n-Lorem Foundation
@n_lorem
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Non-profit discovering, developing, and providing personalized experimental ASO medicines to treat nano-rare patients โ for free, for life
Carlsbad, CA
Joined July 2020
Last month, Harlow became the second patient with TUBB4A and the first female ever treated with the medicine developed by the n-Lorem Foundation. Newsweek article: https://t.co/NmNvtqGWbf
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Day 2 of the Nano-rare Patient Colloquium is starting soon! ๐น Watch live here:
nlorem.org
3rd Annual Nano-rare Patient Colloquium 2025 View Agenda Day1 Day2 October 20-21, 2025 Cambridge, Massachusetts Days to the Event About the Event
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It's bright and early on the East Coast, and Day 1 of the Nano-rare Patient Colloquium is happening now! ๐ Watch live here:
nlorem.org
3rd Annual Nano-rare Patient Colloquium 2025 View Agenda Day1 Day2 October 20-21, 2025 Cambridge, Massachusetts Days to the Event About the Event
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With #NRPC25 just around the corner, weโre so happy to recognize and celebrate these incredible organizations! Their support makes this gathering possible and helps create an inspiring experience for our entire nano-rare communityโyou guys absolutely rock!
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Don't miss any of these panels featuring some of our incredible patient family members! #NRPC25
https://t.co/WUbKDNNBFD
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Meet Grace Hoyt โ a bright, witty high schooler with a passion for singing, art, and romantasy audiobooks. Grace also happens to live with a rare disease that has left her legally blind, unable to feel pain, and unsteady on her feet. https://t.co/2zJaOJA7PZ
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Every piece tells a story of courage, creativity, and connection. Explore our communityโs art and bid with purpose: https://t.co/d4QSayh00Q.
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Hosted by @biogen, the Colloquium brings together leading investigators and physicians with patients, partners and supporters to discuss progress in addressing nano-rare illnesses. https://t.co/JQ2sYDx2Wj
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๐๐ซ๐ญ ๐ฐ๐ข๐ญ๐ก ๐ก๐๐๐ซ๐ญ ๐ข๐ฌ ๐๐๐ฅ๐ฅ๐ข๐ง๐ ! ๐ 30+ one-of-a-kind art pieces are waiting for your bid at https://t.co/d4QSayh00Q.
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Day 1 of the #NRPC25 is shaping up nicely. Stay tuned for the latest updates. #NanoRare
https://t.co/WUbKDNNBFD
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Weโre proud to recognize all individuals living with GNAO1. This condition, caused by a mutation in the GNAO1 gene, is often associated with hypotonia, developmental delays, severe seizures, and movement disorders. #GNAO1Warriors #GNAO1Awareness
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Momentum is building! Be part of the actionโbrowse and bid on 30+ nano-rare patient artworks today at https://t.co/d4QSayh00Q.
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Happy to welcome Dr. Jennifer Bain as an #NRPC25 speaker! @BainBrainLab will discussโฏthe challenges of long-term follow-up in pediatric neurological patients, focusing on a nano-rare patient with 3 years of ASO treatment. https://t.co/WUbKDNNBFD
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โจ ๐๐จ๐ฎ๐ซ ๐๐ข๐ ๐๐๐ง ๐ก๐๐ฅ๐ฉ ๐๐ก๐๐ง๐ ๐ ๐ ๐ฅ๐ข๐๐. โจ Each brushstroke tells a story.๐ผ๏ธ Explore 30+ original pieces online at https://t.co/d4QSayh00Q
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Transmitter Features Editor Brady Huggett guest-hosts this episode of the PEP podcast. He sits down with Dr. Stan Crooke, to reflect on the strides made over the past yearโinsights that will help shape the discussions at this yearโs Colloquium. https://t.co/Lh0SXSUyro
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