Christine
@type1christine
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writer. public health/public policy. mostly mountains, running & vegetables. type 1 diabetes. thoughts & views my own.
Denver, CO
Joined July 2013
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Last Seen Profiles
I’ve been waiting for this day for a very long time. When I was diagnosed with type 1 diabetes 22 years ago, I never thought tubeless, automated insulin delivery would be possible. Now it’s here. So excited to get started!
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I’ve had diabetes for 22 years and the first time anyone ever really acknowledged how hard the disease is was when I became acquainted with the diabetes online community.
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It’s funny that some people don’t consider diabetes a disability because it literally dictates every single thing I do in my day
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can all diabetics get an honorary medical degree in endocrinology? 😂
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“the diabetic pause” is when you’re out and look at a menu & quickly calculate how many carbs you think is in a dish + your bg + if you’ve exercised or plan to + take an assess of your hormones + if you’re imbibing + if you’re ill/not and make a microsec decision of what to eat
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I got married a year before my wedding to get my fiancé’s insurance; I’ve stayed in jobs I hated; I’ve bartered for insulin with friends. If you think the high cost of insulin only affects a small group of people, you’re wrong.
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do you think having diabetes makes you more tired than an average person?
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Prior auth for your diabetes supplies, if you LIVE WITH DIABETES, is a total scam
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hard to be a tough independent woman when a juice box saves my life routinely
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if you have an “expert diabetes panel” without anyone with diabetes on it, it ain’t expert 💅🏻
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Saw a guy next to me at a coffee shop w/ a Dexcom sensor on his arm, so I started a friendly convo about type 1 diabetes- it turns out he’s just “monitoring bg for spikes in things like grapes” He doesn’t have DIABETES. He’s monitoring HIS GRAPE INTAKE. He needs to go home 🙄
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If anyone without diabetes woke up with a 300 bg it would literally be an emergency but because we’re “used to it”, it’s just a Wednesday
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I truly don’t think able-bodied people know or appreciate what an absolute joy it is to shower or exercise (or sleep or just live) without worrying if an adhesive patch is going to peel off you at any moment
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What has always frustrated me about diabetes is that our management has always been judged as a reflection of our character. If we have a lower a1c, we’re “better” and “more disciplined” when in reality we just haven’t had the tools intelligent enough to help us adequately
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@Sandyboots2020
My mom is in the hospital for cancer treatment- literally at a cancer center- and not one doctor is masked
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I don’t think people realize the mental burden of the threat of a low blood sugar and how heavily that weighs constantly on a PWD’s mind
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please don’t ask the person w diabetes in your life if they’re, “allowed to have candy” tomorrow. for the love.
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donating 23 vials of humalog for 23 years of living with t1d. 💚
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Jobs demand you work like you don’t have a chronic illness, and chronic illness expects you to manage your disease like you don’t also work an actual job 🤣🥺😭
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we’re supposed to work like we don’t have diabetes and manage our diabetes like we don’t have full time jobs
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just went to target for $17 worth of toilet paper and.... $7,824 worth of insulin. Is there anyone in the world who still thinks this is normal?!!!!!
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Met someone with an a1c of 13 today who tests 1x/day. She isn’t lazy, bitter, or depressed. She has lived w T1d for 29 years and is simply burnt out. We need to address the mental health issues people w diabetes face more head on, because it trickles down to everything else
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diabetes is knowing that even if your coffee has 0 carbs in it, you have to dose as if there are 10
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imagine being 12 and getting diagnosed with an incurable disease and told your life expectancy was just slashed by 20 years. yeah.
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if a t1d life expectancy is so much lower than the general population, why do we have the same retirement age?
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the trope, “people w diabetes can do ANYTHING” is dangerous for many reasons, one of which being that we put all the responsibility (and guilt and shame) of the disease on ourselves; most of us don’t even realize we’re entitled to seek help.
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sometimes I think type 1 diabetes is no big deal, but then I realize I really have to take a shot for every single thing I eat ever.
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when I was diagnosed with type 1 diabetes 22 years ago, the doctors said, “oh, don’t worry, it’s manageable” but they forgot to tell me that managing it would literally take over my life
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People w diabetes are so used to having our guards UP all the time that it creates the inability to ever fully relax. Can anyone else relate?
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I’m in favor of a 4 day work week for people with diabetes. It just sounds right to me.
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Everyone talks about how hard it is to live with diabetes, but not enough people talk about how hard it is to grow old with diabetes, facing invisible complications and a weary body every single day.
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diabetes confessions Friday: I haven’t tested for ketones in…15 years? What’s yours?
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Packing (and laughing) when people say diabetes isn’t a disability 🙃🥴
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So sorry you were “bummed” to take your CGM off, sweetie, but millions of people WITH DIABETES don’t have access, so maybe let’s save space for them, first.
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bolusing 5 “invisible” carbs for my morning black coffee, and then bolusing another 10 for my carb-free eggs and you wonder why people with diabetes have trust issues?????
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i know a site and cgm change collectively takes less than 5 minutes to change, but in my mind it takes approx 4.85 hours
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one of the most painful parts of diabetes is when you start developing complications even though you’ve always tried to do everything right 😢
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having diabetes forever just isn’t my vibe, think I’ll pass
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having type 1 diabetes requires the ability to be relentlessly optimistic despite your daily reality
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it’s Halloween. You have diabetes. You know what that means.
we’re stocking up on low snacks for the rest of the year tonight
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diabetes is a relentless mf. if you’re in the fight, I see you 🤍
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just because your diabetes management is easy for *you* does not mean diabetes management is easy.
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call from someone, asking about insulin:
her: so if someone with type 1 doesn’t have insulin, they don’t *actually* die, right?
me: ummm yeah. we do *actually* die. that’s why this is a crisis.
her: ...
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people with diabetes deserve a beautiful life- one filled with tiny, beautiful moments: cake on your birthday, a childhood (!), celebrating wins big and small. When people tell us what and what not to eat and how to behave, they’re trying to steal our joy
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yep. Because we’re all just waiting to OD on our insulin 🙄🫥
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newer diabetics need to understand that for those of us who grew up with slower-acting insulins, no pumps, and no cgms, “250 mg/dL or lower 2 hours after eating” was seen as a win lol
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“Insulin does not belong to me, it belongs to the world” -Sir Fredrick Banting
#WorldDiabetesDay
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yes. It happens all the time. We’re not born advocates. We become them over time. I went from 7th-12th grade without telling a single teacher about my diabetes or seeking accommodations once. I would eat 3 bananas before the SATs (with a bg of 400) to avoid a low during the test.
So you mean to tell me that a student with a disability that can and does affect learning chose not to report, disclose, or request accommodations, took no lengths to prepare physically for a 3-hour ordeal, brought malfunctioning equipment into a classroom full of people, +
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diabetes is fun because the same black coffee that I take zero units for in the afternoon, I need 4 units for in the morning 🤪
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These constant critical alerts from Dexcom will give people alarm fatigue and THAT could be life-threatening
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How many of us (🙋🏼♀️) have left a painful or useless pump site in, because our insurers give us the.exact.amount. of supplies and no extras, ever? How helpful is that? To anyone?
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the omnipod 5 has been a game changer for sleep the past two nights. 8 hours! Straight.Through.The.Night. No low or high alarms. What is this madness?! 🥺😍😍😍
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for diabetes month, I want to reiterate how asinine it is to tie healthcare to employment or a spouse—I married my husband a year early privately at the court house (2016) before our public 2017 wedding because my health insurance at the time didn’t cover CGM but his did.
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the cdc actually now recommends that we need only to change our lancet once every 10 years, so
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introduced myself in a meeting, said I had type 1 diabetes for 22 years, and later someone came up to me and said, “and wow! no complications!” (I never said I didn’t have complications).
“Actually, I do. Not all complications, or disabilities for that matter, are visible.” 🎤
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all at once I feel like diabetes is too much of a disability and “not enough” of one
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don’t think pharmacies know how stressful it is when they casually tell us our insulin is out of stock
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talk about your diabetes struggles. mention your doctors appts, how you feel when you spike or crash, your diet limitations, your fear of Covid. diabetes is invisible and if we don’t talk about what we’re feeling & experiencing, people will think it’s easier than it ever could be
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people always ask, “why were you so moody in high school?” um probably because my A1c was 13%, for starters
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the absolute shockwaves that are going to rock this country when there’s a complete and utter storm of type 1 diabetes diagnoses in children in the coming years will be huge. “IF ONLY WE WOULD HAVE KNOWN.”
We’re telling you now.
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Friday reminder that if you have diabetes you don’t have to eat low carb ✌🏽
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2022 diabetes wrapped:
- you said ffs 22 times over a cgm sensor error
- you threw 7 syringes into a trash can instead of a sharps container
-5 pump sites fell out early
-1 insulin vial smashed
-laughed at 0 diabetes jokes
-15 people said there’s 5 more years till the cure
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sometimes I have the audacity to think I don’t have a disability and then I remember that I literally plug my pancreas in to charge every single night 😂
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if you’re not frustrated with the US healthcare system, you’re probably not using the US healthcare system
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diabetic math is waiting 5 years for the cure for years on end yet the number never seems to go down
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you can do anything with diabetes except every time you travel pack 4x the amount of insulin and supplies you need because you actually have a disabling chronic disease where you only thrive with constant titration and any delineation from the plan will mess everything up
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good morning to everyone in the world who had to dose insulin for breakfast. You’re doing a great job.
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@cottoncandaddy
Once, over ten years ago, I was having a cry in a park in nyc and I man walked past me, took notice, and then 2 min later, approached me with a few tissues and winked while giving them to me without saying a word. He looked JUST like Ed Harris 😂
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“Oh you have diabetes? I could absolutely never do what you do”
oh, I cringe to be living in a situation you could literally never imagine. The unthinkable life that people cannot bear to contemplate.
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if she got a Dexcom g6 and a smart phone, it’s not that she hasn’t checked her phone. She’s ignoring u.
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ever put a pump site in and the pain ricochets inside your tired skin, courses through your exhausted blood vessels, vibrates off your bones, and resurfaces all within 5 seconds? The pain of feeling like a worn out pin cushion is DEEP
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since everyone is googling it now: don’t make fun of people with autoimmune diseases. period.
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any other diabetics want to just… run away and create a commune together?
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💯 best part of diabetes is getting a lifetime national parks pass
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I love it when my Dexcom alerts ME that there are no readings…like, this is totally a YOU problem. What do you want me to do about it?!
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endocrinologist on a phone consult: “so you’re always pre bolusing for your meals?”
me, dosing a unit literally mid-peanut-butter-scoop: “hmmm yep”
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the current insulin shortage is exactly why every T1D in your life is prepared for the apocalypse
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HAPPY WORLD DIABETES DAY. As hard as this life is, I am constantly reminded of the goodness and kindness of the d-community. That together we can do a lot, and that one day there will be a cure. 🩵 sending love and light to everyone in my orbit today.
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“Lol hope my insulin is ‘preferred’”- every person w diabetes when they change health insurance plans
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someone recently accused me of making diabetes my whole personality.
yep.
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