OpenTrials
@opentrials
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All the data, on all the trials, linked. An @okfn project led by @bengoldacre. Also working on #OpenTrialsFDA: https://t.co/4PjeG09BBQ
Joined February 2015
End of OpenTrials Phase 1: A summary https://t.co/JBqExQ58M0
#clinicaltrials #medicine #medicalresearch #pharma #openscience #opendata
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@COMPare_Trials We sent correction letters on every misreported clinical trial in the world's biggest medical journals, to see how the editors - and the trialists - would react. What happened next? https://t.co/Dzfl1hJ37t
https://t.co/0IAUMGAMqm ...
trialsjournal.biomedcentral.com
Background Discrepancies between pre-specified and reported outcomes are an important and prevalent source of bias in clinical trials. COMPare (Centre for Evidence-Based Medicine Outcome Monitoring...
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I am very pleased to say that TWO NEW PAPERS are out TODAY from my group. They represent one of the most challenging, interesting, and exciting projects I have ever been involved in, across my entire 44 years of nerdy life-course. Ladies and gentlemen: @COMPare_Trials is out..
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On day 12 of advent, we recognise Open Trials @opentrials
https://t.co/CBZwwFq6YR sharing data from trials in health - in the Christmas spirit of giving let's share! #whywedoresearch
https://t.co/zNIseEJYkE
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Half of European clinical trials have not complied with EU rules on reporting results, finds new study https://t.co/pwTtmcW6ue
@bengoldacre et al
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Half of Europe's clinical trials - 49% - haven't reported results on the EU register and are breaking the EU's rules. The majority of these unreported trials are from Europe's universities and hospitals. Read about the new EU TrialsTracker https://t.co/YiwGq8o5F6
#AllTrials
alltrials.net
A new interactive website, eu.trialstracker.net, shows that 49% of clinical trials on the EU clinical trials register have not reported results. EU rules say clinical trial results must be reported...
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Statistics on reported #clinicaltrials data of the #FDA shows there is a lot of room for improvement! #transparency #opentrials #alltrials
BING BONG NEW DATA There are now 228 trials reported out of 376 due under FDAAA. That's only 60.6% reported. Fines @US_FDA could have claimed: $35,320,157. Fines @US_FDA have claimed: $0. https://t.co/9ltjnVCazk
#AllTrials
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"The best currently available evidence shows that about half of all #clinicaltrials don't report their results. Doctors and patients can't make informed choices about treatments, when half the data is missing." - great initiative in @bmj_latest to fix this problem! #transparency
FANFARE. DRUMS. Introducing a new regular series in the BMJ. "Unreported Clinical Trial Of The Week." #alltrials
https://t.co/Mn9iWtLKOD
https://t.co/64emALBheD
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New paper exploring discrepancies on #clinicaltrials registries, using @opentrials data https://t.co/orFrg6n27b Kudos to @jessicajaneflem & @bengoldacre (@EBMDataLab) cc: @nlm_news @NIH @EMA_News @OKFN @vitorbaptista @jwyg @LJA_Foundation @StuartBuck1 @TranspariMED @openscience
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Have a read of this to find out what's on @opentrials recommended reading list & how you can help them make #ClinicalTrials data accessible!
End of OpenTrials Phase 1: A summary https://t.co/JBqExQ58M0
#clinicaltrials #medicine #medicalresearch #pharma #openscience #opendata
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Over 3,000 clinical trials sponsored by top UK universities are missing results #clinicaltrials #EBM #openscience
https://t.co/LEjtAfaxSp
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Great to see @HelloHunnicutt use @opentrials API in the Clinical trial data viz tool https://t.co/TgYwlI8DmF
#opentrials
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Clinical trial data viz tool I made using the @opentrials API (Still the beta of the API so the data is incomplete) https://t.co/uHyKV7JB9y
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Tomorrow! Includes @opentrials data
Dataharvest #EIJC17 starts with a pre-conference Hack Day on Thursday 18 May. Info + registration: https://t.co/5kWrsBtqnZ
#datajournalism
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I'll be speaking about @opentrials at this event on 20th May: https://t.co/FT1vJi8VwV
#ddj #datajournalism #EIJC17 #clinicaltrials #medicine
The #EIJC17 & #Dataharvest is the most relevant networking event for investigative and #ddj journalists in Europe.
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Introducing the 4th Global Open Data Index – Advancing the State of Open Data Through Dialogue https://t.co/CzYXnkNU9J
#GODI16
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Just 1 year on from the #Trialsjournal article & what has @opentrials achieved? *spoiler* it's impressive!
opentrials.net
TL;DR – OpenTrials has finished Phase 1 funding – this means that the team is having a break, with the project on hold until we secure Phase 2 funding (we’re currently working on it). I…
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Impressive achievement from the people at @opentrials. Looking forward to phase 2 #OpenData
OpenTrials has reached the end of Phase 1 - read a summary of what we've accomplished + some challenges & successes https://t.co/vjNlpAdC6z
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We've just added 2 new data sources (@GSK & @ISRCTN) to OpenTrials following helpful changes to their licences: https://t.co/vCJpqERo9L
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