I also keep trying to not feel bad that right now, I cannot be there for loved ones and our community in the way I want. Know I shouldn't feel bad/guilty, but I do. Rewriting the script on this nonsense takes a lot of work. #Disability #ChronicIllness #ChronicLife #ChronicPain

@Aoiferocksitout I feel this with you...SO MUCH. Sending love. 💜💜💜💐💐💐

@LelenaPeacock Love an hugs to you!! 💖💖 I am struggling so much the last year+ and do not know what to do anymore.

@Aoiferocksitout 💙 Hugs sis. There are days I lean up on walls and just cry. Or rage. Being out of meds or flaring or having all the meds and it's STILL not enough...

@Tinu Thank you Tinu, and all the hugs back! 💖💖💖💖 I hear you with allllll of that. I wish all of us could get some kind of real pain management.

@Aoiferocksitout Pain sucks pretty hard...I’m conditioned to be stoic until I can’t. Gallows humor helps a lot. As does saying whatever you feel in the safest way you know how.

@KieranOBK It takes a nice while and a lot of work to uncondition yourself from that stoic nonsense. Without gallows humor, I and a lot of us just would not be here still. Thank you Kieran. ❤️❤️

@Aoiferocksitout 24/7. Ableds don't get the non ending persistent pain that you just crave one minute...one second of relief. Just to feel like your self again. You feel robbed. You feel grief of old self. My DMs are open as well. I also have #Spoonie penpals through text and mail. It helps. 💙

@PoetaChica Thank you!! 💖💖 My old life was so long ago, the thing I grieve even more than my body is my cognitive ability! Go figure, because I wish I could just leave my torso, knees and hands somewhere and go on my merry way to wherever I please.

@Aoiferocksitout I'm so sorry sweetheart >.< *offers hugs or, if preferred, good vibes* It really sucks >.<

@melindrea Thank you Marie! ❤️❤️ Right now, I straight up do not know what the hell to do about this anymore.

@Aoiferocksitout We can't give up! Some days, I feel I can't go on. Pain is physically, emotionally, mentally, and spiritually draining. We end up empty. Allow yourself time to refuel and recharge. It is frustrating to miss out on so many things, but it is so wonderful to enjoy the good times.

@Sharrison219 I feel you on all of this. ❤️

@Aoiferocksitout I know the feeling - just a moments relief from my MS would be a blessing. Sadly, its never so, and it grinds the best of us down. You're never alone though, so have a hug through the electronic ether from me.

@timboxall THank you Tim, and hugs back! ❤️ That's one thing that is great about the disability community here, no one is ever alone in anything.

@Aoiferocksitout I feel you on the struggle to remain positive. Been pretty brutal for me too lately. *hugs if wanted* Also miss you <3

@SignyTheSage I miss you too Signy!! 💖💖💖 Hugs from you are always wanted and I send you all the hugs! I'm sorry things have been brutal for you. Please DM me if you want to talk here, or on fb! ❤️❤️

@Aoiferocksitout I think most in the chronic pain community empathize and understand your pain and loss. We have all been robbed of everything over the years, but hopefully you have loved ones to support you. Next, the hardest lesson for me was letting go so others could actually do things for me

@fibro_with 1 Thank you and yes, we all understand what this is like. I've been living like this for almost 19 years now,& just when I think the pain and other symptoms couldn't possibly get any worse they do and it becomes my new baseline. Thankfully I have people who support me emotionally

@Aoiferocksitout Often feel this.ADAPT and disability organizing often make me feel better. Distract from the pain. But whoa chronic pain is a horror.

@janinebk Janine thank you for your work with ADAPT and your work for our community. I am doing whatever advocacy and activism I am able to from home, but there are still days where I can't even do that. Distraction always helps, but at this point nothing helps.