
FTD Registry
@EndFTDregistry
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The Registry is an online database to collect information from those affected by all types of frontotemporal degeneration (FTD).
Joined March 2016
Wondering what happens after you join the FTD Disorders Registry?. You get instant access to research opportunities + resources to help drive FTD research forward. Learn more: #EndFTD
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Join the National Alzheimer's and Dementia Resource Center, the Administration for Community Living, and RTI International for a free webinar this August 12th. Learn more and sign up: #endFTD #FTD #caregiving
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We have launched our new Researcher Portal. It is a powerful tool to help investigators access de-identified data & request Registry support to accelerate study recruitment. Learn how it can help advance FTD research: #EndFTD #FTDResearch.
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Finding participants is a big challenge in FTD disorders research. Without those connections, studies stall. The Registry helps link researchers and research-ready participants to speed discovery. Learn more: #EndFTD #FTDdisorders #research.
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Anyone with an interest #FTDdisorders research can join the Registry. By joining the Registry, you're helping drive research, improve care, and move us closer to effective treatments and a cure. Numbers have power. Be part of the progress: #endFTD
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Many people have questions about genetic testing. Genetic counselors can help you better understand your options. Learn more about why it is important:. #EndFTD #FTDdisorders
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RT @AFTDHope: Understanding whether the FTD in your family has a genetic cause can provide clarity, guide care planning, and offer opportun….
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The FTD Disorders Registry joined representatives from Cure GRN, @CureMAPTFTD, @CureVCP, & the @progranulin_nav for a visit to @PennFTDCenter. It was a powerful reminder of how research & community collaboration are driving progress to #EndFTD.
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RT @AFTDHope: AFTD invites healthcare professionals to a webinar on June 26 at 12 pm ET on Speech Language Therapy: A Promising Practice in….
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RT @AFTDHope: A recent study finds that a profile of blood-based cytokines could potentially serve as a biomarker for neuroinflammation in….
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Learn how information shared by Registry participants is helping researchers better understand frontotemporal degeneration — and why it matters. Read more: #endFTD #FTD #ftdresearch
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