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Complex Disorders Alliance Profile
Complex Disorders Alliance

@CODA_research

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The Complex Disorders Alliance is an innovative, patient-founded, patient-focused, nonprofit dedicated to accelerating research for complex conditions.

Stamford, CT
Joined April 2025
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@CODA_research
Complex Disorders Alliance
20 hours
Patient, Author, and Postcast Host, Rylin Rossano, shares her support: because patients need answers now, not later. We’re stronger together. When we share our stories, we shine a light on invisible illnesses and push research forward for answers we all deserve.
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@CODA_research
Complex Disorders Alliance
2 days
CODA is proud to partner with other leading patient organizations in signing this letter to RECOVERY TLC leadership: https://t.co/RgKcyqaK8U #MECFS
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@CODA_research
Complex Disorders Alliance
3 days
Meet Kaelee, a resilient patient who can’t wait for answers. She knows research is the key to better treatments and brighter futures for millions with complex disorders. Together, we can turn hope into progress. Support research today: https://t.co/vYlvgqMFXv
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@CODA_research
Complex Disorders Alliance
5 days
Meet Sam! A remarkable patient on a mission to hike 50 miles for the CODA 50 Challenge! Sam knows firsthand how critical research is for proper treatment and care, and that’s why every mile matters. Support Sam and research for patients today! https://t.co/WtkBr7JvM7
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@CODA_research
Complex Disorders Alliance
6 days
We’re partnering with leading scientists in the neuroimmune space to bring patients the answers they need now. #patientscantwait Check it out here https://t.co/pGgQTp1NZh
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@RobWust
Rob Wüst
9 days
We are currently at a Long Covid Hackathon with Dutch NL scientists to get new ideas for collaborative projects. 🤓🙃 We are wondering if bone marrow transplantations have been performed in a patient that also has long covid? What were the outcomes related to LC?
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@CODA_research
Complex Disorders Alliance
7 days
We're proud to serve as a sponsor of the @CellSymposia Neuro-immune Axis: Charting the Periphery Conference in partnership with the Allen Discovery Center for Neuroimmune Interactions & #neuroimmune innovator @itchdoctor. @amyrochlin @AllenInstitute https://t.co/1wPYrJZF3R
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@CODA_research
Complex Disorders Alliance
10 days
🚨The CODA 50 Challenge is LIVE!🚨 Run, walk, cycle or move 50 miles your way to fuel research for complex disorders. The first FIVE people to sign up for the CODA 50 Challenge will receive an exclusive CODA Thank You Gift! Don’t miss out! Join now at https://t.co/Jlu2gIqmz0
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@CODA_research
Complex Disorders Alliance
11 days
Molly is joining the CODA 50 Challenge for her sister, Grace, who can't wait. Join Molly in the CODA 50 Challenge to find solutions for patients today. Visit https://t.co/Ab3FD45rPb to join today.
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@CODA_research
Complex Disorders Alliance
14 days
As Gastroparesis Awareness Month comes to a close, we honor Lucy and the voice she brings to this community. Her story is a reminder of why we can't wait. Patients need answers, and research is the key. Together, we can push for progress.
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@CODA_research
Complex Disorders Alliance
15 days
Craniocervical dysfunction is common in complex disorders—yet rarely studied often under-treated. The CODA CCI Initiative is changing that. Your support today helps us move quickly and bring answers to patients. Help fund CODA CCI today: https://t.co/Przu5VS5YV
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@CODA_research
Complex Disorders Alliance
16 days
We’re thrilled to launch the CODA 50 Challenge—a run/walk/move-your-way fundraiser with a goal of raising $50,000 to power critical research for complex disorders The first FIVE people to sign up will receive a CODA Thank You Gift! Get started here: https://t.co/eCAhxZhyXF
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@CODA_research
Complex Disorders Alliance
17 days
Every day, CEO Amy Rochlin hears the same truth from patients: they can’t wait years for answers. CODA is driving research built on patient reality. Urgency is our mission. https://t.co/7SrvpM6dEx
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@CODA_research
Complex Disorders Alliance
24 days
Heather lives with Gastroparesis and CRPS. Her journey reminds us how deeply complex disorders intersect and why research that sees the bigger picture is urgently needed. Every patient story makes it clearer: these conditions are connected, and we can’t wait for answers.
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@Dysautonomia
Dysautonomia Intl.
1 month
Good news for dysautonomia patients w/ Sjogren's! Ianalumab is the 1st immunotherapy to have successful Phase 3 trials in Sjogren's, which means it has a real chance to obtain FDA approval. Sjogren's is the 2nd most common cause of autonomic neuropathy. https://t.co/qKrHC8FYNb
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novartis.com
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@CODA_research
Complex Disorders Alliance
1 month
Cornell’s new study uses cell-free RNA to detect molecular differences in ME/CFS: immune dysregulation, ECM changes, T cell exhaustion. Our take: Early-stage model (~77% accuracy) is encouraging for future diagnostics. Why this hypothesis matters: Signals may reflect prolonged
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@CODA_research
Complex Disorders Alliance
1 month
This Gastroparesis Awareness Month we honor Caitlyn, a resilient patient who has used her battle to empower the patient community. CODA is fueling research we desperately need to find a cure, because no one should have to suffer in silence.
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@dr_todd
Todd Maderis, ND
1 month
While you #sleep, your brain’s glymphatic system flushes out toxins, metabolic waste, and amyloid-β and tau, built up during the day. Glymphatic flow is highest during deep NREM sleep, when brain cells shrink up to 60%to create more space for fluid exchange. Hydration, regular
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@davidtuller1
davidtuller
1 month
Wow, this interview with Professor Chris Ponting about the DecodeME findings has already had more than 1.5K views. He explains how the team found eight "genetic signals" related to the nervous system and immune function:
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@DrMaureenHanson
Maureen Hanson
1 month
The latest paper from the Cornell ME/CFS Center is in PNAS today. RNA released into the blood differs in cases vs sedentary controls, who can be distinguished at 77% accuracy. Biological network analysis shows dysfunction of the immune system in ME/CFS, as in other assays.
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