NOAH
@NOAHAlbinism
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NOAH’s mission is to act as a conduit for accurate and authoritative information about all aspects of living with albinism and to provide a place of acceptance.
Joined July 2015
In celebration of #NationalCookieDay, we review how cookies can teach us about Hermansky-Pudlak Syndrome (HPS): normal platelets look like chocolate chip cookies and HPS platelets look like butter cookies! Learn more at: https://t.co/X8j4M4ByQi
#albinism #HPSawareness
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🎵 Oh the weather outside is frightful… But a chat can be so delightful. As long as you're in the know, Let it snow, let it snow, let it snow! ❄️ Teen PWAs - stay warm with friends and join us TOMORROW at 8 PM ET// 5 PM PT for Teen Connections. https://t.co/fS78TQNrz6
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Adult PWAs, have you been wondering how to better use AI in your day-to-day life? Join Mike Sikes & Ettore Guaia next Tuesday, 12/9 at 7pm ET // 4pm PT as they they give an introduction to AI and how they use it in daily life. Register today: https://t.co/ETRLsS8rxO
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Spiffy is starting in last place 🙈 but each time the NOAH community raises $550 he'll get a boost of energy to pass 1 board member in our Meet or Beat the Board race! Can you help Spiffy meet or beat the board's $6,000 challenge? Donate today: https://t.co/nsTkyOZBvE
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When you include NOAH in your year-end giving, your donation supports parents with albinism like Ashley in building community! Check out what Ashley has to say, and give today at: https://t.co/lJCFZgNj5v
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This Giving Tuesday, NOAH invites you to Meet or Beat the Board! Our Board of Directors is challenging the NOAH community to meet or beat their donation of $6000 this December. Can you support NOAH's important work and help us meet this goal? Give today: https://t.co/nsTkyOZBvE
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We are excited to share that singer with albinism Marleena Barber will be joining us for a special NOAH Connections session TOMORROW 12/2 at 7pm ET / 4pm PT to share her experiences making an independent record & answer your questions! Register today: https://t.co/82c3eRzN3Y
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Calling all PWAs 55+! Kick off December on the right foot by re-connecting with the NOAH community 🥳Join Cynthia Henton and friends for Aging with Albinism TOMORROW, December 2nd at 8pm ET // 5pm PT. Sign up today: https://t.co/Y8qW7gUJ1D
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There's just 1 week left to apply for NOAH’s expanded iPad & Technology Assistance Program, supported by the Parker Foundation and offered in partnership with Vispero! Learn more & apply by December 8th: https://t.co/xxVZu3rFZ9
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Doctors & med students with albinism, we’re looking forward to seeing you for Doctors with Albinism next Sunday, December 7th at 9am ET // 6am PT. Join us to connect and share with peers who understand the journey of medicine and life with albinism! https://t.co/lVHB46tKir
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Join ED Karen Bly & the NOAH Research Program Committee as they share updates on previously-funded projects as well as future plans in our next Coffee Chat on 12/8 at 8pm ET // 5pm PT. All NOAH community members are welcome to attend! Register today: https://t.co/rBgZEXLyAj
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NOAH is thankful for our...Fundraisers! There are many different ways to host a fundraiser for NOAH, and we're so grateful for our fundraiser hosts, who gather their friends and family (virtually or in-person) to support our organization! https://t.co/dSTSrHCFaj
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If you've been considering joining our PWA Book Club, now's the perfect time to take the plunge! Grab a copy of "Aftertaste" by Daria Lavelle and start reading. We'll meet to discuss on Monday, January 12th at 8pm ET // 5pm PT. Register today: https://t.co/hLqJoWPMMk
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When you make a gift of any size to NOAH, it significantly impacts the albinism community! Our generous donors make it possible to provide information, resources, and opportunities to connect with our community year-round. Thank you, donors, for your support of NOAH's mission!
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NOAH is thankful for...YOU! Thank YOU for being an essential part of our community and supporting NOAH's mission! We are so grateful for the support of community members over the past 43 years ❤️
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Parents with albinism - we know the hustle and bustle of the holiday season can be overwhelming. Destress and share ideas with fellow parent PWAs on Tuesday, December 9th at 9pm ET // 6pm PT as we discuss planning for the holidays! https://t.co/WsKaFJGmbc
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NOAH is thankful for our...Volunteers! From hosting NOAH Connections calls, to sharing their voice on committees and task forces, NOAH volunteers are crucial in guiding programming, events, and more. Thank you, volunteers, for all you do!
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We are excited to share that singer with albinism Marleena Barber will be joining us for a special NOAH Connections session on Tuesday 12/2 at 7pm ET / 4pm PT to share her experiences making an independent record & answer your questions! Register today: https://t.co/82c3eRzN3Y
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NOAH Connections offers opportunities for PWAs of all ages and their family members to connect with others in the community. Thank you, NOAH Connections hosts, for continuing to facilitate these valuable opportunities! Learn more about upcoming calls: https://t.co/2GHqNC85Mr
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