Lupus UK Profile
Lupus UK

@LUPUSUK

Followers
10K
Following
4K
Media
3K
Statuses
13K

Lupus UK is the only national registered charity supporting people affected by #lupus and assisting those approaching diagnosis. Reg Charity: 1200671

UK
Joined February 2010
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@LUPUSUK
Lupus UK
7 months
RT @RAIRDA_org: Research results show the importance of COVID vaccination and a personalised approach for RAIRD patients 👉.
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@LUPUSUK
Lupus UK
7 months
Nominate LUPUS UK (Charity No 1200671) for a chance to win ÂŁ1,000 in the #MovementforGoodAwards.The first draw of 2025 will take place on Monday, so please vote by midnight on Sunday 26th Jan: ďż˝. As a small charity, this grant will make a huge differenceđź’ś
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@LUPUSUK
Lupus UK
7 months
Join us in March for our Virtual Dog Walk, an exciting new fundraising challenge for 2025!! . For more information and to sign up, visit: #Lupus #SLE #VirtualDogWalk #Fundraising
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@LUPUSUK
Lupus UK
7 months
RT @LUPUSUK: The University of the West of England (UWE), Bristol, is looking for individuals of ethnic minorities diagnosed with Systemic….
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@LUPUSUK
Lupus UK
7 months
RT @LUPUSUK: The University of the West of England (UWE), Bristol, is looking for men diagnosed with Systemic Lupus for a survey study. You….
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@LUPUSUK
Lupus UK
7 months
RT @EATC4Children: Amongst friends for lunch and an information sharing discussion today, thanks so much to @LUPUSUK for braving this chill….
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@LUPUSUK
Lupus UK
8 months
The National Office is now closed for the holidays and will re open on 02/01/25. THANK YOU to our incredible fundraisers, volunteers, trustees, ambassadors, donors, and all who supported the charity throughout 2024 in helping us make a difference for people living with #lupus đź’ś
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@LUPUSUK
Lupus UK
8 months
The University of the West of England (UWE), Bristol, is looking for men diagnosed with Systemic Lupus for a survey study. Your survey response will help develop appropriate support for SLE patients in the UK. Take part here:
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@LUPUSUK
Lupus UK
8 months
The University of the West of England (UWE), Bristol, is looking for individuals of ethnic minorities diagnosed with Systemic Lupus for a survey study. Your participation will help in developing suitable support for SLE patients in the UK. Take part here:
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@LUPUSUK
Lupus UK
9 months
Join over 9,000 people who have already spared 60 secs to take @WeAreSRUK's online symptom test. #BePartOfTheAnswer by helping to unlock potential breakthroughs in diagnosis and treatment for debilitating autoimmune conditions.
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@LUPUSUK
Lupus UK
9 months
Spare 60 seconds to take @WeAreSRUK's online Raynaud's symptom test. See if you could have Raynaud's and #BePartOfTheAnswer in helping unlock potential breakthroughs in diagnosis and treatment for debilitating autoimmune conditions like scleroderma.
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@LUPUSUK
Lupus UK
9 months
What does good care & treatment for rare disease mean to you?.The Rare Disease Quality Statement Project need your input to develop a set of quality statements for rare disease. Complete the survey on their site: Or read our FAQs:
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@LUPUSUK
Lupus UK
9 months
What is CAR-T cell therapy and what does it mean for people with lupus?.You may have seen news articles about a new treatment called CAR-T. It's still in the research phase, with more trials starting soon. You can find out more in our FAQs post:
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@LUPUSUK
Lupus UK
10 months
RT @dalilatm: 🤩 Since our 1st meeting in 2019, time has flown by! Fast forward to today’s meeting with 2️��� wonderful guest speakers helping….
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@LUPUSUK
Lupus UK
10 months
It’s #BoneAndJointWeek and we’re calling for integrated care that supports people with MSK conditions. Living with chronic pain alongside mental health struggles like anxiety & depression is all too common. We need accessible, holistic care to improve wellbeing.#JoinedUpForJoints
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@LUPUSUK
Lupus UK
10 months
Musculoskeletal (MSK) health is essential for a healthy, productive life. On World Arthritis Day, we are advocating for more collaboration health and social care to prevent and manage MSK conditions more effectively. #WAD #JoinedUpForJoints #WorldArthritisDay @WeAreARMA
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@LUPUSUK
Lupus UK
10 months
RT @Yuz6Yusof: It’s #Lupus Awareness Month in the UK 🦋. What a better way to celebrate and increase awareness by exchanging knowledge and e….
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@LUPUSUK
Lupus UK
11 months
RT @birdbathcharity: October is #LupusAwarenessMonth Visit @LUPUSUK for advice and support. BIRD also has a series of #Lupus podcasts recor….
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@LUPUSUK
Lupus UK
11 months
Today marks the start of #LupusAwarenessMonth đź’ś. This important month takes place during October every year in the UK and gives us the opportunity to raise awareness of #lupus amongst the public and medical profession. Get involved here:
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@LUPUSUK
Lupus UK
11 months
We have one filming slot available for our upcoming clinical trial video, aimed to help people better understand what’s involved in them. Please share with anyone who may be interested! . For more information, contact Nakita@LupusUk.org.uk. #ClinicalTrial #Lupus #Research #SLE.
@LUPUSUK
Lupus UK
11 months
We are looking for volunteers with #lupus who have taken part in a #ClinicalTrial for an upcoming video. If you are interested in taking part, please email Nakita@LupusUk.org.uk for more information. #Research #Medicine #SLE #Patient
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