Wake Up Narcolepsy
@wakenarcolepsy
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People with Narcolepsy have been living in the shadows. It’s time to step into the light! Dedicated to supporting Narcolepsy awareness & research to find a cure
Boston, MA
Joined August 2009
📣 Announcing our upcoming #Ottawa WUN Town Hall on October 18th! Join WUN, volunteers & Dr. Luks for a day of connection, conversation & community! Learn more: https://t.co/0BehNEAV77 We appreciate our volunteers & sponsors: @JazzPharma & Knight Therapeutics
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On behalf of Sanguine Biosciences, we’re sharing a new at-home research opportunity for those diagnosed with Obstructive Sleep Apnea. You can help advance research from the comfort of your own home. Learn more: https://t.co/64ZDuOfEGs or call 855-836-4759
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That's a wrap for 2025 Worldwide Step Up For Sleep!🌎🏃 Read the recap: https://t.co/FAFaQ8jqul Thank you to our 2025 awareness sponsors: @AvadelPharma @HarmonyBio @JazzPharma @centessa @axsome @TakedaPharma
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We are excited to announce another partnership with @aasmfoundation to jointly fund a Strategic Research Grant for Central Disorders of Hypersomnolence! The deadline for letters of intent is October 20th, 2025 by 11:59pm ET. Learn more: https://t.co/vTj0YL3miU
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Join Kim Hindery, @Child_Neurology Executive Director, for our next webinar on October 23rd at 2 PM ET! Register now: https://t.co/HpqbxmArd4 2025 sponsors: @AvadelPharma @HarmonyBio @Alkermes @TakedaPharma
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Happy #WorldNarcolepsyDay 2025! Join us in celebrating with TWO MORE Wake Up Narcolepsy (WUN) resources now available in 11 languages📣 📲Check it out now: https://t.co/yCBCdSyGRf 2025 awareness sponsors: @AvadelPharma @HarmonyBio @JazzPharma @centessa @axsome @TakedaPharma
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🤔Learn more about #Narcolepsy and spread education with this visual tool! 📣Our "Do You Know Narcolepsy" poster highlights symptoms and misconceptions familiar to those living with the disorder. It's also available in 11 languages! https://t.co/AzANWfqCnu
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We recently joined 189 advocacy groups in signing a letter urging Congressional leadership to act swiftly to reauthorize the Rare Pediatric Disease PRV Program. Thank you to @EveryLifeOrg & @RareDiseases for leading this important initiative! https://t.co/2W8oYWSAzc
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Help us race to the finish line by joining 2025 #WorldwideStepUp For Sleep!🌎🏃 Learn more: https://t.co/fpSILzGm2y Awareness sponsors: @AvadelPharma @HarmonyBio
@JazzPharma @centessa @axsome @TakedaPharma
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Our Boston Red Sox #WUNTownHall is happening today to celebrate #WorldNarcolepsyDay! WUN representatives are spreading awareness at the game! If you’re going, be sure to stop by our table to say hello. Sponsors: @AvadelPharma @JazzPharma @Alkermes @axsome @TakedaPharma
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⏳Don't miss your chance to learn more about #cataplexy in #Narcolepsy with Dr. Thorpy on September 22nd, #WorldNarcolepsyDay, at 10 AM ET! Register now: https://t.co/uHeESTnQZZ 2025 sponsors: @AvadelPharma @HarmonyBio @Alkermes @TakedaPharma
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Join us Thursdays for our Living with #Narcolepsy Canada Support Group with Kelsey Bingham & Heather Trueman! Register: https://t.co/CX4XKh3cyo Thank you to our volunteer facilitators & sponsors: @AvadelPharma @HarmonyBio @JazzPharma @Centessa @TakedaPharma
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🚨Final call for #BridgingPerspectives registration! Secure your spot by this Friday, September 12th: https://t.co/P7JI8YsSby Thank you to our 2025 sponsors: @AvadelPharma @TakedaPharma @HarmonyBio @JazzPharma @Alkermes @axsome @centessa
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Thank you to everyone who shared their insights! The survey is now closed.
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We're excited to highlight the breakout sessions from #BridgingPerspectives: Where I'm at Today🌟 Join us Sept 26 for a brand new, IN-PERSON only event: https://t.co/P7JI8Yskm0 Sponsors: @AvadelPharma @TakedaPharma @HarmonyBio @JazzPharma @Alkermes @axsome @centessa
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✨Your Voice Matters!✨ ✅Who can join? Anyone with narcolepsy type 1 or 2 ✅What’s involved? A 20–30 min online survey ✅Thank you gift: $25 for your time and insight ✅Funded by: EfficientCME (certified medical education provider) Take the survey: https://t.co/b199Qf0YvQ
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We’re kicking off Worldwide Step Up For Sleep 2025! 🌎🏃 Register to track physical activity, fundraise, participate in challenges & compete with friends: https://t.co/fpSILzFOd0 Awareness sponsors: @AvadelPharma @HarmonyBio @JazzPharma @centessa @axsome @TakedaPharma
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📣Announcing our upcoming #DallasFortWorth #WUNTownHall on September 20th Join WUN & Dr. Wani for an afternoon of connection, conversation & community: https://t.co/hoMqOq9iuP We appreciate our volunteers & sponsors: @AvadelPharma @JazzPharma @Alkermes @axsome @TakedaPharma
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Today, we're highlighting our Diamond Champion Sponsor, Avadel Pharmaceuticals (@AvadelPharma) The dedication from sponsors helps drive our programs and expand our impact. Thank you for your support!
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The newest edition of our blog "#Narcolepsy and the Fractured Self" by Tasha Hill, RN opens with a touching original poem from Tasha exploring the complex feelings of the Narcolepsy journey. Check it out now: https://t.co/ZqNzIi8KLG
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