Amy and Friends
@infoAMYnFRIENDS
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We support children/young people who suffer from Cockayne Syndrome - a DNA repair disorder - currently there is no cure and life expectancy is 12 years...
Global based in UK
Joined July 2013
Tickets still available - please contact Rich on 07580 041136/Michelle 07966 214893 http://t.co/a7NLVG3jgi
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We are up for a @AskLloydsBank Community Fund award. Retweet this message to vote for us to receive up to £3,000 #CommFund
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Such a wonderful afternoon spent with the inspirational @PhilPacker - check out BRIT trust, such a brilliant organisation for Y/People.
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Look who's 9 and celebrating right now - in Australia - Daniel.....happy birthday dude - have a fantastic... http://t.co/7eQoWcx8Ki
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What are your opinions on voluntary euthanasia? Corrie is causing a controversy with Hayley's storyline!
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Excited for our 2 day Science Conference in Newcastle, focusing on Cockayne Syndrome research, outcomes and exciting new findings!!!
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We are proud to announce Amy and Friends Australia has now launched - we are sooooooooo excited by this!!!! Happy Tuesday all 😃
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Our smiles of the day are our beautiful couple Nick and Amy! Amy was patiently waiting at the arrival gates at... http://t.co/p5OaSzCT9x
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New families - please make sure your child's notes with your GP say not to take Flagyl - this drug gives our kids major liver problems. X
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We are hosting the biggest conference in the CS world next week... No pressure 😁
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Thinking of sweet Makayla today - 5 years since you got your shiny wings. Kisses to you and your lovely family... http://t.co/MlK1rVJaNI
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“@pauljaywood: @AbbyAAF emailed you back again xx” just read it, looks great! I'm out at the min but will call you tomorrow. Love to Kalel x
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Not long to go till our Family/Medical Conference focussing on the rarity of Cockayne Syndrome, surrounded by the love of our CS Family 💜😍🌟
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“@pauljaywood: @AbbyAAF I need to email you tomorrow so sorry for being really rubbish and not, hope your well xx” no probs Paul. Xx
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If anyone wants to hear more about 'fundraising essentials' contact me on http://t.co/1wNlsDzeun
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My mum and dad are jumping out of a plane on the 1st September for Amy & Friends! If anyone could or would like... http://t.co/NTWRcjwzCF
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Friday only means one thing.... #ff @YELLOW_Keith @NickyTss @pauljaywood @BlackFrostCards @MYSTLiverpool @JMF1964 @Mill_Promotions ☀🐝
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#ff Get your cameras out this weekend. The colours and details will pop out in this light. @D_Sturridge @dusti_i_686 @AbbyAAF @YELLOW_Dave
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Here is our gorgeous Terri to brighten up your already very sunny Thursday! We hope you have had a wonderful day... http://t.co/Tby7PZDibh
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