AdvocateCollaborative (ACE)
@AdvocateCollab
Followers
721
Following
2K
Media
101
Statuses
416
Advocates for Collaborative Education (ACE) Mission: To unite & empower cancer advocates via collaboration, education, and dissemination of leading practices.
Joined June 2020
We are the @AdvocateCollab & our mission is: “To unite & empower advocates across the cancer spectrum through collaboration, education, and dissemination of leading practices, in an effort to improve outcomes of people living with a cancer diagnosis." #CancerTakedown
5
16
60
REMINDER to @advocatecollab members: Please join us tomorrow 3/6 at 10amPT/1pmET for a presentation by advocate Karen Merritt on the DPYD gene and the value of, and the need for, DPD deficiency testing before fluoropyrimidine chemotherapy #PatientAdvocacy
0
4
5
Reminder we are hosting a Town Hall today for @advocatecollab members at 10amPT / 1pmET to discuss impacts of the new administration changes on our advocacy. What we know, what we still need to find out, and how best to move forward. #PatientAdvocacy #CancerResearch
0
4
10
0
5
8
DYK when you google Medical Aid in Dying or Death with Dignity, the first search item that pops up is the National Suicide Hotline? Please join us today for an ACE conversation with advocate @AMJohnston1315 about what Medical Aid in Dying really involves & why it exists #hpm
0
6
9
REMINDER: ACE Meeting on cancer vaccines today 1pmPT/4pmET. Join us to hear from advocate & ACE member Judy Fitzgerald as she shares her experience as an advocate on current vaccine trials. As always presentation will be short so bulk of the time can be spent on Q&A / discussion
0
7
13
We finally made it to Instagram! We meet virtually, but every now and again the stars align & some of us can connect at events in person! In honor of our first IG post, here is a throwback to our first face-to-face at ASCO in 2023 🎉#PatientAdvocacy
https://t.co/jQUEKuHh8y...
0
2
5
Ooops, damn. Sorry. (You're on the list, I just missed typing it) Would it work if I said, "we were just saving the breast for last?" Omigawd, just typed 'breast' instead of 'best' and, honestly, just gonna leave it like that #SABCS24
1
1
4
Looking forward to seeing (and hearing from) many @advocatecollab members next week at #SABCS24 including @stage4kelly @bobriter @barbarasegarra @coffeemommy @christeeny513 @IBCResearch @amybeumer @itsnot_pink @JaniceTNBCmets @LesleyKailani @raalbany @debsetu - who'd we miss?!
2
2
13
Miss the webinar on the promise of Multi-Cancer Early Detection tools? Don't worry. You can still learn about the latest research & its impact on cancer screening. Don't miss out on this key conversation on the future of early detection: https://t.co/DCA5CRLlUM
@AdvocateCollab
1
2
4
Last chance to register! Join us for a webinar on the promise of Multi-Cancer Early Detection tools: latest research & its impact on screening. Don't miss this key conversation on the future of early detection! 🗓️ Register now: https://t.co/Lu6TNwwoe5
@AdvocateCollab
@coffeemommy
1
4
8
Join us this Thursday 11/7 for a session on Global Advocacy with Carolyn Taylor. We will be discussing @TheLancet commission on Women, Power, and Cancer; the @WHO global advocacy framework; and ways you can get involved in patient, research, and policy advocacy at a global level
0
9
17
Recently we attended @COSMOCollab and we asked some of our partners why it is important to partner with patients & advocates and here is what they had to say! Thank you to the amazing @maryam_lustberg for being an amazing partner! #cancer #cancerawareness #MedTwitter
0
9
29
@CancerSuckLess @GitteJoergensen @JJSingleton1 @lghazal @lungcancerisgay Beyond being a #MakeCancerLessShitty ambassador, @GitteJoergensen is also the chair of our @AdvocateCollab Research Advocacy working group, and a maker of breast cancer 'horror' flicks this October (the horrors of side effects, scanxiety, disfiguring surgeries, etc.) #bcsm #bcam
0
3
8
ATTN: patient and research advocates Your voice is valuable and your voice is needed within @FDAOncology Oncologic Drugs Advisory Commitee (see below) And thank you to FDA for recognizing that this value, time, and energy should be compensated.
Apply to become a patient representative on FDA's Oncologic Drugs Advisory Committee! Scan QR code below for further information or contact FDAPatientRepProgram@fda.hhs.gov and ODAC@fda.hhs.gov #FDAODAC
0
10
14
This should be a no-brainer If you are diagnosed w/ ANY metastatic cancer, a 29-month wait for benefits is asinine. A stage IV diagnosis is a life changing & life limiting. Spending hours, weeks, months toiling with benefits is NOT okay #BCAM #BreastCancerAwarenessMonth
I was just on Capitol Hill last week advocating for this act, for the 7th(8th?) year. It has very strong bipartisan support this go-round but it hasn’t been brought to the floor for a vote. @SpeakerJohnson @SenSchumer let’s vote on the MBCAC Act this session!!!
0
3
8
We see rockstars! 🌟 Big hugs all around and always great to see @AdvocateCollab members hanging out together - eager for you to share what you learn with the group!
Patient advocates reporting for duty at @SWOG ! We are here ready to lend a voice to the communities we serve! Thank you @SupportingSWOG for always supporting us! #clinicaltrials #ayacsm #patientadvocate
@survivormami4 @barbarasegarra @raalbany
0
2
11
Are you a patient, research, or policy advocate looking to learn with & from other advocates? Are you someone living with cancer looking to learn more about advocacy or becoming a patient, research, or policy advocate? We would LOVE to have you join us: https://t.co/NDALMd1qZI
0
11
24
Advocates: Help us HYPE you! Are you speaking / presenting at an upcoming conference or event? Are you attending an event and looking to connect with other advocates? If so, let us know here so we can help get the word out: https://t.co/TU5ALaVUta
0
7
16