My parent's house in Karachi was surrounded by mango trees and as a child I would sit in the branches and devour sun-ripened mangoes. So this photo of my little one warms my heart.
Today Is the day I tell my son that I’m dying from cancer. It’s reached a point where he has to hear it from me. Let all my tears flow now so that I can be brave this afternoon. Let me howl with grief now so that I can comfort him.
Our hearts broke. We cried a lot. And then the healing began. My son is brave. He is bright. He will be okay. And I will watch him grow from wherever I am. Today was the hardest day of my life. Thank you for all for your love.
Now that I have 100K followers, I want to talk about
#OvarianCancer
. Specifically my gritty story. The goal is awareness. I hope you find this narrative informative.
I am on the palliative care ward in a room with a spectacular view. My bowel obstruction has not cleared. I’m surrounded by love and ready for the pain to end.
I am flooding my Sun with presents. Anything that will remind him of Mama. Today as he left the hospital he said ‘see you tomorrow, although you might also be dead.’ That hurt until I realized he knew I wasn’t coming home from this hospital visit.
I'm overwhelmed by the response to this tweet, which I wrote while howling in bed. Since you're here, I am raising funds to support underrepresented scholars in my field. If you'd like to help me make my fundraising goal that would make my❤️swell.
My realities of today:
I’m getting a Foley catheter
Morphine is now prescribed every 4 hours
My skinny pins don’t work anymore
I’ve started a painting of a daisy
I made a bead bracelet for Madge who helps me to the bathroom with dignity
Last night was magical. I got a day pass from hospital & was able to do my Sun’s bedtime. We read about animals, sang songs, talked about my ashes nourishing the plants & fungi, cried & cuddled.
Yesterday I got a call from my Department Chair
@ConcordiaVision
.
I’ve been promoted!
Professor Nadia Chaudhri has such a beautiful ring to it! I feel like I have arrived!
I am on the palliative care ward in a room with a spectacular view. My bowel obstruction has not cleared. I’m surrounded by love and ready for the pain to end.
Day 13!!
Supported by the terrific nurses on the palliative care floor.
This Shuffle is for you, my generous supporters who have launch the Nadia Chaudhri Wingspan Award into orbit.
It is also for my
#TealSisters
battling ovarian cancer around the world.
Here's my personal Shuffle page where you can make a donation.
I pledge to walk the length of the palliative care ward every day for as long as I can. What a goal! I can do it with your help.
No $ amount is too small. All RT's appreciated!
It’s precious to see their blazing bond. We had a lovely visit this afternoon. The art therapist played a harp & brought me to nature, imagining loons & herons & butterflies on a lake.
We had a party in my room today to celebrate my promotion to Professor! Coffee ice cream & tasty beverages.
Time now to snuggle into my warm blankets & snooze off the excitement 😂
They have covered my entire bum with a big heart shaped sticker to prevent bed sores. It’s hilarious and I wish I could show it to you but that would be TMI 😂
At end of life, woman, 44, with ovarian cancer urges others to know symptoms via
@TODAYshow
Ovarian cancer symptoms in addition to the ones I experienced are described here.
My Sun made a family portrait. He’s captured so many details. My Moon’s hat and beard. Our matching skin tones. My earring & bald head. He is the center of a family hug. I love it & I wish we were smiling.
Truth time! I can’t get out of bed without help anymore.
But I’m gathering my strength for one more Shuffle down the palliative care floor tomorrow.
I know I’ve got one more in me 💪🏼
Here's my personal Shuffle page where you can make a donation.
I pledge to walk the length of the palliative care ward every day for as long as I can. What a goal! I can do it with your help.
No $ amount is too small. All RT's appreciated!
I hope you found this thread helpful. Know your bodies. Pay attention to fatigue and changes in bowel/urinary tract movements. Make sure you understand all the words on a medical report. Do not dismiss your pain or malaise. Find the expert doctors.
This happened because of the massive love I got from my global Twitter supporters!!
More than 6000 donors raised half a million dollars for graduate fellowships for minority students!
Thank you also to everyone on Team Wingspan, led by
@DrDunfield
!
I’m flooded with peace 🥰
In the spirit of sharing all, my skinny pins didn't work this morning. I was wheeled into the bathroom on a commode, tears leaking down my cheeks. One day at a time. Maybe I will walk again tomorrow.
Friends, I couldn’t Shuffle today. My skinny pins are rejecting walking & I have to respect them.
I made you a special video instead. A friend brought me pieces of the forest. Moss, lichen, leaves, cypress.
Shhh…don’t tell the nurses. I’m not sure if this is contraband 😂
Here's my personal Shuffle page where you can make a donation.
I pledge to walk the length of the palliative care ward every day for as long as I can. What a goal! I can do it with your help.
No $ amount is too small. All RT's appreciated!
I have a painful abscess in my cheek which I’m only just feeling better from. Spent all day a snooze 🛌 and being supported by the beautiful nurses and PABs. Back to snooze
What a spectacular day! I sat on my zero gravity chair surrounded by my loving family. It rained on me & I relished the feeling. My garden is blooming. Soon there will be a sunflower. I hope I get to see it 🌻
I sure hope that I can have dinner parties in my next life. A gathering of friends in the forest. And bounteous feasts of food that we have foraged & cooked on an open fire.
But the bottom line is that ovarian cancer research is underfunded. We also need more awareness of symptoms because early detection improves prognosis dramatically.
Every time someone donates to my shuffle campaign I get an email. I read the email, say your name aloud and give thanks. You are making my final days incredibly special & meaningful. Thank you for your faith, love & belief in support underrepresented scholars! ♥️🙏🏼💪🏼
The
#ConcordiaShuffle
officially takes place tomorrow. Here’s my mini Shuffle-in-place video for you.
Girls just wanna have fun & that’s what my bestie & I are doing 😊
Your donations to the Nadia Chaudhri Wingspan Award have blown me away. Words can’t convey my gratitude. 1/n
Here's my personal Shuffle page where you can make a donation.
I pledge to walk the length of the palliative care ward every day for as long as I can. What a goal! I can do it with your help.
No $ amount is too small. All RT's appreciated!
I can’t get out of bed without help but my Moon supported my Shuffle today.
So proud to have walked down the palliative care floor to raise funds for the Nadia Chaudhri Wingspan Award!
Day 12! Wearing an Ethiopian shawl that was a long ago gift from my bestie.
Here's my personal Shuffle page where you can make a donation.
I pledge to walk the length of the palliative care ward every day for as long as I can. What a goal! I can do it with your help.
No $ amount is too small. All RT's appreciated!
I have never felt so much love. I have built legacies through the immense generosity of family, friends and a tribe of supporters who have bolstered me into the clouds.
I’m so excited to share this with you. I finished a tiny painting yesterday called ‘Mango Adoration.’ It came pouring out of me over the past week, my version of a Mughal miniature. A gift for my Moon ♥️
Home day was lovely ♥️ We did a bit of art & watched The Sound of Music. I know all the lyrics because I played Brigitta in my school play when I was ten!
Here's my personal Shuffle page where you can make a donation.
I pledge to walk the length of the palliative care ward every day for as long as I can. What a goal! I can do it with your help.
No $ amount is too small. All RT's appreciated!
Did you think I forgot to Shuffle today? Day 11 baby!!
I added a bit of pizzaz because you have sponsored my palliative floor shuffles to the tune of 345K.
My heart. It is fluttering with excitement & joy. Minority & historically marginalized students are the winners here. ♥️
Here's my personal Shuffle page where you can make a donation.
I pledge to walk the length of the palliative care ward every day for as long as I can. What a goal! I can do it with your help.
No $ amount is too small. All RT's appreciated!
Today's joy, hope and positivity prayer is for Concordia neuroscientist Dr. Nadia Chaudhri
@DrNadiaChaudhri
Dear Nadia, I hope this traditional dance and Dhol drum fills your heart and soul with joy. Those who don't know the context, check this article:
Here's my personal Shuffle page where you can make a donation.
I pledge to walk the length of the palliative care ward every day for as long as I can. What a goal! I can do it with your help.
No $ amount is too small. All RT's appreciated!
Dearest receptors on my tongue. I promise that soon you will eat chicken tikka, nihari, achar ghost, biryani, kabab rolls, aloo masalah, palak paneer, ekori & paratha, curry pakoras, dahi papadi chaat & mango lassi. With a big tub of yogurt on hand for new friends ♥️
Oh Canada 🇨🇦 🇨🇦🇨🇦 It’s Election Day!! What a privilege to be able to chose ours leaders.
They hospital is looking into a way I could cast my ballot. Fingers crossed that they come up with a plan 🤞🏽
Day 3!! I shuffled down the palliative care floor in my fave dress! I’m going home for a few hours to sit in my garden & snuggle my Sun & Moon.
Thank you so much for your generous donations that make me MOVE! I got this 💪🏼♥️
Here's my personal Shuffle page where you can make a donation.
I pledge to walk the length of the palliative care ward every day for as long as I can. What a goal! I can do it with your help.
No $ amount is too small. All RT's appreciated!
This morning’s FaceTime session with my Sun. He’s coming to see me this afternoon. We’re going to watch a nature movie & eat ice cream. I can’t wait ♥️
Tonight my son said that when I die he wants to be in the same box as me. I walked through the open door & told him I wanted to be cremated so that my ashes could nourish fungi & plants in certain sacred places. We talked about heaven & ancestors. Then we cuddled & he slept ♥️
I spent my morning at home with this little man. He wanted my awesome brain t-shirt & I got to give him a gorgeous, handmade bumblebee.
Many thanks to Izabella for getting this special gift ready in 3 days!
Today I worked on a manuscript revision to support my graduate student
@mr_lecocq
. She’s already done a stellar job, but I wanted to be part of the process. It felt incredible to be immersed in science all morning. And now I’m going to sleep for the rest of the day 😂
Day 6 of my Shuffle down the palliative care ward. Clowning around in my fave colour.
Thrilled & overjoyed by your generosity! Thank you so much for sponsoring me & turning the Nadia Chaudhri Wingspan Award into a reality.
You are all beautiful, wonderful people ♥️
Here's my personal Shuffle page where you can make a donation.
I pledge to walk the length of the palliative care ward every day for as long as I can. What a goal! I can do it with your help.
No $ amount is too small. All RT's appreciated!
And it’s Day 9 of my Shuffle down the palliative care floor. My Sun shuffled with me in cutie skunk ears!
Raising funds for The Nadia Chaudhri Wingspan Award! This fundraiser has been a wild success thanks to your immense generosity ♥️
Here's my personal Shuffle page where you can make a donation.
I pledge to walk the length of the palliative care ward every day for as long as I can. What a goal! I can do it with your help.
No $ amount is too small. All RT's appreciated!
A terminal cancer diagnosis has changed the arc of my career.
I'm winding down the lab, but VERY excited to launch a fundraising campaign to raise money for young scholars to participate in the Research Society on Alcoholism Annual Meeting.
Home from the hospital & my darling Nigerian father-in-law brought me a steaming hot cup of chai. I taught dad how to make chai 10 years ago & his chai is on point.
Struggling to keep my little flame burning. I’m back in the ER with bowel obstruction symptoms. Parked on a stretcher in the hallway for 7 hrs waiting for a room. I don’t know how many more rounds of this I can do.
Astounded that I have 34K followers. Welcome everyone 😊 I tweet about my life with terminal
#OvarianCancer
,
#Neuroscience
& generally about change in science & academia that has been a long time coming.
Happy to see you here ♥️♥️♥️
Woo hoo! Day 8 of my Shuffle down the palliative care floor. Feeling strong on my Mama’s arm, showing off my Pakistani dupatta.
Your donations bring floods of tears to my eyes each day. Thank you for supporting the Nadia Chaudhri Wingspan Award ♥️
Here's my personal Shuffle page where you can make a donation.
I pledge to walk the length of the palliative care ward every day for as long as I can. What a goal! I can do it with your help.
No $ amount is too small. All RT's appreciated!
I cooked dinner for my family tonight. Duck breast with orange sauce, roasted sweet potatoes & portobello mushrooms. I couldn’t eat a bite myself & the effort knocked me flat. But it felt so good to make my loved ones a meal.
It’s Day 10 of my Shuffle down the palliative care floor. Wearing a beautiful rose print scarf from a friend.
Your donations to the Nadia Chaudhri Wingspan Award are nothing short of miraculous. ♥️
Here's my personal Shuffle page where you can make a donation.
I pledge to walk the length of the palliative care ward every day for as long as I can. What a goal! I can do it with your help.
No $ amount is too small. All RT's appreciated!
Day 5 of my shuffle walk! Check out this cute kitty.
I’ll admit it’s getting a bit difficult. I’ve been on IV fluid for 8 days & my legs are jelly.
But I’ll keep going for the sake of the Nadia Chaudhri Wingspan Award.
Thank you so much for your generous donations ♥️♥️♥️
Here's my personal Shuffle page where you can make a donation.
I pledge to walk the length of the palliative care ward every day for as long as I can. What a goal! I can do it with your help.
No $ amount is too small. All RT's appreciated!
As an
@FandMCollege
undergrad I rang this giant bell at 8:30 AM to signal the start of class.
I’d enter the crumbling attic of the AD building through a ceiling trap door. Then I’d yank a splintering rope to swing the bell.
A crazy tradition! I did it for 4 years
They’re here! My wonderful Wingspan Team! I waved wildly from the window.
They give me wings! YOU give me wings!! Thanks to your generosity we have raised 350K for the Nadia Chaudhri Wingspan Award!
This $ will be endowed to create graduate fellowships in perpetuity.
Team Nadia Chaudhri Wingspan Award accelerated their shuffle date to today!
This awesome group is walking from
@Concordia
to the hospital!
Wearing saffron!
Can’t wait to wave at them from my window ♥️💪🏼
I have incredible colleagues
@psyc_concordia
who prepared & submitted my dossier.
Thank you
@FASConcordia
for approving it. Thank you to my letters writers!
Thank you for making my academic dream a reality ♥️💪🏼
Tomorrow I am starting a new chemotherapy. Abraxane. I’m utterly terrified because this is a variation of Paclitaxel, which I am severely allergic to. Loading up on dexamethasone & antihistamines tonight. Shedding fear & making space for my body to receive this treatment.