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Eating Disorders Clinical Research Network Profile
Eating Disorders Clinical Research Network

@ED_CRN

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Establishing a UK-wide NHS research network spanning child and adult eating disorder services to improve treatment outcomes & understanding of EDs.

IoPPN, KCL
Joined November 2023
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@ED_CRN
Eating Disorders Clinical Research Network
2 days
RT @EDHITBristol: Share your experiences in a INTERVIEW (online or on campus in #Bath) with @UniofBath researchers, and help future #Eating….
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@ED_CRN
Eating Disorders Clinical Research Network
3 days
RT @OpenMindMH: The @ED_CRN are trying to answer some of the big questions like: . -who is being seen in eating disorder services? .-who IS….
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kcl.ac.uk
Simple questions about the presentation of eating disorders in UK health services cannot currently be answered. This is because eating disorder services do not collect the same information about…
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@ED_CRN
Eating Disorders Clinical Research Network
5 days
RT @DumpTheScales: How many people are being seen in eating disorder services in the UK? How well is treatment working for different people….
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@ED_CRN
Eating Disorders Clinical Research Network
9 days
🔬This week's journal club is a paper by James Downs, a member of our Lived Experience Steering Committee, and Clive Kelly, with some fascinating insights into Anorexia Nervosa in males. To see the full paper, see here 👉
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@ED_CRN
Eating Disorders Clinical Research Network
11 days
RT @unafoye: 4️⃣“They Only See Weight” – Gaps in care where services focus solely on physical health, neglecting the emotional and psycholo….
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@ED_CRN
Eating Disorders Clinical Research Network
11 days
RT @unafoye: 📢New research 📢 Our new qualitative study provides the first in-depth study exploring individuals experiences and views regard….
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bmcmedicine.biomedcentral.com
Background Eating disorders (EDs) are associated with elevated all-cause mortality, with suicide cited as the second leading cause of death among individuals with EDs. Evidence suggests that indivi...
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@ED_CRN
Eating Disorders Clinical Research Network
17 days
RT @kingsedresearch: *NEW STUDY IN SOUTH LONDON FOR ADULTS WITH ANOREXIA NERVOSA AND CO-OCCURRING DEPRESSION IS NOW RECRUITING PARTICIPANTS….
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@ED_CRN
Eating Disorders Clinical Research Network
22 days
RT @edgi_uk: Those experiencing an eating disorder have an increased likelihood of experiencing a range of other mental health conditions.….
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@ED_CRN
Eating Disorders Clinical Research Network
27 days
This week's journal club features a paper from our excellent colleague and PhD researcher, Saakshi Kakar, in which she conducted a large-scale analysis of under-recognised weight loss behaviours in individuals with eating disorders.
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@ED_CRN
Eating Disorders Clinical Research Network
29 days
RT @OpenMindMH: The Eating Disorders Genetics Initiative is the UK’s largest ever research project on eating disorders. You can take par….
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edgiuk.org
The Eating Disorders Genetics Initiative is a project set up by King's College London, in collaboration with Beat, to explore genetic and environmental risk factors for eating disorders.
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@ED_CRN
Eating Disorders Clinical Research Network
29 days
RT @DumpTheScales: The Eating Disorders Genetics Initiative is the UK’s largest ever research project on eating disorders. You can take pa….
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edgiuk.org
The Eating Disorders Genetics Initiative is a project set up by King's College London, in collaboration with Beat, to explore genetic and environmental risk factors for eating disorders.
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@ED_CRN
Eating Disorders Clinical Research Network
1 month
RT @BMJMentalHealth: 📣 New in @BMJMentalHealth 👇🏼."UK Eating Disorder Services Reach Consensus on Key Biopsychosocial Data to Collect". Liv….
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@ED_CRN
Eating Disorders Clinical Research Network
1 month
💙To read the brilliant paper, click the link below or check out our Linktree Journal Club Collection!.
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kclpure.kcl.ac.uk
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@ED_CRN
Eating Disorders Clinical Research Network
1 month
💙 Quote from a Lived Experience Representative from the Children & Young Persons workshop: “Relationship building is key before jumping into questionnaires. It’s important to reduce shame and build trust, particularly for people who feel vulnerable.”.
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@ED_CRN
Eating Disorders Clinical Research Network
1 month
💙 Theme 4: Doing no harm. The treatment process should help, not overwhelm or shame patients. The EDCRN platform allows participants to complete questionnaires in their own time, at their own pace.
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@ED_CRN
Eating Disorders Clinical Research Network
1 month
💙 Quote from a clinician in the adult workshop: “When data collection isn't standardised, it not only affects the quality-of-care patients receive but also the quality of research that relies on that data.”.
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@ED_CRN
Eating Disorders Clinical Research Network
1 month
💙 Theme 3: A Balance Between Standardization and Individualisation. There's a need for standardised yet flexible data collection to personalise care for each patient. The questionnaires on the platform include optional q’aires for participants who find them particularly relevant.
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