
Joined July 2010
Grateful to The Jackson Laboratory for hosting and for their leadership within EndoRISE. Through its robust biorepository and data program, accelerating progress for a disease that has been overlooked for far too long. #endometriosis
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CT is leading the charge for endo research & awareness. At this wk’s EndoRISE Fall Forum, State Rep. @JillianG_CT highlighted the need for stronger research investment, insurance reform for critical endo care & proper medical coding — all essential for improving patient outcomes.
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When we dismiss #endometriosis as “period pain,” we delay diagnosis by a decade. Share to break the cycle.
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Even after the trauma, she’s finding something new: hope. Hope for healing. Hope for a future family. Hope for a world where no one is told to “just tough it out.” Read Jamie’s full story ⬇️ https://t.co/Jpfgws0jh8
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“I had to schedule my entire adult life around one week every month.” For two decades, Jamie pushed through debilitating symptoms that were brushed off as “normal.” When she finally had surgery, a complication led to 3 more operations and a temporary colostomy.
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Let’s keep pushing for a world where every story is heard and every symptom is taken seriously. 💛
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Thank you for making this a year of real, measurable progress.
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Your support made our biggest impact yet — and brings us closer to a future where every #endometriosis warrior is heard and supported.
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Small space, big comfort. Wayfair has stylish tables and seating that make every corner count.
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EndoFound #Wrapped 2025 💛 Thanks to you, this year brought historic research advances, nationwide education, and record-breaking fundraising.
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Your voice matters. Your story matters. And Emorie is proof. 💛 This is her story:
endofound.org
After a Stage IV endometriosis diagnosis and hysterectomy at 25, oncology nurse Emorie Harty led EndoFound’s 2025 End Endo 5K to a record-breaking year.
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“Don’t be afraid to ruffle feathers to get a diagnosis.” After years of being dismissed, a Stage IV diagnosis, and a hysterectomy at 25, Emorie Harty is turning her journey into change — raising $7,600 for the End Endo 5K and helping us reach a record-breaking $88,107.
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“What is important is that the American Cancer Society has now (includes on)their website, lists the risk of #endometriosis as a potential precursor or potential risk factor for ovarian cancer,”@DrSeckin @Endofound said. @NewsNation https://t.co/Qi3XreexbP
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For too many endo warriors, the hardest part isn’t the pain — it’s fighting to be believed. This #GivingTuesday, @lesliemosier is sharing her journey because every story matters. And your support ensures more patients get answers sooner. Donate today: https://t.co/GzrvvOQ3wx
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This whole 🧵
There is nothing “silent” about #endometriosis — the only thing being silenced is patients. Too many are told their symptoms are “normal,” “in their head,” or “not severe enough,” leaving real inflammation, damage, and infertility dismissed or overlooked.
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Every Story Matters officially launches today on #GivingTuesday — and your gift will be doubled up to $5,000. Your support helps change the story for the 1 in 10 living with #endometriosis by fueling education, research, advocacy, and awareness: https://t.co/GzrvvOQ3wx
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A major new study reveals that up to 1 in 4 ovarian cancer cases are linked to #endometriosis. @DrSeckin joined @NewsNation to shed light on what this means and why we must continue fighting for early diagnosis and better research https://t.co/guiuZKb9ub
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Whether you’re celebrating Christmas, Hanukkah, Kwanzaa, or simply the end of another long year—our wish stays the same: a world where no one has to suffer from #endometriosis. We’re in this together. 💛
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From standing beside @BindiIrwin at our 2024 Blossom Ball to standing atop the @officialdwts stage — @RobertIrwin keeps showing up with heart. 💛 Congrats, Robert, on this incredible win — and thank you to the Irwin family for championing #endometriosis awareness 👏
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