Better Conversations with Parkinson's
@BCDParkinsons
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Conversation training for people living with Parkinson’s and their communication partners | @steven_bloch @pclaySLT @BCAphasia @lynndangerfiel4 @solentSLTEast
University College London
Joined September 2021
RT @UCLBrainScience: Parkinson's is the fastest-growing neurodegenerative disease in the world and yet many of us know very little about it….
telegraph.co.uk
It’s the fastest-growing neurodegenerative disease in the world – and suffered by the late Ozzy Osbourne - yet tremors are not its only sign
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10 years of impact 👏👏 . and keep an eye out for our very own @pclaySLT.
🥳This year we're celebrating 10 years of:. 🔟 bringing together health and care professionals.🔟 providing resources and education.🔟 improving services for people with Parkinson's and their families. And we're not stopping. Watch our new film at
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Some wonderful examples of what people aim to put into practice after @pclaySLT's talk at the @ParkinsonsEN #SLT CEN yesterday
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Here's a snapshot of our steering group meeting minutes - therapy is at the ❤️of what we've been working on.
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It certainly takes a village to raise a complex intervention… a humungous thank you to our #PPI groups who have put so much time, effort and expertise into our Better Conversations with #Parkinsons research. It has been an enormous pleasure working with you all.
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RT @nameeka_shahid: Share your story and make a difference!🗣️.Are you from Pakistan?.Living in the UK?.#dysarthria .Diagnosed with dysarthr….
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RT @ParkinsonsUK: "To live a healthy life, is something we all deserve, we need every type of person represented in health research” . We'r….
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Another piece of work from our co-production group, this time reflecting on the #PPI process including people living with #Parkinsons and #CommunicationDifficulties 👏: ..Offer time, choices about how to take part and make sure communication is clear.
journals.uclpress.co.uk
Effective engagement with stakeholders is key in health-care research and intervention development. There is currently a lack of evidence relating to the involvement of co-producers with Parkinson’...
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RT @BCAphasia: Next #BetterConversationsLab #SLT training is in Australia in June hosted by @volkmer_anna and @rtslt! If you're going to @I….
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A brilliant reminder of the importance of including family in #SLT therapy for people living with #Parkinsons. And that it’s complicated – “managing communication strategies” can increase burden. Tailored interventions are needed for different phases.
pubs.asha.org
Purpose: While communication changes associated with Parkinson's disease (PD) have been documented, research on the impact of these changes on fa...
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If you know / are someone with #Parkinsons who has real difficulty being understood, who is keen to take part in research in London - please get in touch with ucjulio@ucl.ac.uk.
📢Seeking speakers with moderate to severe speech problems due to Parkinson's for a study (@steven_bloch & @PattiAdank) aiming to improve dysarthric speech recognition. Join a 1 hr recording session in London & earn £10. Interested or know someone? DM or email ucjulio@ucl.ac.uk
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It’s #WorldParkinsonsDay - up to 90% of people living with #Parkinsons experience changes in communication, with huge impacts on them and their families. We are creating a #SLT intervention with @ParkinsonsUK to help people build lifelong skills for more successful conversations.
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RT @ParkinsonsEN: Today is #WorldParkinsonsDay. There isn't one journey. There isn't one 'day in the life'. We're shining a light on the da….
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RT @BCAphasia: V happy to be invited to talk at @SLTAcen event abt Better Conversations communication partner training - a taster for our *….
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RT @NHSKFH: How does the NHS Knowledge and Library Hub speed you to the evidence? Search in a single box and head straight to the point. Ch….
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RT @BCAphasia: It's here! Our first ever course on supporting the delivery of communication partner training for #SLTA & rehab assistants w….
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RT @BCAphasia: As good a time as any to share our new #BetterConversationsLab website - there's lots for everyone, #SLT #slt2b researchers.….
ucl.ac.uk
Better Conversations is a scientific approach to the study of conversation in a range of health, social care and education settings, pioneered by UCL and underpinned by the principles and methods of C
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RT @volkmer_anna: @BCconf2023 @BCAphasia @BCPPAphasia @BCDParkinsons @steven_bloch @clairefarring20 @UCLLangCog @LANCEN_SLT I can vouch for….
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