Alexandra Power-Hays, MD
@DrPowerHays
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Same username on Blue Sky. Find me there! Sickle Cell Doc & hematologist fighting for our pts, locally and globally π
Joined September 2019
Did your hospitals #AntiRacism pledge include efforts to help #SickleCellWarriors? If not, you've got more work to do! πͺπΏπͺπΎπͺπΌ @PTMcGann & I outlined some steps to get you started https://t.co/Pfzeg5fp4V
#PHOdocs #hematopoieticjustice #SickleCellAwarenessMonth #MedTwitter
nejm.org
As medical leaders around the United States issue statements denouncing racial injustice and calling for the dismantling of racism, we must ensure that these pledges translate into durable improvem...
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Pediatricians do not profit off vaccines. In fact, most pediatricians either break even or even lose money when they offer vaccines. Misleading parents about doctors' motivations puts children's health at risk and sows distrust in lifesaving vaccinations. https://t.co/BmRlh6wx1G
nytimes.com
Experts said the health secretaryβs remarks send a dangerous message: Donβt trust your physician.
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Does anyone out there have any recommendations on a good course for the mandatory 8 hour DEA training? Ideally a course that will help me to take better care of people in pain #meded #chronicpain #sicklecell
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Wasn't there an Executive Order on Day 1 to restore freedom of speech and end government censorship? "Government censorship of speech is intolerable in a free society"
π¨BREAKING. From a program officer at the National Science Foundation, a list of keywords that can cause a grant to be pulled. I will be sharing screenshots of these keywords along with a decision tree. Please share widely. This is a crisis for academic freedom & science.
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Despicable. As families grieve, Trump should be leading, not lying. We put safety first, drove down close calls, grew Air Traffic Control, and had zero commercial airline crash fatalities out of millions of flights on our watch. President Trump now oversees the military and the
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If Trump doesn't reverse course, millions could lose healthcare, food assistance, childcare, and even emergency services. We've heard reports of Medicaid portals being shut down and childcare funds being frozen. Trump is steering the US into a disaster of his own making.
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3rd principle: Ujima, we take care of our own Grateful that our amazing community of leaders has decided to raise money and collect coats for our #sicklecellwarriors this year! ππ½ https://t.co/qTaXeSBnqK
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I just set up my Blue Sky account. Hoping to recreate the supportive and educational community of #sicklecell advocates, nerdy academics, blue dots prepared to care for our world, and anyone willing to share pet photos. Same username, find me!π
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Dr. Ivey sharing his experience with SCD, nearly dying from ACS and starting on hydroxyurea, a game changer for him in 1996. He finished his degree at NC State, MD at ECU, and public health degree at UNC #HHSSickleCellDiseaseSummit
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PICU boards studying today. Someone tell me why out of all the practice questions I did, the only child living in a foster home with no family history was the one with sickle cell disease πππ. This is already exhausting enough--we should not be still pointing out this stuff.
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Don't wait β check your state's voter registration deadline today and make sure you're registered and ready to vote. And then share this with your friends and family so everyone's ready to vote early or by Election Day. https://t.co/jKW0RyeBXC
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The above photo is old. Thanks to input from our patients & excellent leadership from @JPCincyOnc and Dr. Ware, oncology and hematology now have their own staffing and units with art and photography that is representative, diverse, and welcoming to all (more on that another day)
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This story is especially important for #PHOdocs and pediatric hematology/oncology divisions in September, which is for some reason both #ChildhoodCancerAwarenessMonth & #SickleCellAwarenessMonth
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"You are just as important as everyone else here, and we have enough people to take care of you and to take care of them. Some situations may be more time-sensitive, but no one is more important than you or anyone else"
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It's not a competition of which diseases are worse, but I want these options for her and other #sicklecellwarriors as well I sat back down
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That many will go on Make-a-Wish trips and that school will understand when they miss class? That doctors and nurses will believe those patients and parents when they say something is wrong. And that they'll promptly and lovingly tend to their pain
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My heart sank. Do I tell her that #sicklecelldisease is just as hard? That its more painful? Still life-threatening? And life-long. Do I tell her that thanks to incredible advances, most children w cancer will be cured? That almost all will have access to life-saving treatments?
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As I was leaving she thanked me for spending time with her & said "I know you have *more important* patients to see" I turned back to her. There was no sass or sarcasm. Her big brown eyes were full of empathy for the toddlers running around the unit w thinning hair from chemo
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A different type of hand-on-the-door doctor story: Recently a #sicklecellwarrior was admitted for pain. She was new to me & when I checked on her in the afternoon we talked about school, friends, tik tok. Not medicine. A few moments of calm during a busy week as a new attending
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#SickleCellAwarenessMonth D2 We are lucky now to have a healthier SCD generation. Family planning is increasingly important Sadly we have little research on how to manage SCD during pregnancy and 0 approved medications We must address this gap through patient-engaged research
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