AlbinismUK Profile Banner
Albinism Fellowship Profile
Albinism Fellowship

@AlbinismUK

Followers
1K
Following
198
Media
108
Statuses
1K

Providing information, advice and support for people with Albinism and their families

UK & Ireland
Joined September 2009
Don't wanna be here? Send us removal request.
@AlbinismUK
Albinism Fellowship
1 month
Are 2 people with albinism together bad luck? Some people think so. @NOAHAlbinism @RNIB .
instagram.com
0
0
0
@AlbinismUK
Albinism Fellowship
2 months
Lack of depth perception explained @Albinism_MythX .@RNIB @NystagmusUK @NOAHAlbinism .
instagram.com
0
0
1
@grok
Grok
3 days
The most fun image & video creation tool in the world is here. Try it for free in the Grok App.
0
1K
9K
@AlbinismUK
Albinism Fellowship
2 months
Kristina & Dr Jay explain what someone with albinism may see.@RNIB @NystagmusUK @NOAHAlbinism .
instagram.com
0
0
0
@AlbinismUK
Albinism Fellowship
2 months
Genetics is complicated- Dr Jay will explain that if you have albinism it is not likely all your kids will .
Tweet card summary image
instagram.com
0
1
0
@AlbinismUK
Albinism Fellowship
2 months
instagram.com
0
1
1
@AlbinismUK
Albinism Fellowship
2 months
Great video with young people with albinism talking honestly about what it’s like being a PWA in 2025 @LOOK_UK #iaad2025 #AlbinismDay #albinism #nystagmus #Disability .
0
2
3
@AlbinismUK
Albinism Fellowship
2 months
instagram.com
0
0
0
@AlbinismUK
Albinism Fellowship
2 months
WE ARE BACK ON X in time for International Albinism Awareness day!.Check out our latest project with Paediatric Consultant ophthalmologist Jay Self @Albinism_MythX .
instagram.com
0
1
4
@AlbinismUK
Albinism Fellowship
5 years
RT @NystagmusUK: If you're looking for a book that helps explain #Nystagmus to a child aged 7+ then look no further than 'Can I tell you ab….
0
11
0
@AlbinismUK
Albinism Fellowship
5 years
RT @LluisMontoliu: Next week (4-7 Nov.) we will hold the 5EDA International #Albinism meeting ONLINE, organized by #Genespoir and #Albinism….
0
8
0
@AlbinismUK
Albinism Fellowship
5 years
RT @GoalballUK: In this week's Featured Thursday we caught up with Karina Lang from Winchester Goalball Club (@WinchGoalball) who recently….
0
3
0
@AlbinismUK
Albinism Fellowship
5 years
RT @GoalballUK: Last Saturday @AlbinismUK held #AFConference2020, so we thought it would be a great time to look at Goalball UK's involveme….
0
3
0
@AlbinismUK
Albinism Fellowship
5 years
Enjoying our final session , which is for Adults with Albinism. Talking about work, managing posture when working with low vision & hobbies. #AFConference2020.
1
0
2
@AlbinismUK
Albinism Fellowship
5 years
Children & teens with #Albinism session now. They’re telling each other about their favourite hobbies & the technology they use at school.
0
0
3
@AlbinismUK
Albinism Fellowship
5 years
Mike Hughes reminds us that under case law on welfare benefits, seeing is considered a bodily function! #Albinism #SightLoss #AFConference2020.
0
0
1
@AlbinismUK
Albinism Fellowship
5 years
We’re in our PIP & DLA session of the Albinism Fellowship virtual conference. Speaker is Mike Hughes, expert in welfare & benefits for people with sight loss. #AFConference2020.
0
0
1
@AlbinismUK
Albinism Fellowship
5 years
We’re now in the schools section of our conference with QTVI Alison Blackman. Breakout sessions are nursery, primary & secondary. #AFConference2020
Tweet media one
0
0
4
@AlbinismUK
Albinism Fellowship
5 years
AGM complete & we’re into the parents sessions #AFConference2020
Tweet media one
Tweet media two
0
0
3
@AlbinismUK
Albinism Fellowship
5 years
Time for our AGM & parent discussion groups: new parents, returning parents & “Breaking Down Barriers” for parents of children with Albinism from #BAME community #AFConference2020.
0
0
2