EGFR Resisters
@EGFRResisters
Followers
5,186
Following
2,876
Media
398
Statuses
3,797
A group of EGFR+ lung cancer patients who are resistant to targeted treatment. Sharing support & research news, accelerating research, improving outcomes. #lcsm
Worldwide!
Joined August 2017
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Last Seen Profiles
Pinned Tweet
EGFR Resisters May monthly newsletter is here!
Link:
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Because of EGFR research, Allen Lee was able to get married and see the birth of his daughter, Mia. We need more research and progress for him to be able to raise her.
#LCAM
#lungcancer
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Here are just a few faces of EGFR Resisters on World Lung Cancer Day. We are all waiting for better treatments to keep us alive longer.
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Because of EGFR research, Samantha Bladwell was able to celebrate her daughter’s first birthday.
#lcam
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Lung cancer in patients who never smoked -an emerging disease
“The global incidence of lung cancer decreasing in parallel w/ declining smoking rates in developed countries- the incidence of LC in individuals who have never smoked is stable or increasing”
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Tagrisso failed after only 9 months for Filipe, Stage 4
#egfr
#lungcancer
patient and advocate. At 37, he shares his experience w/this disease and the importance of advocacy w/
@EuropeanLung
. He exemplifies the need for better 2nd and 3rd line treatments.
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‼️RESOURCE ALERT‼️
I have created a database of resources/information to help patients/caregivers etc navigate the EGFR LC space.
It is a work in progress but here is the link:
Save the link as I update this daily! Thank you!!
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A community member created this art to remind us that
#anyonewithlungs
can get
#lungcancer
. We need to change the way we talk about it. We need to recognize that its a complex disease with many risk factors. We need to create a more supportive environment for patients & families
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Very proud to announce that our closed Facebook group for patients and caregivers has reached 1K members! If you or a loved one have been diagnosed with EGFR positive
#lungcancer
, please join us to share information and work together to improve patient outcomes.
#lcsm
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💔
It is with a heavy heart and profound emotion that I announce the passing of my beloved spouse, Reika Yokochi, who left us at the age of 48 after a courageous battle with EGFR-positive lung cancer
@EGFRResisters
, a disease that disproportionately affects non-smoking Asian women.…
2K
1K
30K
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We are excited to announce our collaboration with
@TheALCF
to jointly advocate and fund research for patients with EGFR+ lung cancer.
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Because of EGFR lung cancer research, Garth Atchley is still here to be a parent and husband for his family, and he's still running strong.
#lcam
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Because of EGFR research, Kimberly Scott is alive to attend her oldest daughter's wedding, take her 2nd on her 1st trip to Scotland, see her son go to prom, celebrate 27th yr wedding anniversary, take her youngest to Hawaii. Living her best life. Grateful every day.
#lcam
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Research funding is disproportionate to the burden of disease that
#lungcancer
cancer imposes. Lung cancer patients and their families deserve more!
#lcam
@OncoAlert
@DFEGFRcenter
#cancer
#CancerAwareness
#Advocacy
@POTUS
#medtwitter
#onctwitter
#medX
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Because of EGFR research, Sara Elida Kern got to celebrate her daughter’s 3rd and her son’s 1st birthdays. Here’s to more funding, more research, more viable treatments, and more birthdays!
#lcam
#lungcancerawareness
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Osimertinib plus local treatment for brain metastases versus osimertinib alone in patients with EGFR-Mutant Non-Small Cell Lung Cancer
These findings suggest that upfront LT + Osimertinib can offer improved outcomes
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Allen Lee
@allen_lee_
is a 5 year survivor, and 3 year resister with the T790M/C797S resistance mutation. Because of EGFR clinical trials, and chemotherapy, and targeted radiation, Allen recently heard his daughter say "dada" for the first time.
#lcam
Attachments area
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We are saddened to announce the passing of our dear Anita Figueras aka
@scifiknitter
, a co-founder and advocate extraordinaire of the EGFR Resisters. We are dedicated to continuing our work to improve patient outcomes and accelerate EGFR+ lung cancer research in Anita’s memory.
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🚨 News alert! The amazing Aurora, who was dx with EGFR lung cancer at the age of 28, is featured on
@NBCNews
and bc of her, lung cancer is on the front page of the website! Let’s read/share this article far & wide so LC gets the attention it needs! 😭
➡️
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Because of EGFR Lung Cancer research, Donna Hunting was able to see her first grandchild being born and is blessed to watch all of her milestones in person.
#lcam
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We are launching our EGFR Resisters Instagram page today in honor of
#LungCancerAwarenessMonth
. Please follow us at egfrresisters_lungcancer! For
#LCAM
, we will profiling
@EGFRResisters
who have benefited from EGFR research.
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This is not surprising news, but the confirmation of OS benefit with use of Tagrisso first line in
#EGFR
#NSCLC
IS VERY EXCITING & hopeful for EGFR lung cancer patients and their families
#LCSM
#ResearchMatters
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Because of EGFR research, Elisa Keesen was able to experience her 30th birthday, write a small book, attend her best friend's wedding, be a godmother, travel to Ethiopia and india, learn to surf and collect much more great memories together with her husband.
#lcam
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Lung cancer in those who haven't smoked is 7th leading cause of cancer death worldwide!
#ASCO23
Anyone with lungs can get
#lungcancer
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Tiffany's husband, Nick, shared this powerful video with us
"3 years ago, my beautiful wife was diagnosed with advanced stage
#lungcancer
She lived a healthy lifestyle and never smoked, yet lung cancer still found her. She continues to fight every day."
#lcsm
#lcam
#cancer
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Because of EGFR research, Laura Book was able to attend her son's wedding and is still alive and kicking 3+ years after diagnosis. But more research and funding is needed to keep her alive in the coming years after targeted therapy fails!
#lcam
#lungcancerawareness
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Because of EGFR research, Kim Heffernan saw her youngest graduate grade school, her oldest graduate high school and was able to take her oldest son to college this year.
#lcam
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Because of EGFR research, Laura Book was able to attend her son's wedding and is still alive and kicking 3+ years after diagnosis. But more research and funding is needed to keep her alive in the coming years after targeted therapy fails!
#lcam
#lungcancerawareness
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Because of lung cancer research, Jennifer Moran is alive to celebrate her 50th birthday, see her son play college football, to see her daughter enjoy her senior year of high school, and celebrate 21 years of marriage to her high school sweetheart.
#lcam
#LungCancerAwarenessMonth
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Osimertinib (Tagrisso) is a wonderful drug for EGFR +
#lungcancer
but once there is resistance, it can get complicated. We understand that resistance mechanisms are many, but we need better treatments once this occurs.
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Because of EGFR
#lungcancer
research, Shannon Cowen has “1 powerful pill”, as her 5 year old says, that helps her to continue to live with lung cancer & maybe hopefully one day be cured so that she doesn't miss a single moment of his beautiful life.
#lcam
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Because of EGFR research, Stephanie Kohn was able to enjoy a wonderful family vacation in Colorado this past summer!
#lcam
#lungcancer
#lungcancerawareness
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Because of EGFR research, Kateri Langseth was able to see her son get his license, teach her daughter how to drive and make as many memories as possible.
#lcam
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Watch now - EGFR Resisters 5th Annual Research Summit Wrap Up w/ commentary from
@StephenVLiu
&
@ivybelkins
.
Congratulations to the young investigators! Thank you
@CE_Concepts
for sponsoring this event!
@EGFRSummit
#lcam
#lcsm
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Because of EGFR research, Nancy Engel (an almost 4 year stage 4
#lungcancer
survivor) could go on the trip of a lifetime with her husband.
#lcam
#lungcancerawareness
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Happy New Year to all. Here's hoping we have some significant breakthroughs in
#lungcancer
research and treatments in 2020. In the meantime, we will live our lives to the fullest.
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Because of EGFR research, Nancy Engel (an almost 4 year stage 4
#lungcancer
survivor) could go on the trip of a lifetime with her husband.
#lcam
#lungcancerawareness
0
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Because of EGFR
#lungcancer
research, Sarah Christ was able to see Costa Rica with her family and honeymoon in Portugal with her wife.
#lcam
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Today we say a final goodbye to one of our beloved founders, Anita Figueras. We shall continue her work to help improve patient outcomes in her memory.
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Thank you to all of the oncologists that often work tirelessly for their patients. We hope you know how appreciated you are & that we are aware of the sacrifices you make. Systemic change is needed for doctors & patients alike.
#lcsm
@NarjustFlorezMD
@esinghimd
@StephenVLiu
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7
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#WorldLungCancerDay
Building a better tomorrow for EGFR+ lung cancer patients and families! We are 30% of our way to our research project with
@lcrf_org
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Thank you
@andrewpannu
for this helpful infographic and deep dive (in the comments) on the EGFR+
#nsclc
treatment landscape!
#nsclc
#egfr
#lcsm
#lungcancer
#onctwitter
EGFRm+ NSCLC treatment landscape
Key assets, trials and companies segmented by treatment line and mutation type
Some takeaways from this competitive space:
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Because of EGFR research, Frances Beard got to see her daughter enter and graduate from college.
#lcam
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We are ready & set up for our Inaugural EGFR Resisters Research Summit! Looking forward to meeting the researchers. Missing
@allen_lee_
&
@ckennedysturdi
In all the work we do we will always honor the memory and contributions of
@teriak64
&
@scifiknitter
#LCSM
#LCAM
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Comprehensive mutational scanning of EGFR reveals TKI sensitivities of extracellular domain mutants
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Because of EGFR research, Samantha Bladwell was able to celebrate her daughter’s first birthday.
#lcam
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Lauren Corcoran,38, shares her
#egfr
#lungcancer
story with
@TODAYshow
Thank you Lauren for sharing & thank you to the today show for highlighting this story. We must continue to spread awareness!
#lcam
#lcsm
#cancer
#mom
#research
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A macrocyclic kinase inhibitor overcomes triple resistant mutations in EGFR LC
Our findings suggest that brigatinib-resistant mutants can be overcome by BI-4020, a fourth-generation EGFR inhibitor, as a single treatment or w an antiEGFR antibody
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Because of EGFR
#lungcancer
research,
Elena Rousseau's daughter knows who she is and will remember the real Elena.
#LCAM
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Because of
#lungcancer
research, Alisa Brenes has lived to see her twin sons graduate elementary school, middle school high school, and college!!!
#lcam
#LungCancerAwarenessMonth
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Thanks to research,
@jillfeldman4
has been LIVING with lung cancer for 11 years.
#LCSM
#ResearchMatters
!
When your 17 yr old can't remember you/life b4 lung cancer, knows your mom, dad & other fam died of it & really understands
#ResearchMatters
! Best message to wake up to (& nice insta post). I'm glad I'm not dead too & when it comes to lc I am happy to be a
#MightyBitch
!
#LCSM
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Today we lovingly remember Teri Kennedy, our cofounder, who inspired us and sent us on a journey to help improve the outcomes for people w/
#lungcancer
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Because of EGFR
#lungcancer
research, Kara Webb will be here to welcome her newest granddaughter next month and enjoy the two grandkids she already has!!
#LCAM
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Because of EGFR research, Sara Elida Kern got to celebrate her daughter’s 3rd and her son’s 1st birthdays. Here’s to more funding, more research, more viable treatments, and more birthdays!
#lcam
#lungcancerawareness
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6
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With great sadness we announce the passing of co-founder, Teri Kennedy. She ran annual fundraising walks, presented posters at IASLC Targeted Therapy Forums & relentlessly advocated for better EGFR treatments and research. We thank and honor Teri for all her
#lungcancer
advocacy.
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Because of
#EGFR
#lungcancer
research, Ashley is still alive 3 years after dx & was able to go on the vacation of a lifetime this summer with her husband & son. She is
#grateful
to still be here to make precious memories w/ her family & friends
#lcsm
#lcam
#tgif
#youngcancer
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6
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Because of
#EGFR
#lungcancer
research, Mike was able to walk his daughter down the aisle and celebrate her big day👰👰
#LCAM
#lungcancerawarenessmonth
#lcsm
#cancer
#cure
#defeatcancer
#stage4needsmore
#father
#daughter
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Because of EGFR
#lungcancer
research, Rachel Quinto and her family gratefully celebrated her 42nd wedding anniversary after diagnosis of Stage 4 NSCLC over 2 1/2 years ago.
#lcam
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#lungcancer
survivors and caretakers will be raising their voices to Congresspeople on Capitol Hill tomorrow for restoration of the $20 million funding level of the Lung Cancer Research Program within the Dept of Defense. Research=Survival!
#VoicesSummit
#FundOurLungs
#lcsm
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18 year stage IV EGFR+ lung cancer survivor, Dann Wonser, is raising funds for our research foundation and these donations will be QUADRUPLED! That means that a donation of $100 = $400!
Donate here:
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#ASCO21
we are ready to go!💨
Here, some of the most interesting abstract on
#LungCancer
#LCSM
that will be presented, very soon!
Take a look at that & enjoy 👁🗨
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"Big Bang Theory' Star Kate Micucci Reveals Lung Cancer Diagnosis: 'Never Smoked a Cigarette in My Life"
Glad to read that it was caught early..another unfortunate example of lung cancer occurrence in young women
#lcam
#lcsm
#cancer
#lungcancer
#women
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We are excited to share our 1st webinar of a 3-part series on Progression & Resistance in
#EGFR
+
#lungcancer
sponsored by
@BlueprintMeds
. Please join
@sloan_kettering
Drs.
@HelenaYu923
&
@jmchan88
to learn more about
#smallcelltransformation
.
#lcsm
0
5
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Because of
#lungcancer
research, Lindi Campbell was able to celebrate
#34yearsofmarriage
to her college sweetheart!
#LCAM
#LungCancerAwarenessMonth
0
5
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World Lung Cancer Day (August 1st) was the 1 year anniversary of the
@EGFRResisters
#lungcancer
patient group. Please read our newsletter to learn about what we have accomplished in a year!
#lcsm
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Association of PD-L1 expression with driver gene mutations and clinicopathological characteristics in non-small cell lung cancer: A real-world study of 10 441 patients
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Because of EGFR
#lungcancer
research, Sarah Christ was able to see Costa Rica with her family and honeymoon in Portugal with her wife.
#lcam
0
2
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Because of EGFR research, Dena Pettifer saw youngest daughter graduate HS & college, attended daughter's wedding, saw 3 granddaughters graduate HS. This year she was able to meet her 6th grandchild & 1st great grandchild. Fighting cancer for 6+ years.
#lcam
0
4
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Bayer wins FDA breakthrough therapy designation for NSCLC candidate
BAY 2927088 is a reversible (TKI) that selectively inhibits mutant forms of HER2 and EGFR.
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Because of
#lungcancer
research, Lisa Gnap can enjoy beach vacations with her husband 7 years after a
#stage4
diagnosis.
#LCAM
#LungCancerAwarenessMonth
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4
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In remembrance of Dr. Paul Kalanithi, author of
#WhenBreathBecomesAir
, who died of
#EGFR
#lungcancer
in 2015 at 37, we emphasize the importance of
#biomarkertesting
and knowing your
#EGFR
status.
#LungCancerAwareness
#memoir
#Cancer
#bestseller
#stage4needsmore
#lcam
#lcsm
“I was neither angry nor scared. It simply was. It was a fact about the world, like the distance from the sun to the Earth.” Revisit an excerpt from Paul Kalanithi’s posthumously published memoir, “When Breath Becomes Air”:
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Because of EGFR research, Maki Inada was able to have a family and live 11 more years. Her daughter is now 8!
#lcam
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3
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Because of EGFR
#lungcancer
research, Francesca McAndrew is looking forward to a trip to Europe with her husband, and first time with kids..in particular Italy, which is where her parents were born.
#lcam
0
3
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Because of EGFR
#lungcancer
research, Sara Kern looks forward to celebrating her sister-in-law’s marriage, welcoming a dear friend’s baby, and making hundreds of new joyful memories with her children, husband, family, and friends in 2020.
#lcam
0
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1/3 Beyond statistics, each
#EGFRLungCancer
life lost leaves a void We hear echoes of their advocacy in our fight, fueled by memories of their strength & loved ones' heartbreak Today we share about Dr Jen Cipriani She was a wife, young mother, anesthesiologist, & patient advocate
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Because of EGFR
#lungcancer
research, Samantha Mixon looks forward to spending more time with her family in 2020.
#lcam
0
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Because of EGFR
#lungcancer
research, Kathy Sinclair, diagnosed on her 41st birthday, was able to celebrate her official "old-age" birthday!
#LCAM
#lungcancerawarenessmonth
#lcsm
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Because of lung cancer research, Star Todd Dolbier was able to see her son graduate from high school.
#LCAM
#LungCancerAwarenessMonth
0
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Because of EGFR # lungcancer research, Amie Hyman is alive 3 years after a Stage 4 Lung Cancer diagnosis and recently went on a very vigorous 15 RV trip to Yellow Stone, Grand Tetons and the Badlands!
#lcam
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Advocates at the
@go2forlungcancer
#VoicesSummit
this week included our own Judy Ganeles,
@AlisaBrenes
,
@LauraJBook
from the EGFR Resisters.
Asks to Congress included increasing to $60 million for the CDMRP FY2025 Lung Cancer Research Program.
Thank you for being our voice!
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Because of EGFR
#lungcancer
research, the advocates of the EGFR Resisters want to acknowledge the lung cancer community and encourage others to become involved.
#lcam
0
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Because of EGFR research, Diane Spry has been able to get her life back as it was prior to my dx. She's working full-time and living her life.
#lcam
0
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Because of EGFR
#lungcancer
research, Lisa Moran looks forward to her 50th birthday in 2020.
#lcam
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The
@EGFRResisters
are working to accelerate research with the goal of turning EGFR positive lung cancer into a manageable chronic condition!
#lcsm
#lungcancer
I’m alive because of recent breakthroughs in medical research and excellent medical care at
@UCCancerCenter
. Please read my story on
@LungCancer_HU
. Lung cancer research needs more funding so that others like myself can live well with lung cancer!
#lcsm
#lungcancer
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Because of EGFR research, Fran McAndrew got to see her children 8 & 11, when diagnosed, grow into their teen years. Now starting college search w/ her son who’s a Jr. this year. She's also taken really nice, unforgetable vacations and celebrated 18th wedding anniversary.
#lcam
0
3
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Thank you
@jillfeldman4
for sharing your important perspective in this article!
“As cancer treatment advances, patients and doctors push back against drugs' harsh side effects”
0
6
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Genome-wide CRISPR screens identify the YAP/TEAD axis as a driver of persister cells in EGFRmutant lung cancer
0
6
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Because of EGFR research, Kateri Langseth was able to see her son get his license, teach her daughter how to drive and make as many memories as possible.
#lcam
0
3
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"The well-established stigma around lung cancer, primarily caused by the misconception that only smokers get lung cancer, is still a big problem for people diagnosed with the disease."
9
7
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Because of EGFR
#lungcancer
research, Lin McTeague is alive 4 ½ years later and enjoying her grandchildren
#LCAM
#lungcancerawarenessmonth
#Thanksgiving
0
6
28
Because of
#lungcancer
research, Ashley Moelker will be alive to spend more time with her husband and 8 year old son.
#LCAM
#LungCancerAwarenessMonth
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