Greg Crowhurst Profile
Greg Crowhurst

@thestonebird

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In love, author, song writer, guitar and keyboard player, web designer; sit and notice things in our beloved garden. So many ideas.

Joined October 2011
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@thestonebird
Greg Crowhurst
4 years
i am shocked how little has changed in ME world. Until the #ME community defines exactly what #ME is, I see little hope of things ever changing or a way out, especially for the most ill.
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@thestonebird
Greg Crowhurst
4 years
We are pleased to share a new song for Christmas.This year has been particularly hard for everyone with the Pandemic. So many losses and struggles can make it hard to feel the joy and blessings of Christmas easily or at all. https://t.co/M5olL3Ckh5 via @YouTube
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@thestonebird
Greg Crowhurst
4 years
Regarding the NICE “ME/CFS” Guideline.
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@thestonebird
Greg Crowhurst
4 years
Some thoughts on the possible consequences , if the NICE Guideline is al... https://t.co/dJBbpSunTZ via @YouTube
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@thestonebird
Greg Crowhurst
4 years
A Stonebird Statement on the failure to publish the NICE Guideline on ME... https://t.co/3JhhW6nMKP via @YouTube
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@thestonebird
Greg Crowhurst
4 years
#SevereMEDay The depth of the suffering in Severe /Very Severe ME is unimaginable until experienced
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@thestonebird
Greg Crowhurst
4 years
#SevereMEDay Aug 8th. Remember Us, Remember Them, Remember Me
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@thestonebird
Greg Crowhurst
4 years
#SevereMEDay. We have personally known 16 people diagnosed with #SevereME who have died. They will always live in our hearts.
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@thestonebird
Greg Crowhurst
4 years
#SevereMEDay. Remember Me
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@thestonebird
Greg Crowhurst
4 years
#SevereMEDay. Remember Us
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@thestonebird
Greg Crowhurst
4 years
#SevereMEDay. Remember Them
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@thestonebird
Greg Crowhurst
4 years
#SevereMEDay. In remembrance of all those we have loved who have died.
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@thestonebird
Greg Crowhurst
6 years
SEVERE ME - A HUMAN RIGHTS ISSUE There is a new Blog called"Just Breathe-Life With Myalgic Encephalomyelitis", its first post is an extremely powerful account of the "incarceration" of people with ME, which I have linked to, on Stonebird....
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@thestonebird
Greg Crowhurst
6 years
Many thanks to Macauley for coming out this morning and doing a superb job of fixing our sink and going the extra mile to fix a difficult broken bath tap. The relief of finding someone so helpful, calm,...
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@thestonebird
Greg Crowhurst
6 years
The Enchanting Winter Design Collection - Design Cuts
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@thestonebird
Greg Crowhurst
6 years
'Invisible Octopus'" (3) M.E. and the Phoenix - rising from the ashes
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@thestonebird
Greg Crowhurst
6 years
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@thestonebird
Greg Crowhurst
6 years
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@thestonebird
Greg Crowhurst
6 years
Very Severe ME: It’s Time for Something New! By Greg Crowhurst | 16 August 2019
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@thestonebird
Greg Crowhurst
6 years
Researchers from Newcastle and Oxford determine commercial mitochondrial test is unreliable and should not be used as test in ME/CFS | 09 August 2019
meassociation.org.uk
The long-awaited independent assessment of Dr Myhill’s mitochondrial function test was published earlier this week.
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