
Albinism Fellowship
@AlbinismUK
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Providing information, advice and support for people with Albinism and their families
UK & Ireland
Joined September 2009
Are 2 people with albinism together bad luck? Some people think so. @NOAHAlbinism @RNIB .
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Genetics is complicated- Dr Jay will explain that if you have albinism it is not likely all your kids will .
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What one thing I want you to know about albinism Dr Jay & Kristina #IAAD2025 #ProtectOurSkin #PreserveOurLives #AlbinismAwareness #albinism . @NOAHAlbinism @GeneticAll_UK @NystagmusUK @unisouthampton .
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Great video with young people with albinism talking honestly about what it’s like being a PWA in 2025 @LOOK_UK #iaad2025 #AlbinismDay #albinism #nystagmus #Disability .
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I am not contagious- I promise!.#albinism #Genetics #nysytagmus #ophthalmology.@GeneticAll_UK @Albinism_MythX @NOAHAlbinism @RNIB @NystagmusUK @MariyaMoosajee .
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WE ARE BACK ON X in time for International Albinism Awareness day!.Check out our latest project with Paediatric Consultant ophthalmologist Jay Self @Albinism_MythX .
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RT @NystagmusUK: If you're looking for a book that helps explain #Nystagmus to a child aged 7+ then look no further than 'Can I tell you ab….
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RT @LluisMontoliu: Next week (4-7 Nov.) we will hold the 5EDA International #Albinism meeting ONLINE, organized by #Genespoir and #Albinism….
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RT @GoalballUK: In this week's Featured Thursday we caught up with Karina Lang from Winchester Goalball Club (@WinchGoalball) who recently….
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RT @GoalballUK: Last Saturday @AlbinismUK held #AFConference2020, so we thought it would be a great time to look at Goalball UK's involveme….
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Enjoying our final session , which is for Adults with Albinism. Talking about work, managing posture when working with low vision & hobbies. #AFConference2020.
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Children & teens with #Albinism session now. They’re telling each other about their favourite hobbies & the technology they use at school.
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Mike Hughes reminds us that under case law on welfare benefits, seeing is considered a bodily function! #Albinism #SightLoss #AFConference2020.
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We’re in our PIP & DLA session of the Albinism Fellowship virtual conference. Speaker is Mike Hughes, expert in welfare & benefits for people with sight loss. #AFConference2020.
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We’re now in the schools section of our conference with QTVI Alison Blackman. Breakout sessions are nursery, primary & secondary. #AFConference2020
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Time for our AGM & parent discussion groups: new parents, returning parents & “Breaking Down Barriers” for parents of children with Albinism from #BAME community #AFConference2020.
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