Autistic Experiences of Breast Cancer
@AEBC_Study
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Research project funded by @BreastCancerNow to explore autistic adultβs experiences of breast cancer diagnosis and treatment.
Joined June 2023
Please take a look at this important blog post written by @social_parasite and I discussing healthcare barriers in cancer care experienced by autistic people. Based on our fireside chat at @OUTpatientsUK LGBTIQ+ Cancer Conference #breastcancer #AutisticHealthcare @AEBC_Study
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@BreastCancerNow @OUTpatientsUK @METUPUKorg @LobularBCUK @macmillancancer @Liz_ORiordan @CoppaFeelPeople This project is autistic led and the interview questions have been co-designed with our Lived Experience Advisory Group.
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Please note: If you are not selected for an interview, there will be another opportunity to participate in the project with the survey next year. #breastcancer #MedTwitter #autistic
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Participants needed for an interview study exploring the experience of breast cancer diagnosis and treatment as an autistic person, in the UK. To find out more please go to: https://t.co/TQFVGdv0RZ or scan the QR code in the advert below #ActuallyAutistic
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Great article with @DrCharGoodwin about autistic experiences of breast cancer & the @AEBC_Study π Our leads @AutisticDoctor & @Autistic_Doc are delighted to be collaborators on the study https://t.co/sOauT7GHeL
#Autism #Autistic #BreastCancer #AutisticResearch
myweekly.co.uk
Dr Char Goodwin explains the research she is doing to help autistic people receive the help and support they need during breast cancer.
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In this article in @My_Weekly I talk about the impact of healthcare barriers on breast cancer for autistic people, and that it is vital we hear about autistic experiences which is what we will be doing in the @AEBC_Study
https://t.co/gQVAp0OopP
myweekly.co.uk
Dr Char Goodwin explains the research she is doing to help autistic people receive the help and support they need during breast cancer.
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It was great to be one of the speakers today and to talk about @AEBC_Study and hear from all the other speakers about ways to provide truly inclusive cancer care. Thank you @leonealexander2 for inviting me.
What an incredible day @TheChristieSoO Thank you @BDawSrdanovic @NikitaHayden Humaising Healthcare Project @SignHealth @macmillancancer Macmillan Deaf Support @DrCharGoodwin Autistic Experiences of breast cancer study @CaitrionaPlunk2 Breast Cancer awareness NF1 & @PaulaMc007
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Great insights into cancer diagnosis and care as an autistic person Fab talk by @DrCharGoodwin #OPC24 Research study https://t.co/oZRd5Y9niM
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Dr Char Goodwin kicking off the LWBC programme at #OPC24 with an informative talk on autistic peopleβs experience of breast cancer. Really interesting and thought provoking. Looking forward to following the research project @BreastCancerNow
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I'm speaking in the Living With and Beyond Cancer theatre at @oncology_care Join me as I discuss barriers to healthcare for #autistic people and how they impact cancer care. I will also be talking about @AEBC_Study Hope to see you there!
invt.io
Register now
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I will be talking about the @AEBC_Study and why listening to #autistic experiences of cancer is vital to understand the healthcare barriers in cancer care. #autistichealthcare #breastcancer
π£ This Friday join me in-person or online for the third #cancerandexclusion event, βTruly inclusive careβ. @TheChristieSoO and hear from incredible speakers, including: @PaulaMc007
@SignHealth
@BDawSrdanovic and @NikitaHayden from @esrchumanhealth
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We have relocated our website to this new address https://t.co/TQFVGdv0RZ After some technical difficulties that have since been resolved we took the decision to relocate it. It has a new look but the same information and will be updated throughout the project. Check it out!
aebcstudy.co.uk
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βοΈNEW BLOG POSTβοΈ Cos Michael @autismage reflects on how her emotional processing of a recent diagnosis of ill-health and her experience of treatment was influenced by her autism. With links to @AEBC_Study. https://t.co/04fJ8gtXyi
ndconnection.co.uk
In this Lived Experience account, Cos Michael reflects on how their autism may have impacted their emotional processing of a diagnosis of ill-health and their subsequent experience of treatment.
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On #WorldCancerDay we would like to thank everyone who has been interested in our research project. We will continue to explore ways to improve cancer care for autistic people @AEBC_Study @BreastCancerNow #autistic #breastcancer
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@KerryMP on accessible healthcare for autistic people & the Autistic Experiences of Breast Cancer @AEBC_Study Plus inclusivity for people with dementia - some of whom are autistic @DrCharGoodwin
@BreastCancerNow
@macmillancancer
@Autism
@alzheimerssoc
@scottishautism
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Thank you @RobBAylesbury for listening about our research project @AEBC_Study which will explore autistic experiences of breast cancer. @AutisticDoctor
Ahead of #WearItPink day on Friday, @BreastCancerNow visited @HouseofCommons to talk about breast cancer care. Good news that screening in our area is higher than average, with work underway to speed up diagnosis. Also learnt about particular needs of cancer patients with autism
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Wonderful to see such engagement from MPs for #WearItPink & glad of the opportunity to highlight healthcare needs of autistic people, as we explain the Autistic Experiences of Breast Cancer @AEBC_Study led by @DrCharGoodwin funded by @BreastCancerNow
Ahead of #WearItPink day on Friday, @BreastCancerNow visited @HouseofCommons to talk about breast cancer care. Good news that screening in our area is higher than average, with work underway to speed up diagnosis. Also learnt about particular needs of cancer patients with autism
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@AutisticDoctor and I were at Westminster to talk about the @AEBC_Study project which will be exploring Autistic Experiences of Breast Cancer, funded by @BreastCancerNow and barriers to healthcare for autistic people #BreastCancer #ActuallyAutistic
A big thank you to our researchers who joined us this afternoon and showcased their world-class research.
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Thank you to everyone who has RT and shared our posts about looking for Lived Experience Advisory Group Members, we have received more apps than expected and are no longer looking for new applications. Thank you #breastcancer #ActuallyAutistic #MedTwitter
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