Myahsjourney
@myahsjourney
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Following
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Our beautiful Myah and living life everyday with Hydrocephalus, Epilepsy, Tracheoesophageal fistula, peg Feeds, hearing and vison issues. Follow our journey
Belfast, Northern Ireland
Joined March 2021
Improvement today and our girl is feeling better. Hopefully on the turn. Thank you everyone for the kind words 🙏❤️
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Never gets any easier. Every hospital admission feels like one step forward and two back. Tough few days for the wee woman - hopefully better days ahead 💔❤️
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And we're back to our cheeky self. Feeling good and back to school. ❤️
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A tough end to the week for our little Myah after a great start being back to school. We ended up in the hospital again via ambulance with more seizures. Hopefully we can get this sorted ASAP as it's not fair on her. She goes through so much 💔
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Another trip to hospital via ambulance - Our beautiful Myah is having a tough time with seizures so hoping we can get some answers as to what's causing it and find the right medication to help control this horrible disease. Not fair on her 💔 #EpilepsyAwareness #seizures
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Our little Myah back in hospital but in the best place ATM. Hopefully get some answers and see what is causing these seizures. 💔 Hopefully she gets a wee break soon.
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P3 - completed ✅ SCHOOLS OUT FOR SUMMER 🌞 Another year of school over for Myah and once again lots of progress which we are very proud of. We are so grateful to all those who work with our girl who help make her day (and our lives) that little bit easier. Thank - you ❤️🥰
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Another amazing 4 day stay for our girl at @nichildrenshosp - how lucky are we to have so many amazing facilities like this. Mummy and daddy well refreshed and wee woman spoilt as usual. Thankyou Hospice 💛💜
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Superstar award for our girl this week at school. Doing very well practicing her steps #godlovesatryer 💪
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Can we give our wee Myah a shout out and get others to follow her on this amazing journey she is on. We are overwhelmed by the genuine love and support we receive every day defo lifts our spirits- ps.. COYS 🤍
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Our wee Myah back in hospital last week and so missed her trip to DISNEY with @MakeAWishUK (for the 2nd yr in a row)- thankfully now at home and on the mend - Give me good health over anything in this world. Our wee trooper ❤️
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@JeffStelling big ask I know... but any chance we could get u wearing something purple today - In Support of MYAH and world epilepsy day - would mean so much 💜
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Today we wear purple to support and raise awareness for world epilepsy day 💜💜
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ODD SOCKS DAY IN SCHOOL. Supporting our friends and world down syndrome day ❤️
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