Suzan Jackson
@livewithmecfs
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Writer with ME/CFS & Lyme & son w/#MECFS & #Lyme; love to travel, read & spend time outdoors w/family & friends; write 2 blogs & author of chronic illness book.
Delaware
Joined March 2014
Newly Updated #MECFS Treatment Summary - overview of treatments that have most helped my sons & I over the past 15 years. We now live active, semi-normal lives again! Use this info to share w/your doctor & improve your condition & quality of life, too. https://t.co/DXhMceKI6n
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Grateful Today to be sleeping in a clean, dust-free room tonight. Grateful I managed the dusting & very grateful to my husband who does all the rest! What are you grateful for today?
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Weekly Inspiration: A Plan B Day - How to use the concept of a "Plan B Day" to help prioritize, reduce stress & listen to your body. It's a simple concept that truly improved my life with chronic illness! https://t.co/BDxGEaKP1I
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Great Weekend Binge! Tracker @CBS @paramountplus We are loving this suspenseful crime show with a lot of heart, starring Justin Hartley as a tracker who finds missing persons, now back for season 3. Love the travel & outdoors, too! My review & a trailer: https://t.co/13QqVjyDVb
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Grateful Today for being able to run some long overdue errands and that the weather is still nice enough (cool but nice!) to enjoy the convertible. What are you grateful for today?
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Low-dose naltrexone (LDN) is a medication used in tiny amounts that helps to normalize the immune system, so it has the potential to help improve all symptoms in #MECFS #longCOVID #MS #autoimmune. More on our experiences with it & resources for more info: https://t.co/WTRyhwEB8f
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Grateful Today for good energy and no aches for the first time in a month!! Grateful I was able to record 3 videos and weed the garden a bit. Also grateful these anemones have bloomed about 5 times this year, including this late! What are you grateful for today?
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5-Stars: “Essential reading for coping & thriving. Sue gives hope to millions of us dealing w/invisible illnesses without resorting to platitudes. Her recs for getting thru dark periods were so encouraging I'm incorporating her advice into my life." https://t.co/kpTn1cuBVO
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Grateful Today for managing to go to my neighborhood book group, in spite of my continuing relapse. I was achy but it was good to see everyone and get out on this beautiful fall day! What are you grateful for today?
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Orthostatic Intolerance (OI) in ME/CFS and long-COVID (and fibro, Lyme, EDS) - This video provides an overview of OI (also known as dysautonomia and POTS), tips on how to diagnose, and LOTS of options for treatment. Treating OI changed our lives!
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Grateful Today for a quiet day at home, for reduced immune symptoms, and for this beautiful view from our back deck! What are you grateful for today?
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I’m trying a new experimental treatment for ME/CFS & would love to hear if anyone else has tried it: microdosing of GLP-1s. Experience has shown that people with autoimmune disease who take it for weight loss often see improvement in their underlying disease. Anyone tried it?
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From my book: “You may be surprised at how much of the natural world you can experience from simply lying outside your home for a few minutes and at how restorative it can feel.” https://t.co/kpTn1cu46g
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Grateful Today for the time together with our family this weekend and for the chance to enjoy this beautiful place. I went to sleep looking out at the lake, woke up to this view, spent time by or on the water, and enjoyed fabulous sunsets! What are you grateful for today?
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Many people with #MECFS & #longCOVID get worse this time of year in part due to infection season. Just being exposed to infections triggers immune activation. Here, how to effectively treat infections AND improve immune function ... which helps everything! https://t.co/Qx2ImLL7PY
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Grateful Today for a fabulous weekend in this beautiful place with our sons and one girlfriend. We so love spending time together ❤️ and enjoy their company immensely. Hard to say goodbye today! What are you grateful for today?
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Weekly Inspiration: LAUGH! My son says laughter is the best medicine & he's right! Just what I need this week. Post includes an entertaining TED talk about laughter, some hilarious video clips, plus funny movie, TV & book suggestions to make you LOL: https://t.co/zvfTFSVm0k
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Weekend Binge: And Just Like That ... Although I never watched Sex and the City, I am enjoying this entertaining, far more diverse reboot, all about women in their 50's. 3 seasons now available. My full review and a trailer: https://t.co/6r7h0GCNtL
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Grateful Today for the chance to spend the weekend in this beautiful place with my family ❤️❤️❤️ What are you grateful for today?
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Many people with ME/CFS & long-COVID get worse this time of year in part due to infection season. Just being exposed to infections triggers immune activation. Here, how to effectively treat infections AND improve immune function ... which helps everything! https://t.co/Qx2ImLLFFw
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5 Stars: "I read it in one gulp! It shines a light into the darkness of being bedbound, with tons of info on finding happiness & fulfillment no matter your level of functioning ... a beautiful manual for thriving, with tons of practical advice.”" https://t.co/kpTn1cuBVO
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