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Scleroderma Society of Ontario Profile
Scleroderma Society of Ontario

@scleroderma_sso

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We are committed to promoting increased public awareness, advancing patient wellness and supporting research in scleroderma. #scleroderma #autoimmunedisease

Ontario
Joined August 2010
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@scleroderma_sso
Scleroderma Society of Ontario
6 months
Interested in volunteering with us? Contact karol@scleroderma.ca
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@scleroderma_sso
Scleroderma Society of Ontario
6 months
Have you registered yet? Join us in raising awareness for scleroderma this June -
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@scleroderma_sso
Scleroderma Society of Ontario
6 months
Did you know 1 in 2500 people are living with scleroderma?
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@scleroderma_sso
Scleroderma Society of Ontario
6 months
That's a wrap on Ciao Bella! Thank you to all who joined, supported, and donated to the Scleroderma Fellowship Program. Your impact will be felt by patients across Ontario. @SclerodermaCAN
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@scleroderma_sso
Scleroderma Society of Ontario
6 months
A highlight of the night: Meet our Scleroderma Fellow, Dr. Carlos-Enrique Toro-Gutierrez - leading the future of specialized scleroderma care in Ontario. @SclerodermaCAN @SylviaJonesMPP @NeilLumsdenMPP @StJoesHamilton @CoreUrban @MCirielloMPP
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@scleroderma_sso
Scleroderma Society of Ontario
6 months
Kicking off “Ciao Bella: A Rooftop Affair”! Tonight, we raise funds to support the Scleroderma Fellowship Program. Thanks to our incredible supporters: @SylviaJonesMPP @NeilLumsdenMPP @StJoesHamilton @CoreUrban @MCirielloMPP @SclerodermaCAN
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@scleroderma_sso
Scleroderma Society of Ontario
7 months
What is scleroderma? Scleroderma (sklair-oh-DUR-muh) Also known as, systemic sclerosis, is a group of rare diseases that involve the hardening and tightening of the skin. Scleroderma also may cause problems in the blood vessels, internal organs and digestive tract.
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@scleroderma_sso
Scleroderma Society of Ontario
7 months
The pain experienced in scleroderma is most frequently caused by joint stiffness, arthritis, joint contractures, tendon rub and nerve pain including carpal tunnel syndrome (numbness and tingling in the hands) and trigeminal neuralgia (pain in the face: https://t.co/Lcgpw5lXbz
scleroderma.ca
Receiving a scleroderma diagnosis can take time. Learn about the process today.
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@scleroderma_sso
Scleroderma Society of Ontario
7 months
Have you registered for your local walk yet?
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@scleroderma_sso
Scleroderma Society of Ontario
7 months
Our April newsletter is almost here! You don't want to miss our Meet the Doctor Section featuring Dr. Nathan Hambley!
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@scleroderma_sso
Scleroderma Society of Ontario
7 months
Every Donation makes an impact - support scleroderma research today:
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@scleroderma_sso
Scleroderma Society of Ontario
8 months
Article Highlight: The findings suggest that specific autoantibodies may serve as early markers for cancer in SSc patients, offering opportunities for earlier detection and targeted care. Full article:
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academic.oup.com
AbstractObjective. A close temporal relationship between SSc onset and cancer has been reported in anti-RNA polymerase III-positive patients. We investigat
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@scleroderma_sso
Scleroderma Society of Ontario
8 months
Did you know? 8/10 Canadians with scleroderma experience fibrosis and scarring in the lungs and weakened respiratory muscles, which leads to shortness of breath and persistent coughing. https://t.co/3Lf8igVU5g
scleroderma.ca
Receiving a scleroderma diagnosis can take time. Learn about the process today.
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@scleroderma_sso
Scleroderma Society of Ontario
8 months
Did you know 9/10 Canadians with scleroderma experience extreme sensitivity to cold, which causes the blood vessels in fingers and toes to constrict, which leads to reversible digital discolouration. https://t.co/3Lf8igVU5g #hardword
scleroderma.ca
Receiving a scleroderma diagnosis can take time. Learn about the process today.
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@scleroderma_sso
Scleroderma Society of Ontario
8 months
Every dollar brings us closer to new treatments. Support scleroderma research by donating today: https://t.co/2uwARxtuKQ #SclerodermaResearch
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@scleroderma_sso
Scleroderma Society of Ontario
8 months
Localized vs. systemic scleroderma: What’s the difference? Early recognition can improve patient care. Learn more: https://t.co/H43hgZHw7l #MedTwitter
scleroderma.ca
About Scleroderma Canada, Who we are, what we do, and why we do it.
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