Mark’s 12th birthday is in 5 days! We hope you’ll join us in celebrating Mark’s birthday this year by making a donation so we can continue working toward our mission. Since founding The Mark Shaparin Foundation one year ago, we’ve gone to dozens of conferences and met hundreds of

Let’s make Mark’s 12th Birthday Fundraiser one to remember! Donate from now until September 9th!. This summer, The Mark Shaparin Foundation has been — attending conferences, walk-a-thons, and research symposiums — with each activity bringing us one step closer to fulfilling our

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Ever the thrill seeker, Mark loved, loved, LOVED roller coasters! 🎢 . Today is National Roller Coaster Day. Mark’s favorite coasters were Space Mountain and Tron (pictured with brother Sam) both at Magic Kingdom in Disney World. Share your favorite coaster in the comments

Just like the center filling of an Oreo cookie, Mark had all the amazing qualities of a middle child: adaptable, independent, loyal, peacemaker, easy going, humble with superb social skills. Honoring all the amazing middle children today on National Middle Child Day!

Today is National Book Lovers Day! Mark was a huge book lover, indeed. Mark absolutely loved non-fiction and science fiction books, but definitely appreciated a good fantasy story as well. One of his favorite authors was Jules Verne, who wrote Journey to the Center of the Earth

We just finished setting up our booth # 2342 in the South Region at the American Academy of Family Medicine’s FUTURE - The National Conference For The Future of Family Medicine. If you are attending the meeting in Kansas City, Missouri, please stop by our booth to learn more

It’s Shark Week! 🦈 .One of Mark’s favorite weeks! 🏊 .He loved going to the aquarium 🐠 and learning about all of the animals 🐟 but definitely had a fascination for the toothiest and scariest of sea creatures! 🌊 Wish we were watching Shark Week on TV together while eating

On behalf of The Mark Shaparin Foundation, I would like to thank the American Society of Pain and Neuroscience (ASPN) for their generous support. If you are attending the 7th Annual Meeting of the American Society of Pain and Neuroscience in Miami Beach please stop by booth

At Chicago O’Hare International Airport, I saw not one, but two different posters related to epilepsy. First I saw the Epilepsy Foundation of Greater Chicago sign calling attention to the fact that epilepsy is common and that 10% of all people will have at least one seizure in

The Mark Shaparin Foundation is honored to be invited to attend the inaugural Chicago Monogenic Epilepsy Summit (CHIMES), led by Data for the Common Good with sponsorship from the Chan Zuckerberg Initiative. Working together with clinicians, researchers, industry partners,

Today is Bastille Day, 🇫🇷 the National Day of France and a significant day during the French Revolution. Mark loved French culture, the French language, French history and especially French food. 🥘 🐌 🥖.We would usually be enjoying macarons on Bastille Day and Mark would be

We are honored that Mark was included on Board 9 of the One Last Wave Project. We encourage everyone to learn more about @OneLastWave 🏝️ 🐚 🏄 .We often wonder if it is a coincidence that Mark’s name was included on Board 9 as the number 9 was Mark’s favorite number and he was

Just wanted to spread kitten love 🐱 as today is National Kitten Day. 🐈‍⬛ Mark loved his kittens from day one; he discovered quickly that they made the best pillows. 🐈 💙 💜 🐾. #markshouldstillbehere .#nationalkittenday. Sudden unexpected death in epilepsy (SUDEP) is the second

Mark was always a very proud American and for some reason, (that even he didn’t know), he absolutely LOVED the Liberty Bell. On behalf of the Mark Shaparin foundation, have a safe Independence Day! 🔔 🧨 🇺🇸 . Learn more about Mark at . #4thofjuly

Today is National Sunglasses Day. Mark actually didn’t wear sunglasses very often except when he heard the song . "Sunglasses at Night" by Corey Hart. Mark really loved this song!  He would ask for us to play it when we were driving. He would then put on his sunglasses and

On behalf of The Mark Shaparin Foundation, we would like to thank the Joanna Sophia Foundation for inviting us to table a their 6th Annual Fun Run/Walk Around the World in 5K held today in Queens, New York. The event was an amazing success with over 3,000 participants. Many

Many people have never heard of Sudden Unexpected Death in Epilepsy (SUDEP) and when they do, they think that SUDEP is really rare. Along the same lines, many people believe that organizations such as The Mark Shaparin Foundation are also really rare. However, there are many

Sudden Unexpected Death in Epilepsy (SUDEP) takes more than 8 lives every day and is the leading cause of death in patients with epilepsy. However, most doctors including pediatricians have never heard of it. This is why The Mark Shaparin Foundation is exhibiting today at the

Child and young adult loss has a profound and devastating impact on everyone in a community. Earlier this week, Forbes posted an article about a method to help young adults through grief. In the article, Epilepsy is specifically mentioned as a significant cause of death in