The Chandler Project 🦋 Profile
The Chandler Project 🦋

@thechandlerproj

Followers
78
Following
53
Media
4
Statuses
81

Providing advocacy 📣 awareness 💡 research 🔬 & support 💜 for #achondroplasia, #hypochondroplasia, and other skeletal dysplasias 🧬

Joined February 2019
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@thechandlerproj
The Chandler Project 🦋
6 days
RT @BridgeBioPharma: Heading to PHARMACHON in SF on July 12? Join us alongside @thechandlerproj to learn about the latest in research devel….
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@thechandlerproj
The Chandler Project 🦋
1 month
RT @BridgeBioPharma: MyAchonJourney is a community-informed resource developed to support families and provide a positive outlook on living….
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@thechandlerproj
The Chandler Project 🦋
3 months
RT @BridgeBioPharma: Did you know that #achondroplasia gets its name from Greek, meaning "without cartilage growth"? Caused by a change in….
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@thechandlerproj
The Chandler Project 🦋
3 months
RT @ach_research: Re: @BridgeBioPharma's oral #infigratinib for #achondroplasia: "This is a really promising medicine. If you're teaching t….
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@thechandlerproj
The Chandler Project 🦋
3 months
RT @ach_research: .@AscendisPharma Submits U.S. NDA for #TransConCNP (#Navepegritide) for the Treatment of Children with #Achondroplasia ht….
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@thechandlerproj
The Chandler Project 🦋
4 months
RT @BridgeBioPharma: Connecting with other families living with achondroplasia can be an invaluable source of support. On MyAchonJourney, y….
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@thechandlerproj
The Chandler Project 🦋
4 months
RT @RDR_Atlanta: We are excited to partner with @tyrabiosciences Biosciences to bring the BEACH301 clinical trial for eligible children wit….
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@thechandlerproj
The Chandler Project 🦋
4 months
RT @ACHONforum: Interested in exploring advancements in achondroplasia and related conditions? . Join the first IAF Workshop 'Beyond Achond….
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@thechandlerproj
The Chandler Project 🦋
4 months
#AbbiskoTherapeutics Announces IND Clearance from the Center for Drug Evaluation (CDE) of the China National Medical Products Administration for #ABSK061, a Highly Selective FGFR2/3 Inhibitor, for the Treatment of #Achondroplasia.
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@thechandlerproj
The Chandler Project 🦋
4 months
RT @TyraBiosciences: Thank you, #ACMGmtg2025, for the incredible opportunity to exhibit and debut Tyra’s BEACH301 clinical trial for childr….
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@thechandlerproj
The Chandler Project 🦋
4 months
RT @BridgeBioPharma: Such a great time at @TheACMG Annual Clinical Genetics Meeting. What a wonderful opportunity to connect with experts i….
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@thechandlerproj
The Chandler Project 🦋
5 months
RT @BridgeBioPharma: Today on #RareDiseaseDay, we're proud to join the #raredisease community to raise awareness about the millions of peop….
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@thechandlerproj
The Chandler Project 🦋
5 months
RT @rare_ready: Be a Voice for Rare Disease Patients! State policies like PDABs can have unintended consequences on rare disease treatments….
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@thechandlerproj
The Chandler Project 🦋
7 months
RT @BridgeBioPharma: We were honored to host individuals living with #hypochondroplasia for our recent Hypochondroplasia Community Day. He….
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@thechandlerproj
The Chandler Project 🦋
8 months
RT @BridgeBioPharma: We're pleased to announce that positive 18-month results from PROPEL 2, a Phase 2 trial of the investigational therapy….
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@thechandlerproj
The Chandler Project 🦋
8 months
RT @Nemours: We’re thrilled to welcome Dr. Shawn Standard to Nemours Children’s Hospital, Florida! Dr. Standard joins our team to expand th….
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@thechandlerproj
The Chandler Project 🦋
9 months
RT @WGSMac: World Dwarfism Day may have passed, but we are still feeling the love from our patients from near and far. Thank you to all of….
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@thechandlerproj
The Chandler Project 🦋
9 months
RT @LimbLengthMD: To honor #DwarfismAwarenessDay we are profiling one of our earliest patients living with #achondroplasia who chose #LimbL….
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@thechandlerproj
The Chandler Project 🦋
9 months
RT @lvfffestival: The Riccardo Servini-directed, Nick Taussig-produced Dwarf Story is one of many great films that will be showcased at the….
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@thechandlerproj
The Chandler Project 🦋
10 months
RT @LimbLengthMD: #DrHerzenberg will speak in a free #Achondroplasia - Medication & Surgery webinar hosted by ALYN PARC, the Helmsley Pedia….
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