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CLOVES Syndrome Community Profile
CLOVES Syndrome Community

@CLOVESSyndrome

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Support, Research & Education to improve the quality of life for ppl with CLOVES. Rare, progressive disease with a + PIK3ca mutation. Tweets by @kristenpdavis

Kennebunk, ME
Joined August 2011
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@mrcppu
MRC PPU
Dundee, UK
@ivbm2022
IVBM2022
@EveryCure
Every Cure
Philadelphia, PA
@ClintonGlobal
Clinton Global Initiative
New York, NY
@FASEBorg
FASEB
Rockville, MD
@CureCMD
Cure CMD
Global
@CureFA_org
FA Research Alliance
Downingtown, PA
@julievraskin
Julie Raskin
Glen Ridge, NJ
@laforainitiativ
Lafora Initiative
Around the world
@KyleABryant
Kyle Bryant
Pennsylvania
@_open_science_
Open Science
@OpenSciTalk
OpenSci Talk
@KellyBarry_
Kelly Barry, MD, MS
Boston, MA
@AshleyNg23
Ashley Ng, MD
@genedocrare
Marshall Summar, M.D.
Washington, DC
@ScienceMagazine
Science Magazine
Washington, DC & Cambridge, UK
@Mikekel67699536
Mike kelly
Cleveland, OH
@VIJOICE_US
VIJOICE® (alpelisib) tablets
@PotenteLab
PotenteLab
@Leducq_ReVAMP
Leducq Vascular Malformations Network