Lupus UK
@LUPUSUK
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The national charity for #lupus. We are no longer active on X. Please follow our other platforms or visit https://t.co/r24d3EHXnS for more information.
UK
Joined February 2010
Research results show the importance of COVID vaccination and a personalised approach for RAIRD patients 👉 https://t.co/gxbLDWbRiN
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Nominate LUPUS UK (Charity No 1200671) for a chance to win £1,000 in the #MovementforGoodAwards The first draw of 2025 will take place on Monday, so please vote by midnight on Sunday 26th Jan: https://t.co/znQHr9BdTk🔗 As a small charity, this grant will make a huge difference💜
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Join us in March for our Virtual Dog Walk, an exciting new fundraising challenge for 2025!! For more information and to sign up, visit: https://t.co/Vzep0XzSaZ
#Lupus #SLE #VirtualDogWalk #Fundraising
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The University of the West of England (UWE), Bristol, is looking for individuals of ethnic minorities diagnosed with Systemic Lupus for a survey study. Your participation will help in developing suitable support for SLE patients in the UK. Take part here: https://t.co/QS1KkK6isD
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The University of the West of England (UWE), Bristol, is looking for men diagnosed with Systemic Lupus for a survey study. Your survey response will help develop appropriate support for SLE patients in the UK. Take part here: https://t.co/QS1KkK6isD
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Amongst friends for lunch and an information sharing discussion today, thanks so much to @LUPUSUK for braving this chilly weather to join us in the #instituteinthepark #alderhey We hope you enjoyed it! #bettertogether #partnership #lupus #childhoodillness #lunch #eatc4children
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The National Office is now closed for the holidays and will re open on 02/01/25. THANK YOU to our incredible fundraisers, volunteers, trustees, ambassadors, donors, and all who supported the charity throughout 2024 in helping us make a difference for people living with #lupus 💜
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The University of the West of England (UWE), Bristol, is looking for men diagnosed with Systemic Lupus for a survey study. Your survey response will help develop appropriate support for SLE patients in the UK. Take part here: https://t.co/QS1KkK6isD
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The University of the West of England (UWE), Bristol, is looking for individuals of ethnic minorities diagnosed with Systemic Lupus for a survey study. Your participation will help in developing suitable support for SLE patients in the UK. Take part here: https://t.co/QS1KkK6isD
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Join over 9,000 people who have already spared 60 secs to take @WeAreSRUK's online symptom test. #BePartOfTheAnswer by helping to unlock potential breakthroughs in diagnosis and treatment for debilitating autoimmune conditions. https://t.co/bA0nBDsxro
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Spare 60 seconds to take @WeAreSRUK's online Raynaud's symptom test. See if you could have Raynaud's and #BePartOfTheAnswer in helping unlock potential breakthroughs in diagnosis and treatment for debilitating autoimmune conditions like scleroderma. https://t.co/bA0nBDt5gW
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What does good care & treatment for rare disease mean to you? The Rare Disease Quality Statement Project need your input to develop a set of quality statements for rare disease. Complete the survey on their site: https://t.co/06XbJe5P2G Or read our FAQs: https://t.co/dlfRhCOjAf
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What is CAR-T cell therapy and what does it mean for people with lupus? You may have seen news articles about a new treatment called CAR-T. It's still in the research phase, with more trials starting soon. You can find out more in our FAQs post: https://t.co/dQKTHGC6bA
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🤩 Since our 1st meeting in 2019, time has flown by! Fast forward to today’s meeting with 2️⃣ wonderful guest speakers helping us understand roles & holistic care in #lupus @mel_chieza 🙌 Thanks everyone who has joined us on this journey & shared the many faces of lupus! #Cardiff
We're very pleased to announced the first meeting of our new Cardiff Lupus Support Group on 30th March 2019! We hope to meet lots of you there. #Cardiff #Lupus @WalesOnline @cardiffcouncil @CV_UHB @CAVOGCHC
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It’s #BoneAndJointWeek and we’re calling for integrated care that supports people with MSK conditions. Living with chronic pain alongside mental health struggles like anxiety & depression is all too common. We need accessible, holistic care to improve wellbeing.#JoinedUpForJoints
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Musculoskeletal (MSK) health is essential for a healthy, productive life. On World Arthritis Day, we are advocating for more collaboration health and social care to prevent and manage MSK conditions more effectively. #WAD #JoinedUpForJoints #WorldArthritisDay @WeAreARMA
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Today marks the start of #LupusAwarenessMonth 💜 This important month takes place during October every year in the UK and gives us the opportunity to raise awareness of #lupus amongst the public and medical profession. Get involved here: https://t.co/ukOGZzHnlU
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We have one filming slot available for our upcoming clinical trial video, aimed to help people better understand what’s involved in them. Please share with anyone who may be interested! For more information, contact Nakita@LupusUk.org.uk #ClinicalTrial #Lupus #Research #SLE
We are looking for volunteers with #lupus who have taken part in a #ClinicalTrial for an upcoming video. If you are interested in taking part, please email Nakita@LupusUk.org.uk for more information. #Research #Medicine #SLE #Patient
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