RT @rheum_cat: Auditioning for office mascot

BIG NEWS!!! On Sat, Sep 14, I’m making a comeback to running and hosting a K Comeback 5K at Jamaica Pond. I’m also fundraising a scholarship for neuro-adaptive athletes to get access to gyms like mine and improve QoL! #BetterThanGoodEnough . Check it out!!.

RT @rheum_cat: Act like every day is your birthday! 🫶

…I act like it’s my birthday everyday 🥳🥳. Ran a birthday 5K! Would love to go harder but this is what’s safe. We’re building! #BetterThanGoodEnough #ComebackEra

My name is Kristin, and I was born in 1989. 🪩. Yesterday I ended my Director Era ⁦⁦@RouxInstitute⁩ ⁦@Northeastern⁩. What a journey it’s been these last 3 years!. Excited to enter my next Era. #ComebackEra #RareDiseaseZebra #StrokeSurvivor

In our Championship era! #Celtics #NBA

Maslow loved hanging with @rheum_cat and experiencing the infamous Buttery fries! 🤤🤤🤤.

Joe Mazzulla reminding everyone that it’s possible to be a great leader at 35. 🙌🏻.

Just when I think things can’t get any stranger (medically), this week I learned I have a midgut malrotation and left sided appendix. One review I read claims it occurs in 0.03% to 0.5% of live births. I am the intersection of so many rare medical statistics. It’s bananas.

I stopped and looked up. Admiring the hazy sky under a lush canopy of mature trees. A few feet ahead, I saw another older woman doing the same. “Beautiful, isn’t it?” I said .“Spectacular.” She replied. Fam. Life is short. Enjoy it. Take it all in.

Even if you can’t feel your feet, you can still experience the joy of dancing under the stars. 🤩. (Not pictured: wearing my FL-41 glasses so I could enjoy the festival without being sick from severe photosensitivity.). Being disabled doesn’t mean I can’t have a full life.

SO beyond grateful to have Fit to Function in my life. In a world where I am passed around like a hot potato, working with Jenna is a huge blessing!. She makes me feel human again. #betterthangoodenough

For every high, there’s a low. Coordinating care is so frustrating and disenfranchising. I hate it here.

Today the @TuftsMedicalCtr SAYA (Stroke and Young Adults) Fitness Club crushed a 5K for @TedysTeam @trilliumbrewing! . This is my first organized 5K since my dissection last Oct. Relearning how to run safely is a huge milestone in my recovery. #YoungStroke #MarfansSyndrome

Ah, the meditation of a chocolate croissant by the river on a nice day.

Yesterday I safely ran nearly 5K. It’s a HUGE milestone for me. I’ve had two vascular events around being more active. Doing what I love while being safe is critical to my recovery. I’m so grateful to have found this rehab program. It’s doing wonders for my mental health.

Maslow loves May flowers.

It’s such a privilege to hear @ElonConnieBook speak tonight in Boston at an evening for @elonuniversity @elonalumni!! Proud to be a top 10 under 10 alumna, #GoPhoenix #ELON

Did not feel good after my workout. 🤢 . Recovery is so goddamn hard.