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CMT United Kingdom Profile
CMT United Kingdom

@CMTUnitedKdom

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CMTUK - the UK's charity supporting people living with Charcot-Marie-Tooth disease - the most common rare neuropathy.

Christchurch, England
Joined March 2010
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@CMTUnitedKdom
CMT United Kingdom
2 days
Did you know CMTUK have a helpline? 📞 Whether you’re newly diagnosed or have lived with CMT for years, we’re here to listen and support you. Call 0300 323 6316 (Mon–Fri, 9am–2pm) #CMTUK #CMTawarenessmonth #CharcotMarieToothDisease #Disability #Helpline
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@CMTUnitedKdom
CMT United Kingdom
3 days
To you, it’s just a lift To someone with Charcot-Marie-Tooth disease, it’s a lifeline CMT can make everyday tasks like walking or climbing stairs difficult - even when the symptoms aren’t visible Learn more: https://t.co/dvMHD7g4Hk #cmtuk #charcotmarietooth #cmtawarenessmonth
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@CMTUnitedKdom
CMT United Kingdom
6 days
Growing up with CMT can be a lot, but it’s easier with people who get it! Our CMT Kids & Big Kids groups are all about real friends, real laughs & real support Join us for accessible weekends, day trips & online hangouts https://t.co/dvMHD7g4Hk #CMTUK #CMTKids
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@CMTUnitedKdom
CMT United Kingdom
7 days
“Being involved with CMTUK has brought nothing but positives for my mental health and wellbeing” CMT might not always be visible, but its impact is! This Awareness Month, we’re shining a light on the unseen challenges and the strength found in support #charcotmarietooth
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@CMTUnitedKdom
CMT United Kingdom
10 days
Did you know 1 in 2,500 people live with Charcot-Marie-Tooth disease (CMT)? It’s one of the most common inherited neurological conditions, but often invisible! This #CMTAwarenessMonth we’re showing it’s always #MoreThanYouCanSee #CMTUK #charcotmarietooth #disabilityawareness
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@CMTUnitedKdom
CMT United Kingdom
11 days
October is a busy month at CMTUK! From awareness activities to support groups, there are so many chances to connect, learn & raise awareness of CMT Here’s what’s coming up ⬇️ Together, we can make sure no one faces CMT alone 💪 #CMTUK #CMTAwarenessMonth #charcotmarietooth
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@CMTUnitedKdom
CMT United Kingdom
13 days
Did you know there are 120+ types of CMT? No two people experience it the same! Some symptoms are visible, many are invisible - but all are life-changing! This #CMTAwarenessMonth, remember there’s often #MoreThanYouCanSee #cmtuk #charcotmarietooth
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@CMTUnitedKdom
CMT United Kingdom
14 days
We’ve had a makeover! 🎉 CMTUK’s new website is live - fresher, easier to use & built with our community in mind. Explore support, research & resources today 👉 https://t.co/LfANjuLOWR #CMTUK #CMTawarenessmonth #MoreThanYouCanSee #CharcotMarieTooth
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@CMTUnitedKdom
CMT United Kingdom
15 days
October marks CMT Awareness Month! This year’s theme is #MoreThanYouCanSee – because living with CMT means facing invisible challenges every day Join us in sharing stories, raising awareness, and showing the strength of the CMT community #CMTUK #DisabilityAwareness
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@CMTUnitedKdom
CMT United Kingdom
17 days
October is CMT Awareness Month in the UK! We’re going to be raising awareness of Charcot-Marie-Tooth disease and the work that CMTUK is doing 🙌 Support, share, and join the conversation this October! #CMTUK #CMTawarenessmonth #morethanyoucansee
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@CMTUnitedKdom
CMT United Kingdom
8 months
📷 CMTUK Conference 2025 – FULLY BOOKED! 📷 Wow! We are officially FULLY BOOKED for this year’s CMTUK Annual Conference on 10th May in Stratford-upon-Avon! 📷 Check out how we did last year! https://t.co/LtLXrjwEH7
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@CMTUnitedKdom
CMT United Kingdom
8 months
💜🌍 It’s #RareDiseaseDay2025 ! 🌍💜 Tonight, let’s shine a light for the 300 million people living with a rare disease, including Charcot-Marie-Tooth (CMT). Join the #LightUpForRare movement @ 7 PM 📸 Share a photo of your lights and tag #LightUpForRare to raise awareness!
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@CMTUnitedKdom
CMT United Kingdom
8 months
👏Congratulations to Professor Mary Reilly – professor of clinical neurology and consultant neurologist – on receiving an honorary MBE for services to Medicine. We are proud to have her as our Patron as the UK’s leading expert in CMT 👏 💙 https://t.co/rjJgdJs8dO
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uclh.nhs.uk
Congratulations to Professor Mary Reilly – professor of clinical neurology and consultant neurologist – on receiving an honorary MBE for services to medicine.
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@CMTUnitedKdom
CMT United Kingdom
8 months
CMT is a hereditary neurological condition that affects movement and sensation, yet many people have never heard of it. 💜 How can you help? ✔ Share this post to educate others about CMT and rare diseases. ✔ Join us at the CMTUK Conference 2025—bringing t💜 #RareDiseaseDay
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@CMTUnitedKdom
CMT United Kingdom
9 months
[CORRECTED] CMTUK 2025 Conference in Stratford-upon-Avon đź’¬ Exploring the future đź’¬ -
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@CMTUnitedKdom
CMT United Kingdom
9 months
CMTUK Conference 2025 đź’¬ Exploring the future đź’¬ -
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@CMTUnitedKdom
CMT United Kingdom
9 months
Mark your calendars! CMTUK Annual Conference 2025 is happening on Saturday, 10th May 2025, in Stafford. Take advantage of our early bird offer and secure your spot for just £39! Don’t wait too long—reserve your place today and join us in exploring the future of CMT!
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@CMTUnitedKdom
CMT United Kingdom
9 months
📷 Help us to raise the issues that matter most to the neuro community in Parliament. 📷 Ask your MP to attend The Neurological Alliance’s upcoming Parliamentary Neuro Reception. 📷 Take the easy e-action to write to your MP now. 📷 https://t.co/7zm9JMllLK @NeuroAlliance
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@CMTUnitedKdom
CMT United Kingdom
9 months
Are you planning to run or walk this year? 💝 Turn your energy into something meaningful📝 Register with JustRunning or UltraChallenge and choose CMTUK as your charity. 👉JustRunning: https://t.co/XcQtO5qDu5 👉UltraChallenge: https://t.co/tVN1VtlorD Thank You!💝
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@CMTUnitedKdom
CMT United Kingdom
1 year
📷 Have you recently discovered that you or a family member has Charcot-Marie-Tooth (CMT) disease? Join the First Episode of the CMT Awareness Webinar Series! Saturday, 2nd November 📷 Don't miss out—register now! Registration link: https://t.co/N2POCf08pG
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