Complex Disorders Alliance
@CODA_research
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The Complex Disorders Alliance is an innovative, patient-founded, patient-focused, nonprofit dedicated to accelerating research for complex conditions.
Stamford, CT
Joined April 2025
Millions of complex disorder patients are still waiting for answers. Together, we can change that! Support CODA’s critical research and help bridge the gap between science and patient care. #PatientsCantWait Help patients today: https://t.co/jdDksoGkmx
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We’re celebrating our first CODA 50 finisher — Sam! 🎉 Sam turned his journey into action, hiking 50 miles and raising over $800 to fuel research and hope for those with complex conditions. Every step showed strength, courage, and connection. We’re so proud of you, Sam! 💪
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Did you know you can support CODA when you shop online? Through iGive, every time you shop at over 2,000 stores, up to 26% of your purchase will go directly to CODA! Your everyday purchases can help fund critical research and support for the millions living with complex chronic
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This is powerful. Thank you @POTSActivist.
Having a chronic illness is hard. Even harder? Having to miss important events. I always want to show up. Please be patient on the days I can’t. #POTS #dysautonomia #motivationalmonday #POTSawareness #invisible
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Thank you Christina!
3. Fundraise. Start your own fundraising campaign today. It may be small, but it will make a difference. Or donate directly to trusted orgs, for example: @weandmecfs
@MECFSResearch @polybioRF @CODA_research @OpenMedF 6/
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Understanding why CRPS happens is essential to developing better treatments and improving outcomes. This CRPS Awareness Month, help us push for the breakthroughs patients desperately need. Patients Can't Wait. Neither Will We. https://t.co/vYlvgqNdN3
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What if your holiday shopping could fund research and hope for people living with complex chronic disorders? This giving season, it can.👇 Join https://t.co/3oLhjl5YZR and your everyday purchases can turn into donations that help fund CODA’s mission. 26% of your purchase is
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🎓 Join CODA for this amazing IACC Advocacy event on Oct 31 for the IACC Case Competition at @MichiganRoss! Patients, advocates, & experts will come together to tackle challenges like: - Long Covid - ME/CFS - POTS - & more 📍 In-person & virtual options FREE to attend —
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One thing that is coming through in the science: these complex conditions converge in the pathways and the #neuroimmune crosstalk. One diagnosis isn’t the end; it’s the beginning. We need to connect the dots faster for patients. @CODA_research
#patientscantwait
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Nelly’s story reminds us that patients keep holding on to hope. Science must move faster to meet them there. 💙 Help push research forward for patients like Nelly. Donate today to fund hope and accelerate progress. https://t.co/dx1KFXboc5
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Meet our top 3 CODA Challengers who are raising critical funds for research! Want to make an impact and join the fun? Join the CODA 50 Challenge to help fund hope for patients with complex disorders. Every step, mile, or donation counts! 👉 Sign up today https://t.co/GNRSqielcq
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@amyrochlin @CODA_research I have POTS, and it took me three years and all my savings to get doctors to believe me after being labeled with anxiety or they diagnosed me with mental illness. Around 30 doctors treated me in ways that stripped away my dignity and humanity.
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"the numbers are enormous, rivaling conditions like ADHD and autism as one of the most common chronic diseases in American youth today. And for the children and teens I’ve spoken with, long Covid has done serious physical and emotional damage." https://t.co/bBYlUPRvv5
rollingstone.com
Long Covid is affecting hundreds of thousands of kids in America, and many doctors and schools refuse to recognize their illness.
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CODA CEO, @amyrochlin, is speaking at @NorthwellHealth’s annual #TCF25 on October 23rd! Join Amy and top thought leaders for in-depth discussions focused on the transformative frontier of bioelectronic medicine. Learn more and register to join virtually: https://t.co/uIdhYnVsO9
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Meet Grace- living with Dysautonomia, EDS, MCAS & New Persistent daily Headache. Every appointment ends the same: "There's not enough research on your conditions.” CODA is changing that. Donate this Dysautonomia Awareness Month to fund hope for patients like Grace.💙
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Meet Kate, a physical therapy and run coach living with hypermobile Ehlers-Danlos Syndrome, POTS, and chronic migraine, who is taking on the CODA 50 Challenge to help find answers for her community. Support Kate Today! https://t.co/YcWHL3TGKn
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Join the Miles for Migraine Health Empowerment Revolution in person or online on November 8th at 9AM EST to gain knowledge, tools, and support to better understand & manage migraine alongside other chronic conditions. To learn more or register: https://t.co/1BBCFUgrCk
milesformigraine.org
Understand and manage migraine with knowledge, tools, and support from this online and in-person event on September 20, 2025 in Aurora, CO.
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CODA is proud to partner with Miles for Migraine to advance research and the transform lives of patients living with chronic conditions. Together, we’re uniting experts, advocates, and patients to drive progress and deliver real solutions for those who can’t wait for answers.
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Too many with Dysautonomia have been told their symptoms are “unexplained.” CODA’s CCI Initiative is challenging that narrative—researching how craniocervical instability impacts the brain, body & autonomic systems to bring solutions to patients today. Support research today💙
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