22 - chronically ill and disabled artist, self dx. autistic. THERE IS STILL A PANDEMIC 🟥Please don’t repost or use my art without permission 🟥 Etsy Shop⬇️
2 of my recent still life paintings. Since having to drop out of art school due to the lack of covid precautions and me being very immunocompromised. I’ve passed the time by painting things around the house and from my garden.
The loneliness in being 22 and the only one around me taking COVID precautions while also having to live with my parents who everyday remind me that I am a burden and an inconvenience to them.
My nurse from the neuro-endocrinology dept at
@BrighamWomens
is saying I am not allowed to ask my healthcare providers to wear a mask. How am I supposed to safely get an mri without risking Covid if none of the techs and nurses will wear one and I can’t ask. Isn’t masking ADA?
It’s all just unbearable right now and the idea that this may last forever just makes me wonder what’s the point. I can feel myself just craving any human connection at this point. I just so fucking lonely and I’m furious that this is reality for so many Covid conscious people.
I lost all my friends. I’ve never dated anyone and it feels almost impossible with Covid now. Because of my health conditions, I can’t move out and getting a job is complicated.
All she kept saying is masks are gone from everywhere and the pandemic is over. Any suggestions for dealing with her or mri safe masks? I literally don’t really go anywhere outside of my house except doctors appointments I can’t miss bc I am immunocompromised.
Everytime I think about how at some point I'm going to have to bite the bullet and have my surgery in a hospital that doesn't mask and gaslights me about
Covid, I just want to throw up.
I had to have brain surgery in 2021 and have been immunocompromised ever since but I have been taking precautions and social distancing, masking etc. since Covid started. I wear kn95s from Amazon right now but they have the metal nose piece.
@hutchleah
I’m so disappointed in her. From the tour to the movie. If she really cared about her fans she would have encouraged masking and released the film on a streaming service. (Really the tour shouldn’t have happen at all but we all know how much Taylor likes making money)
@facebook
someone hacked into my account early this morning. they changed my password and then removed my email and phone number. then they deleted everything on it and changed the name and then it said it was deactivated.
@SweetBCBoi
@pjhn22
@BrighamWomens
That’s what I was thinking. I was think of asking everyone but her since she got so upset. The worst they can say is no and if they do put one on great.
@DHAmerican
@pjhn22
@BrighamWomens
That’s how I feel about my endoscopy and my gallbladder surgery I going to have later o. The year except these surgeries won’t be with Brigham. They will be at a hospital closer to home who at least decided to keep masks for inpatient. But im still nervous
@NikkoleHughes
I like the breatheteq kn95s. They have ear loops and I feel like they are very breathable and preferable in warmer weather. And they have a really cute purple color option. The only down side is that they can be somewhat expensive for some.
@DiaryofaSickGrl
1. Refusing to wear a mask during my appointment
2. Making everything a conversation about weight loss or dieting without asking about my diet, exercise habits or taking into consideration how my health conditions affect both.
It's the same reason I haven't been back to a dentist even though my teeth aren't the greatest. The last dentist mocked me when I asked her to mask and I left in tears.
“I’ve been tested again & I’m clear…but they keep telling me because it has to be ten days or something, I gotta keep wearing [a mask]. Don’t tell them I didn’t have it on when I walked in.”
700k+ dead on
@POTUS
watch, millions w/ Long Covid. Pathetic leadership.
I had the same experience when I had an adrenal crisis and had an ambulance come. I had to ask the police officer, paramedics, and the hospital staff to wear masks. It was beyond frustrating using the little energy I had to make sure I wasn’t harmed further by their lack of masks
It just makes me feel like people view me as less than when I have to beg them to do simple and easy things to protect my health. Why is my life and health considered disposable?
Why is my mayor is going door to door without a mask on while his wife actively has Covid? He is going to put immunocompromised, disabled, and chronically ill people at risk. My mother didn't know about his wife's Covid infection/his exposure until I asked about his Covid policy.
The surgery is to remove pre-cancerous stuff but l've been putting it off because begging the hospital staff to take precautions for my health is dehumanizing.
I had a horrible day today.I had to go to the dentist to get a cavity filled. I got mocked by the dentist and the assistant for asking about Covid precautions to keep me safe. I’m pretty sure the assistant was sick.With what?I don’t know. Let’s just say I left the place in tears.
I tried getting back into it by submitting my id once already and then following the prompt to change the password but it wouldn't let me change the password. I'm not sure if it was deleted by the hacker already or not.
@philaheather
Hi I am a disabled artist, I have a sale happening on my Etsy ‘Emilyhayesart’ code SHIPFREE for free shipping. I sell hand drawn stickers and handmade keychains and scrunchies.
I caught Covid. All because my dad was consistently wearing his mask wrong. I wasn’t able to isolate from him. Any tips on how to not end up in the hospital because I have a lot of comorbidities would be great.
I don’t know why I try. I always end up saying or doing something that causes people to leave, without even realizing it. Maybe it’s because I never know what is ok to say or I just miss social cues idk idk.
@NikkoleHughes
@BrighamWomens
Thank you for responding. I was thinking about the readimask, I was just hoping there may be other alternatives because my skin is sensitive to adhesives. But I’m probably going to try it any way and hope for the best 🤷🏻♀️ I don’t think the mri takes too long.
@sassyashieOG
the feeling is like an all encompassing dread with everything related to possible covid exposures. Yeah, they told me they were going to mask for me but when I got there, they said ‘they can’t do their best work in an n95’ and went off on me and got super condescending.
I had to have brain surgery in 2021 and have been immunocompromised ever since but I have been taking precautions and social distancing, masking etc. since Covid started. I wear kn95s from Amazon right now but they have the metal nose piece.
@sebdave23
It was pretty horrible until I got paxlovid and then I just had a cough, exhaustion and really bad congestion. The only thing that worrying me is my cough seems to be getting worse and worse the further I get out from the paxlovid. I’m sure my asthma isn’t helping.
This might be completely wrong but maybe Colleen ballinger did such a crazy video because she’s hoping to cash in from people watching it and then leave the internet?
My dad is actively going out and about and doing all of his errands while Covid positive. He doesn't even wear his mask right. I'm so annoyed. He's exposing all these people and he doesn't even care.
Starting today through Sunday night, I’m having a sale in my Etsy shop that is $5 off any order of $25 with the code ‘GET5’ .Everything in my shop is handmade and all the art is drawn by me ☺️ link in my bio
FaceTimed my friend for the first time in forever and in the first 20 minutes she started giggling and telling me that she caught Covid a 3rd time and gave it to everyone in her office (she doesn’t mask)…
I was already hesitant about reconnecting with her but I ended up calling her because I don’t really have anyone else since Covid. But I am so conflicted. How do I show up authentically in a friendship with someone who cares so little about Covid?
It just feels like a slap in the face when she’s giggling about giving Covid to her whole office when I just had to postpone a procedure and a surgery because of the lack of Covid precautions.
Hi I am a disabled artist, I have a sale happening on my Etsy ‘Emilyhayesart’ code SHIPFREE for free shipping. I sell hand drawn stickers and handmade keychains and scrunchies.
@Sterling_OSEP
When it doesn’t end up being what I had pictured in my head. I think it is because so many people around me who have seen my art say it’s amazing but when a painting doesn’t work out, in that moment I do not feel amazing. It feels like I’m not meeting their expectations of my art
Starting my garden was probably the best thing to happen because of the pandemic. If I have to be home almost all of the time, I might as well make it fun and beautiful 🌻☺️🌸
Living in a reality where you pretend there are no consequences for your actions is not wise - it is not "saving your mental health"- it is an active participation in the delusion that your choices do not impact others.
@NikkoleHughes
When I got called for jury duty, my doctor excused me with a note because of the risk of Covid but also because with my conditions I didn’t feel well enough. I’m sure your doctor would right you a note
Nothing like waking up to my mother screaming I hate you and a bunch of other shit after her weaponized tears and manipulation didn’t work. Nothing she hates more than being held accountable for her actions and having to face the consequences.
@SpiceWeedlor
@hutchleah
You do realize people have gotten Covid at her shows right?? And getting vaccinated doesn’t stop you from catching or spreading Covid.
Not my PCP calling me agoraphobic and wanting to medicate me for anxiety when I said I don’t feel comfortable going back to school with no one wearing a mask and little to no ventilation. I’m so sick of this…
How I feel being the only one around me who is still covid cautious. How I feel having lost nearly everyone in my life because of my chronic illnesses. How I feel knowing dating/making new friends is nearly impossible for me now.