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PFS Network Profile
PFS Network

@pfsnetwork

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Following
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PFSNetwork is a registered charity dedicated to Post-Finasteride Syndrome awareness and research. We provide the largest patient forum, propeciahelp, est. 2006

Worldwide
Joined March 2010
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@pfsnetwork
PFS Network
4 years
Post-Finasteride Syndrome has a disastrous impact on patients’ lives. Our latest video podcast series explores the horrific human cost of a hidden public health crisis. https://t.co/tDKsWLpdgK
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@pfsnetwork
PFS Network
2 years
The latest coverage from The Economist's 1843 Magazine about Post-Finasteride Syndrome: https://t.co/N15tNPGZ6v It's encouraging to see a step in the right direction for appropriate recognition of the disease.
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economist.com
Thousands of men claim that finasteride has given them devastating and long-lasting side-effects
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@John__Phipps
John Phipps
2 years
Something I'm excited is finally out: my @1843mag long read about finasteride, a baldness prevention drug that thousands of men say has given them debilitating, irreversible sexual side effects https://t.co/bfSU9yLluF
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economist.com
Thousands of men claim that finasteride has given them devastating and long-lasting side-effects
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@pfsnetwork
PFS Network
2 years
Marko spoke with us recently about his experience with Post-Finasteride Syndrome. https://t.co/fnsqERkHru
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@pfsnetwork
PFS Network
2 years
We spoke to Dr Alfonso Urbanucci recently on our YouTube channel about his upcoming research into Post-Finasteride Syndrome. https://t.co/YoOuUmCj3I
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@pfsnetwork
PFS Network
2 years
It's heartening to have such accomplished scientists working towards establishing pathomechanistic understanding.
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@pfsnetwork
PFS Network
2 years
Dr Hornig has recently been published in Nature and is a member of our scientific advisory board. We spoke about her previous work, what got her interested in investigating the disease and went deeper into her upcoming research.
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@pfsnetwork
PFS Network
2 years
A couple of weeks ago I sat down with Dr Nadine Hornig, an accomplished molecular biologist and lead investigator for PFS Network's upcoming research project at The University of Kiel. https://t.co/7WPcustt61
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@pfsnetwork
PFS Network
2 years
We are pleased to announce sample collection for our upcoming genetics study at The University of Tampere is ready to begin. We still need more volunteers so please apply if you are able and haven't already. https://t.co/faffjTFBfW
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@pfsnetwork
PFS Network
2 years
Thank you to Carlos for telling your story. We need more patients and loved ones speaking out. If you'd like to tell your story, please get in touch. https://t.co/VePULX8E3B
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@pfsnetwork
PFS Network
2 years
We are hosting a webinar for PFS patients, families and loved ones Sunday 1st of October. We'll be sharing some important updates about research with attendees. Please register here:
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pfsnetwork.org
Join quarterly webinars hosted by PFS Network to learn more about Post-Finasteride Syndrome and important progress being made.
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@pfsnetwork
PFS Network
3 years
Erik shares his experience with Post-Finasteride Syndrome. Very grateful to all patients speaking out. https://t.co/7NZOd4ZIeS
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@pfsnetwork
PFS Network
3 years
We are pleased to announce that today, our first investigation into Post-Finasteride Syndrome got underway at The Institute for Human Genetics, University Medical Center Schleswig-Holstein. Thank you to all patients who participated, and donors who supported this study.
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@pfsnetwork
PFS Network
3 years
An excellent article from @haaretzcom about PFS. Thank you to the authors for their work. https://t.co/TqMzcEndmq
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haaretz.com
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@pfsnetwork
PFS Network
3 years
If you have sent us an email to apply, we can assure you it has been received. We still need more volunteers for our first study in Kiel, and more interest in a possible genetics study. If you would like to participate, please email us at contact@pfsnetwork.org
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@pfsnetwork
PFS Network
3 years
Thank you to all those who have applied to participate in upcoming research at The Institute for Human Genetics and those who have expressed interest to participate in a possible genetics study.
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@pfsnetwork
PFS Network
3 years
We are delighted that world-leading researchers are interested in performing such a study using advancing sequencing technology. This represents further significant progress in understanding PFS. If you would like to get involved, please send an email to contact@pfsnetwork.org
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@pfsnetwork
PFS Network
3 years
Participants would be required to submit a blood sample, which can be done at a local clinic or hospital. You do not need to be of a particular age or symptom profile to participate. You do not need to travel.
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@pfsnetwork
PFS Network
3 years
PFS Network is seeking expressions of interest for a possible genetics study. This study is separate to planned research in Kiel. Studies of this nature need a high number of participants to be worthwhile. Before we move forward, we are asking patients interested to reach out.
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@pfsnetwork
PFS Network
3 years
If you're new to the issue of Post-Finasteride Syndrome, or interested in learning more about the dangerous factors creating a hidden public health problem, this article is a good place to start. https://t.co/uNUxrNy7Tj
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pfsnetwork.org
A series of commercial, regulatory and clinical factors is making Post-Finasteride Syndrome a hidden public health crisis.
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