Patient Chat
@patientchat
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Join the Empowered #patientchat discussions bi-weekly on Fridays at 10amPT | 1pmET. All welcome. Hosted by @power4patients #epatient #ptexp #patientadvocacy
United States
Joined April 2014
This is our last #PatientChat of 2023 due to attendance slowing down. We are interested in knowing what our audience would like to hear! Look out for our polls to give your input in the coming weeks!! #Patientchat
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Adolescent and Young Adult (AYA)Cancer Awareness Week is April 1st - 5th! At @Power4Patients, we're spotlighting AYA cancer patients' unique needs and experiences. Check out these partners for more resources: @CactusCancer @PicklesGroup
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Adolescent and Young Adult (AYA)Cancer Awareness Week is April 1st - 5th! At @Power4Patients, we're spotlighting AYA cancer patients' unique needs and experiences. Check out these partners for more resources: @StupidCancer @BrightSpotNetwork
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🎗️ April is Head and Neck Cancer Awareness Month! Let's come together to empower and support those affected by head and neck cancers! @Power4Patients offers valuable resources, guidance, and a supportive community for patients and their care partners: https://t.co/SCXsAcmCC9
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How you can help with exocrine pancreatic insufficiency research - even if you don’t have EPI! https://t.co/UBeH4oaHYW
diyps.org
If you’ve ever wanted to help with some of my research, this is for you. Yes, you! I am asking people in the general public to take a survey (https://bit.ly/GI-Symptom-Survey-All) and share their...
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Keep the conversation going between chats with hashtag #PatientChat
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#PatientChat is your community. Thanks for helping make it great. Reach out to @power4patients and @patientchat anytime!
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Thank you for having us! We enjoyed the opportunity to take part in these important conversations. Feeling empowered is such a vital piece of cancer care. Please visit us at https://t.co/bLZcgBiXom or on our social media as @bagitcancer! #patientchat
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I'd like to thank Brandi from @bagitcancer for joining us today and sharing your incredible resources! #PatientChat
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CT: Empowerment, like treatment, is not one size fits all. Each person has to define for themselves what they need. And, it's tough for many of us, but it is worth the discomfort to feel like you have a voice - that is so important. #patientchat
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I would add keeping your voice is also important. Don't change for clicks or likes, tell your story in your own voice. Build it and they will come. #PatientChat
@abrewi3010 You're right and part of what makes it so hard is that it looks different for everyone. There is no "perfect" answer for everyone. Each person's needs are different. Finding a voice to share what that looks like for you is step 1! #patientchat
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A4 remembering & accepting that empowerment is not a state, it's a verb. one must be willing to advocate, actively listen (shutting ones mouth), and believe there is always more to learn. #PatientChat
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A4 the hardest barrier is defining what exactly does empowerment mean. is it simply asking questions, is it being able to discuss in great detail with your team medications. what is empowerment? #PatientChat
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Please take a moment and vote for Grace! #PatientChat #ChronicPain
Why is a patient advocate up for a HIMSS Changemaker Award in the Women in Health IT category?!?! Because patients, caregivers, care partners CAN & DO impact health innovation, research, policy. Advocacy inspires action and real change. Please vote: https://t.co/L4GtUdDDqp
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CT: Time to start sharing closing thoughts (CT) on what you learned, were reminded of, or can implement. Start your tweet w/ CT: #PatientChat
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@sirbreakeven Our bags are available in English and Spanish. And, we currently have cancer-specific bags for Chronic Lymphocytic Leukemia #CLL, #LungCancer, #MetastaticBreastCancer, Myeloproliferative Neoplasms (#MPN). #ProstateCancer, #StomachCancer, and #UterineCancer. #PatientChat
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🎯🎯🎯 #PatientChat
T4A4: Access, DEI, awareness of resources, language, culture, lack of education, fear/anxiety... Barriers have many faces. Most predominantly it looks like a lack of access - to information, medical providers, and information that meets them where they are. #patientchat #cancer
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T4A4: Access, DEI, awareness of resources, language, culture, lack of education, fear/anxiety... Barriers have many faces. Most predominantly it looks like a lack of access - to information, medical providers, and information that meets them where they are. #patientchat #cancer
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T4: What barriers can someone face on their path to empowerment? What can help to overcome those barriers? #PatientChat
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T3: We love to hear from more patients, though, and would be interested in others' answers - what is missing from your toolbox? How can organizations help? We're here and listening!! #patientchat
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