Clusterheads Profile Banner
ClusterMeetingPlace Profile
ClusterMeetingPlace

@Clusterheads

Followers
2K
Following
3K
Media
54
Statuses
10K

A place for fellow Cluster Headache sufferers worldwide, to meet other sufferers & supporters. Don't suffer in silence.

Joined December 2012
Don't wanna be here? Send us removal request.
@Clusterheads
ClusterMeetingPlace
8 years
#clusterheadache ? You're not alone. Over 2000 sufferers & supporters share their tips, frustrations & pain through @Clusterheads
1
10
25
@Colinthecrypto1
Colin the Crypto Ocelot
1 year
@Dannyboy1lcfc @WifeyAlpha I don’t know enough about the Botox injections tbh. There’s some great resources on Twitter like @Clusterheads @Cluster_buster which generally have the most up to date treatment and management. Well worth your time 🤝
0
1
2
@OUCH_UK
OUCH (UK)
2 years
Cluster Headache Patients! Please take a few minutes to complete this survey: https://t.co/VRaqFz2JXp
docs.google.com
0
3
0
@OUCH_UK
OUCH (UK)
2 years
5
22
42
@OUCH_UK
OUCH (UK)
2 years
Many thanks to Karen Devlin Austin for permission to share this video of her cluster headache attack to spread awareness of the suffering CH brings. Thankfully, since this video was taken, Karen got help and now has oxygen and effective treatment. #ouchuk.org #clusterheadache
6
9
32
@AidanMeehan11
Aidan Meehan
2 years
@Clusterheads Hi all, what are peoples experience of the Gammacore device? Does it completely abort an attack or just give some level of relief?
1
1
0
@AidanMeehan11
Aidan Meehan
3 years
@Mickeypomerr @Clusterheads Sumatriptan injections worked really well for me, but not available in Ireland. Zomig fast melts (dissolve on tongue) are not as good but do help a lot.
0
1
1
@OUCH_UK
OUCH (UK)
3 years
0
9
13
@OUCH_UK
OUCH (UK)
3 years
0
22
27
@OUCH_UK
OUCH (UK)
3 years
gammaCore users needed to help in research project https://t.co/btIDKqx6LB
1
2
2
@hazza_chaz
hayley
3 years
Does anyone have experience with cluster headache? Not for me, for my mum. It’s been four days now and it’s still happening with her eye drooping.
17
1
12
@Clusterheads
ClusterMeetingPlace
3 years
Wishing you all a pain free Christmas. #clusterheadache
2
6
25
@Clusterheads
ClusterMeetingPlace
3 years
0
2
5
@RoyalFamily
The Royal Family
3 years
The Queen died peacefully at Balmoral this afternoon. The King and The Queen Consort will remain at Balmoral this evening and will return to London tomorrow.
77K
606K
2M
@Clusterheads
ClusterMeetingPlace
4 years
0
0
0
@Clusterheads
ClusterMeetingPlace
4 years
0
0
1
@DwightS61541541
Dwight Schrute
4 years
@Clusterheads Has anyone tried emgality?
1
1
0
@Mickeypomerr
Mickey
4 years
@Clusterheads What has everyone found effective for attacks?
5
1
2
@DaleFisher
Dale Fisher
4 years
@Clusterheads Has anyone tried the gammacore device?
4
3
5
@GlastoFestFeed
Glasto Fest Feed
6 years
Wigstonbury: A tale of one family’s #Glastonbury-inspired home festival... https://t.co/o6mls7Cha1 - - - ✍️: Guest post by @gunnwoom #Glasto #StayHome
glastofestfeed.com
My Gla-stay at home-bury family festival
2
3
9