Marianne Sharko
@marsharko
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Joined September 2015
A really important study by @marsharko and colleagues. This remains one of our enduring challenges, especially in the new era of health data transparency. I am hopeful that a new Requestor Preferences Exception in the @HHS_TechPolicy HTI-2 Proposed Rule will help improve privacy
More than half of older adolescents and young adults would not share sensitive information with providers if parents could see their information through an online portal. https://t.co/joAyb3QO7k
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Read our paper on Equitable Interoperability Through Precise Control of Sensitive Health Information: An Emerging Pathway to Health Equity in Annals of Internal Medicine
acpjournals.org
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NEW: Shifting into Action: from Data Segmentation to Equitable Interoperability for Adolescents (and Everyone Else) https://t.co/B3JmEolBou
@chethanr @hgalvinmd @marsharko @SurvivorshipIT
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Thanks so much for highlighting me @amianiwg!
Our July #NIWG Member Highlight is Meghan Reading Turchioe @MeghanTurchioe! Dr. Turchioe is currently an Assistant Professor at @ColumbiaNursing. She completed her postdoc training at @WeillCornell, PhD at @ColumbiaNursing, MPH at @GWpublichealth and BSN at @BostonCollege.
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Hot off the press! Dr. Marianne Sharko of #WCMPeds joins @FYInformatics to discuss policy and the practice landscape of the 21st Century Cures Act and its focus on adolescent health data sharing and consequences. #curesact
Great news! @AMIAInformatics For Your Informatics Podcast's Episode 31 is ready for your listening -> https://t.co/QmXs6wP8lz. Join guests @marsharko @trentrosenbloom and host @docacm in this important discussion. #CuresAct #patientportals @WCMPopHealthSci @WCMpeds
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For unified organizational approach and policy when it comes to Information Blocking mandate, it’s critical to have alignment and agreement between health IT, patient engagement, operational leadership and health information management.
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There are differences in how patients want to see their health information. We need to be cognizant of health literacy, numeracy & factors that influence patients’ comprehension of their health data. Great work! @StephanieNDR @sabrina_mangal @MeghanTurchioe @anniecmyers #AMIA2022
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Older adults want their collected health information returned. Ensuring access, privacy, and transparency of health information can help us become more trustworthy researchers. Keep up the great work! @StephanieNDR @sabrina_mangal @MeghanTurchioe #AMIA2022 @ColumbiaNursing
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So excited to discuss Challenges and Strategies for Protecting Adolescent Patients in the Setting of the 21st Century Cures Act with this impressive panel 8:30 tomorrow (Monday) morning in the Jefferson Room!! @trentrosenbloom @culehmann @jsancker @LinaSulieman #AMIA2022
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If you're a teen, your medical privacy protections vary a lot from state to state. That's bad for patients and providers. Read more in our new article in @aap_peds.
Across the 50 states, laws around adolescents' privacy and ability to consent for their own healthcare vary widely, and do not align with best pediatric practice as curated by the @AmerAcadPeds. This is particularly important because /1
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Our study highlights challenges in a system where state-by-state variability in adolescent consent laws complicates clinical data exchange and the ability of adolescents to access confidential sensitive healthcare, such as mental and reproductive health.
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State laws vary in the consent and privacy of adolescent patients for services including mental health care, contraceptive management, immunizations, and more. Dr. Marianne Sharko and colleagues observed the impact of these differences in @AmerAcadPeds.
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