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@ACTION4HF

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Doctors, nurses, patients/families and industry improving outcomes for children and adults with heart disease. #PedsVAD #PedsHF https://t.co/1AlTh8fze6

Joined October 2017
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@ACTION4HF
ACTION
11 hours
We’re kicking off a two-part series spotlighting pioneers in mechanical circulatory support. First up: Dr. Rich Wampler, whose work helped shape devices like the first implantable rotary blood pump, Impella, HeartMate II, and HVAD. Read his interview: https://t.co/DeprFypXel!
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@ACTION4HF
ACTION
13 days
🎉The ACTION VAD Registry has surpassed 2,000 patients enrolled! A huge thank-you to the centers and teams contributing data and driving progress in pediatric VAD care. Your collaboration is making a real difference for kids and families. #PedsVAD #PedsHF #Collaboration
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@ACTION4HF
ACTION
15 days
Congrats to Dr. Madeleine Townsend from @ClevelandClinic! Her ACTION abstract was accepted as a moderated poster at the AHA Scientific Sessions this week! Learn more: https://t.co/R7Tmbbq2xt #AHA25 #PedsVAD #Collaboration
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@ACTION4HF
ACTION
19 days
Halloween is here! We hope your day is full of spooky fun & sweet treats! 🖤🧡
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@ACTION4HF
ACTION
21 days
🎉 New from ACTION! The Impella® Heart Pump Patient Education Handbook - developed with @JNJMedTech - helps families understand what to expect, track milestones, & feel supported through recovery. Download here: https://t.co/CjhU6l6zXN! #PedsHF #PedsVAD #Collaboration
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@ACTION4HF
ACTION
23 days
Dr. Emily Hayes of @nationwidekids shared findings from the ACTION-MD registry at #WMS2025, showing that with careful selection & multidisciplinary care, heart transplant can be a successful option for people with Duchenne & Becker MD. Learn more here: https://t.co/WKWHtPMQ28!
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@ACTION4HF
ACTION
29 days
A new ACTION study in Pediatric Cardiology shares real-world use of SGLT2 inhibitors in children with heart failure. Among 278 patients - most on dapagliflozin -treatment was generally well tolerated. Learn more here: https://t.co/LdWAtn68Am! #PedsHF #Collaboration
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@ACTION4HF
ACTION
1 month
Who’s excited for ACTION VAD Bootcamp this week? 🎉 As we get ready, we’re spotlighting the Impella Algorithms & Care Guide, which is available on the Provider side of MAE & through your Impella rep! #PedsVAD #PedsHF #Impella
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@ACTION4HF
ACTION
1 month
We’re looking for patients & families to share their stories! Write it, record it, or answer a few quick questions - we’ll help polish & share it. Email info@actionlearningnetwork.org to learn more! See past stories here: https://t.co/xyoqmOlNRG! #PedsHF #PedsVAD #Fontan #DMD
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@ACTION4HF
ACTION
1 month
🚨New study out in @asaiojournal! Clinicians found iDECIDE-VAD-PEDIATRIC easy to use and well received by families - supporting informed, values-based decisions about pediatric VAD therapy without steering choices. Learn more here: https://t.co/h85YKU2HLx! #PedsVAD #PedsHF
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@transplantfams
Transplant Families
2 months
Have questions about SGLT2 inhibitors for transplant recipient kids? Join our webinar on October 13, 2025! Get insights from experts. Register: https://t.co/CkEbiWlWRy #Webinar #TransplantEducation
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@ACTION4HF
ACTION
2 months
Our first resource, created with @ICOSociety, is a patient-friendly handout on Cardiotoxicity & Cancer. It explains: • What cardiotoxicity is • When heart damage may occur • How doctors check for it Download & share:
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@ACTION4HF
ACTION
2 months
September is Pediatric Cancer Awareness Month 💛 ACTION is excited to launch our newest initiative: Cardio-Oncology! This work will support individuals whose cancer treatments may affect their hearts. #CardioOncology #PedsHF
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@ACTION4HF
ACTION
2 months
Living with a #Fontan circulation comes with unique challenges. The new Fontan ACTION Plan for Patients helps families take charge of their health with tips, warning signs, specialist guidance & age-based testing recommendations. Download here: https://t.co/9vAaOupF7L! #PedsHF
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@ACTION4HF
ACTION
2 months
Key strategies include: • Optimizing preload/afterload/inotropy • Tailoring ventilatory support • Preventing secondary organ dysfunction • Escalating to RV support when needed Read the consensus statement: https://t.co/tGwZXs0pBJ!
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actionlearningnetwork.org
Right ventricular failure (RVF) after left ventricular assist device (LVAD) implantation is a major cause of morbidity and mortality. This review offers pediatric-focused guidance on perioperative RV...
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@ACTION4HF
ACTION
2 months
Right ventricular failure (RVF) after LVAD implantation is one of the biggest challenges in pediatric HF care. A new ACTION-endorsed statement in shares bedside-focused guidance to recognize, prevent & manage RVF in kids with LVADs.
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@ISHLT
The ISHLT
2 months
#ISHLT2026 is the premier venue to showcase your science in the treatment of advanced #heart and #lung disease, #transplantation, #MCS, and #PVD. 🔬🫀🫁 Submit by 14 October:➡️📝🔗 https://t.co/YaBPxc5UVQ
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@ACTION4HF
ACTION
2 months
🚨 Almost full! The ACTION VAD Bootcamp deadline is extended - register ASAP to save your spot! Hands-on stations, case discussions & VAD expert panel. Register here: https://t.co/bK1flnH6y4!
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@ACTION4HF
ACTION
2 months
🧬New from ACTION-MD: Patient Handout on Cardiac Monitoring After Gene Therapy for #DMD🧬 Helps families know symptoms to watch for, when to schedule troponin, ECGs & heart exams & more! Download here: https://t.co/uJNRY657gx! #ACTIONMD #MDMonday #Collaboration
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@ACTION4HF
ACTION
2 months
📢 Upcoming Webinar! Join us on Monday, September 15th at 12pm ET for a session on Pulmonary Artery Banding in Infants and Young Children with DCM, presented by Thushiha Logeswaran, MD. Register now: https://t.co/xUahLjuDKg!
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