CFNA
@CFNA16
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The Cystic Fibrosis Nursing Association. A group of specialist nurses who specialise in Cystic Fibrosis from every region in the UK. Our opinions are our own
Joined June 2020
Today the CFNA said goodbye to one of the greats. Aileen Mallinson has officially retired as CF Nurse Specialist at the Royal Hospital for sick children, Edinburgh. Thank you Aileen for all you have done over the years for the CFNA. We will all miss you! Enjoy the peace 🥳🥳🥳.
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This is such exciting news!!.
The licensing of #Kaftrio today marks a step change in the treatment of #cysticfibrosis. Read our full news story here:
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Was a pleasure being able to take part in this this evening! Sorry for the technical delay!.
20 minute reminder for our CF Live event on 'Returning and settling back into education'. Our expert panel will help to answer some of the questions you may have and discuss what support is available. Register now: #cysticfibrosis
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RT @TeessideCF: Lots of anxiety about returning to school for many so this hopefully will reassure our families or give them the opportunit….
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Morning everyone. Last chance saloon for any CF nurses both adult and paediatric who would like to sit on the zoom panel supported by the CF trust to discuss the starting back of schools across the UK. If anyone is interested please can you message or retweet 👍👍.
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Good morning!! Are there any Scottish paediatric nurses who would like to volunteer for the zoom panel meeting regarding the starting back of schools in the UK. This is a panel supported by the CF trust. Please can you get in touch with me if so. Thank you 😎.
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If you are interested please contact me for further details. Please retweet away and pass onto anyone who may be interested. Thank you 😎.
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**Attention ALL CF nurses**.Would anyone be interested in taking part in a zoom panel meeting on 19th August facilitated by the CF trust. This is for parents of children with CF/adults with CF who have children and/or teachers regarding the reopening of schools.
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RT @cf_newcastle: If you have CF please consider completing this survey for the @cftrust: Exploring your clinical trial opportunities (20….
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This is truly wonderful news!!.
"This will truly save lives", our Chief Executive David Ramsden on today's news for the #cysticfibrosis community.
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RT @EMA_News: ‼️ EMA recommended granting a marketing authorisation in the 🇪🇺 for Kaftrio, the first triple combination therapy for the tre….
ema.europa.eu
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RT @cftrust: Update for those shielding in England - @MattHancock has announced a pause to shielding from 1st August. From 6th July shieldi….
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RT @cf_newcastle: Plans to ease shielding for clinically vulnerable from the 6th July-
gov.uk
Millions of people shielding from coronavirus (COVID-19) will be advised they can spend more time outside their homes from Monday 6 July, the Health and Social Care Secretary has announced.
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RT @cftrust: As #CFWeek shines a spotlight on the challenges people with #cysticfibrosis face in balancing their condition with everyday li….
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Don’t forget!! TGI. wear yellow friYAY!.
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RT @cf_newcastle: At the start of @cftrust #CFWeek we want to say a big hello 👋🏻 to the #CFCommunity . We may be spending time apart right….
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