CVSA UK Profile
CVSA UK

@CVSAUK

Followers
548
Following
193
Media
38
Statuses
995

Official account for CVSA UK, a charity raising awareness and supporting sufferers of Cyclical Vomiting Syndrome. Registered Charity 1045723.

United Kingdom
Joined August 2013
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@Dolphin_Runner
Dolphin.Runner
2 years
Am helping a good friend promote this event. If you're in the Midlands and want to find out more about Cyclical Vomiting Syndrome, now's your chance. https://t.co/lBjOcWhUGd @CVSAUK
@CPDmatch
CPDmatch
2 years
I had absolutely no clue about Cyclical Vomiting Syndrome until I witnessed the condition myself. Was therefore keen to get this conference listed on https://t.co/AidtULIJue and help educate in this truly debilitating condition. https://t.co/s0MeO68yev @CVSAUK @BritSocGastro
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@CVSAUK
CVSA UK
2 years
Big thanks to @MbroCouncil, who will be lighting up civil buildings in blue for CVS awareness day on March 5th!
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@CVSAUK
CVSA UK
2 years
Our annual family day will take place this Saturday (11th Nov) at Birmingham Children’s Hospital; it is free to attend. Please visit our website for more details!
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@JPGNonline
JPGN
2 years
Arbizu provides commentary about how better understanding of the natural history of #cyclicvomitingsyndrome may allow for earlier detection of distinct phenotypes. https://t.co/oMYKacyGtH Original article: https://t.co/p0ILWEBdVy
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@JPGNonline
JPGN
2 years
Using percutaneous electrical nerve field stimulation to treat drug-resistant cyclic vomiting syndrome: - Targets vagal pathways via the external auricle - Improves frequency, duration, and disability of episodes @‌KatjaKovacic2 #infographic https://t.co/wFOYg45ydH
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@FrontNeurol
Frontiers - Neurology
3 years
New Research: Whole exome/genome sequencing in cyclic vomiting syndrome reveals multiple candidate genes, suggesting a model of elevated intracellular cations and mitochondrial dysfunction: Objective To utilize whole exome or genome… #Neurology
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@CVSAUK
CVSA UK
3 years
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@CVSAUK
CVSA UK
3 years
A productive day at #BSPGHAN2023!
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@cvsaonline
CVSA U.S.A.
3 years
We'd love to see pictures from International CVS Awareness Day! If you took pictures at locations that lit up, or did something unique to spread awareness, please consider sharing them with us by sending them to the office at cvsa@cvsaonline.org.
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@CVSAUK
CVSA UK
3 years
We’re at #BSPGHAN2023 this week - if you’re an attendee, come and visit our stall!
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@cvsaonline
CVSA U.S.A.
3 years
REMINDER: Niagara Falls will be lighting up Blue on March 5th. With support from the Niagara Falls Illumination Board, the Falls will be illuminated Blue at 10:00 p.m for a 15 minute duration. #LightUpCVSAwareness You can watch it light up live here: https://t.co/ULL9the6Vw.
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@cvsa_nordic
CVSA Nordic
3 years
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@CVSAUK
CVSA UK
3 years
Some views from Middlesbrough and Clacton Pier, where buildings are lit up blue for international awareness day!
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@GilbertYourTown
Gilbert, Arizona
3 years
The Gilbert Water Tower will be lit blue tonight in recognition of International Cyclic Vomiting Syndrome Awareness Day. 💙 This lighting request was submitted by the Cyclic Vomiting Syndrome Association (@cvsaonline). Learn more ➡️ https://t.co/PCxBqJfSsI #LightUpGilbert
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@parcolympique
Parc olympique
3 years
C'est la journée internationale de sensibilisation au syndrome des vomissements cycliques. La Tour brillera donc de bleu ce soir pour soutenir la cause. Organisme : Association du syndrome des vomissements cycliques / @cvsaonline - https://t.co/660SQAT5lA (Anglais seulement)
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@cvsaonline
CVSA U.S.A.
3 years
Stories of Hope and Helping-What we want others to Know https://t.co/FuK0lm6zLO via @YouTube
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@cvsa_nordic
CVSA Nordic
3 years
March 5th is Cyclic Vomiting Syndrome awareness day💙 We at CVSA Nordic would love if you would give us a follow on social media, and concider a donation to our cause at https://t.co/7oQetT2jDb Hope starts here. 💙💙💙
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@cvsaonline
CVSA U.S.A.
3 years
March 5th is International CVS Awareness day! Find more information and locations lighting up here: https://t.co/uZHR2blqCc
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