shehla mohammed 💙🧡
@snmcb
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Paediatric Geneticist, partial to rare and ultra rare disorders, mature student of the cello and kick boxing! Views my own
Joined May 2011
The AAF conferences get better each year : 2024 was the best ever ! @AmyandFriends @GSTTnhs @GSTT_SpecAmbu @EvelinaLondon
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Summary !. Staying calm for lift off: it’s only 1.5 km, 120 mph 0-60 mph in 10 secs!.
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Velocity zip wire update : we did it with the parents and one of my patients which made it so so special! Incredible support from so many. We have raised over £10K for Amy and Friends so far !.Thank you all so much. @GSTT_SpecAmbu @GSTTnhs @AmyandFriends
A notch up from the abseil down St Thomas but also for a good cause. Thanks for any support you can offer ! @GSTT_SpecAmbu @GSTTnhs @AmyandFriends .
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Our bespoke Rare Disease Centre enables paediatric, transition and adult patients to be seen by multiple experts ensuring continuity of care, access to therapies and an international collaborative network @GSTTnhs @GSTT_SpecAmbu @EvelinaLondon.
The Rare Diseases Centre at St Thomas' Hospital is one of the only units in the UK, providing comprehensive care for people who have rare diseases.
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A notch up from the abseil down St Thomas but also for a good cause. Thanks for any support you can offer ! @GSTT_SpecAmbu @GSTTnhs @AmyandFriends .
justgiving.com
Help Shehla Mohammed raise money to support Amy and Friends
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A privilege to be part an amazing group of likeminded clinicians and scientists working in a true collegiate spirit to get the best outcomes for the patients we look after @GSTTnhs @EvelinaLondon.
Some of our wonderful scientists/clinicians from across the world who dedicate the lives to helping our families - this phenomenal team deserve the biggest clap 👏 ❤️💙💛👏
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This award recognises their exceptional skills, knowledge and expertise and the central role of nurses in the development of innovative services that improve co-ordinated care for those with rare and ultra rare diseases. @AmyandFriends @GeneticAll_UK.
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Huge congratulations to Paula Sullivan and Phillipa Sellar, nurse practitioners in our Rare Diseases Centre, who have been awarded the prestigious title of Queen’s Nurse from the Queen’s Nursing Institute.@GSTTnhs @GSTT_SpecAmbu @EvelinaLondon @NHSEngland
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With over a 100 attendees from 13 countries we had a very informative weekend of talks & workshops leading to many new and innovative collaborations.
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We discussed our approach to a be-spoke management plan for patients and the key role of a dedicated specialist nursing team as well as clinical observations and challenges at Year 1 whilst reflecting on future plans.
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It was an honour to be invited to the recent Bloom Syndrome Patient & Family Conference in Frankfurt. The UK Blooms RDCN highlighted role of the specialist MDT clinics in the development of integrated care pathways @GSTTnhs @GSTT_SpecAmbu @EvelinaLondon
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Thank you @bbs__uk for another inspiring conference underpinning the power of collaboration & advocacy with unique personal insights & updates from leading experts in the field, @PhilBeales @GeneDrElizabeth, Dr ADrack,@GSTTnhs @GSTT_SpecAmbu @NHSEngland.
Our first Q&A was wonderfully insightful from speakers Prof. Claire Hogg, Prof. Phil Beales, and Dr. Shehla Mohammad, moderated by our Chair of Trustees Laura Dowswell. We encourage all attendees to ask away with any questions they might have about BBS! #BBSUKConference2024
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Delighted to have contributed to this landmark therapy with the pivotal support of @bbs__uk.The National BBS clinical teams are now working with NHSE on an implementation plan in the UK.@GeneDrElizabeth @PhilBeales @GSTTresearch @KathSparks1 @GSTT_SpecAmbu.
The approval of Setmelanotide is a welcome development for our BBS patients. Our clinical teams contributed data from trials at our Rare Disease Centre. Participating patients lost weight and reported an improvement in quality of life by not feeling hungry all the time.
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RT @MCDS_Therapy: 📢 Are you living with skeletal dysplasia, musculoskeletal conditions, or specific childhood cancers? . Have your say and….
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A kind, highly experienced clinician and a superb diagnostician defining the future of genetics @melitairving the topic of your next talk could be : “Clinical Trials : ask me anything” @EvelinaLondon @GSTT_SpecAmbu @GSTTresearch.
We adore @melitairving!. She's such a valued member of our consortium 💙.
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