You can now catch up and rewatch the 5 presentations from our most recent Research Information Session which was held in July. All of the presentations can be found on our YouTube channel or via this link: #researchsessions #videos #Youtube

Our Gloucestershire Support Group starts on Saturday 6 September from 10:30am-12pm. The group is still looking for a Coordinator, so if you live in the area and want to help deliver regular meetings for people living with PSP & CBD, please email volunteering@pspassociation.org.uk

Join millions who have switched to Grok.

This week’s #MondayMotivation is Zoe Pointon, alongside her husband and friends who climbed the Yorkshire 3 Peaks in memory of her Dad Jerry, who passed away from PSP in 2024. The team raised over £2,400! Join our Pathway to Progress here #fundraising

Are you supporting families living with PSP & CBD who need some equipment or a service? Then please share our PSPA Support Grants. We offer one-off £250 payments for people living with PSP & CBD. To learn more and how to apply, visit our website #grants

Did you miss our second Research Information Day in July? All sessions from the day are now available to watch in full either on our YouTube channel or via our website: What was your favourite session? Let us know in the comments below #Youtube #Research

If you’re supporting people living with PSP & CBD in or around Portsmouth, please share our new Support Group that starts on Tuesday 26 August at 11am. To attend, please ask them to contact volunteering@pspassociation.org.uk #supportgroups #portsmouth #mentalhealth

Applications are now open for the ABN 2026 ABN Clinical Research Training Fellowships. The PSPA has ringfenced £350,000 for a PSP or CBD specific application. All applications should be made via the ABN website: #ClinicalResearch #ResearchFunding #Training

We'll be broadcasting our Understood Research Appeal on BBC Radio 4 on Sunday 19 October. Our Trustee Jon Garrard will be sharing his Dad's experience with PSP what research means for his family. Donate to our Appeal here #BBCRadio4 #CharityAppeal #Radio

A big thank you to everyone who has taken on our Pathway to Progress! So far you’ve raised an incredible £32,000 and walked 1,280 miles! We’re so close to our total of £40,000. So why not get moving for the Pathway to Progress! Register here

Share our Men’s Carers Support Group with your networks. The group is run by Volunteer David Pugh, who uses his experience of caring for his wife to encourage conversations. The next meeting is on 18 August at 7pm on Zoom. They can sign-up here

Please share our Carer’s Guide to PSP & CBD with families you support. The guide features advice from family carers and provides support, knowledge, and encouragement. The guide is available to download from our website here: #CarersGuide #FamilyCarers

Are you a healthcare professional looking for resources about PSP & CBD? Take a look at our website. We have plenty of materials such as guides, education videos like our “It Could Be CBD” animation & more. Have a look and share them with your networks

Today’s #MondayMotivation is Rachel Mason and family who took on the Pathway to Progress in a 5km walk. Rachel and family raised over £2,100 in support of her Dad who has CBD. Sign-up to take part in the Pathway to Progress with colleagues #Fundraising

Emergencies can often catch people unawares. That’s why it’s essential for families to have an emergency plan in place. Please share our article about creating an emergency plan with people you support. The article’s featured on pg 28 in PSPA Matters:

Come along to the Wessex Atypical Parkinsonian Syndromes Study Day on Friday 19 September, 9am-5pm. It will cover many topics including diagnosis best practices. This is open to all healthcare professionals. Purchase tickets here #MedicalStudyDay #events

Enhance Your Expertise in Managing Falls and Mobility Challenges in PSP & CBD. Join us for our latest FREE Masterclass that will equip you with knowledge and tools to support people living with PSP & CBD. Find out more and register here #webinar #zoom

Applications are now open for the ABN 2026 ABN Clinical Research Training Fellowships. The PSPA has ringfenced £350,000 for a PSP or CBD specific application. All applications should be made via the ABN website: #ClinicalResearch #ResearchFunding #Training

This week’s #MondayMotivation is Louis Jones who ran the Boston Marathon in support of his fiancé’s family. Louis raised over £5,000 for PSPA, a truly incredible amount that will help people living with PSP & CBD. Thank you Louis! #Fundraising #BostonMarathon #CharityChallenge

Please help spread the word about our Regional Carers Groups. These groups are friendly and supportive environments where carers can share experiences. They take place monthly over Zoom. There's more information about regions and how to sign-up here

Our Cognition & Behaviour leaflet explains cognitive changes and provides ways for coping. Please share this leaflet with any families you are supporting, which can be downloaded from our website #informationsheet #leaflet #resources #support