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ICBDSR

@ICBDSR

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International Clearinghouse for Birth Defects Surveillance and Research

Joined February 2015
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@ICBDSR
ICBDSR
4 years
Do you run a registry of #BirthDefects and you would like to be a Member of #ICBDSR? Organizations that systematically collect and analyse data for the surveillance of birth defects can become members of ICBDSR. See how in this link ⬇️ https://t.co/ri3uDZyil2
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icbdsr.org
These organisations must also be willing to abide by the ICBDSR Bylaws. To become member of the ICBDSR please download the Application Form and send it back by e-mail (preferred): [email protected]
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@ICBDSR
ICBDSR
2 years
Last day to submit your abstracts for the 50th ICBDSR Meeting before the May 1st deadline!
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@ICBDSR
ICBDSR
2 years
REMINDER: Abstract submissions are due May 1st. You can submit an abstract at
linktr.ee
Bringing together birth defect programs from around the world. Data to action!
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@ICBDSR
ICBDSR
2 years
(3/3) - Psychosocial impacts of birth defects, quality of life, education, and other related issues - Management and care for birth defects - Patient and caregiver experiences - Historical perspective of surveillance of congenital anomalies
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@ICBDSR
ICBDSR
2 years
(2/3) - Covid-19 and impact on reproductive outcomes, birth defects surveillance, prevention, and care - Molecular genetics/molecular epidemiology/epigenetics and birth defects - Prenatal screening, early pregnancy/birth/postnatal outcomes
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@ICBDSR
ICBDSR
2 years
(1/3) Abstract topics should fit one of the following themes: - Birth defect surveillance and descriptive epidemiology (including surveillance methodology) - Risk factors and primary prevention for birth defects - Rare diseases
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@ICBDSR
ICBDSR
2 years
The 2024 ICBDSR annual meeting will celebrate its 50th anniversary since its founding in 1974. The 50th annual meeting will take place in Prague, Czech Republic from Sep 1-4 at the Hermitage Hotel. More info can be found at https://t.co/qryptKmqgt #icbdsr #50thanniversary
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@ICBDSR
ICBDSR
2 years
Today, March 3rd is World Birth Defects Day! The Clearninghouse is one of the founding partners and continues to foster partnerships for birth defects research and surveillance. Let's spread the word! #WorldBDDay #EveryJourneyMatters #AwarenessWithoutStigma
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@worldbdday
World Birth Defects Day 2025
2 years
Today, March 3rd, 2024 is World Birth Defects Day! Partner with us all across the globe to raise a collective voice for birth defects awareness. #WorldBDDay #EveryJourneyMatters #AwarenessWithoutStigma
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@ICBDSR
ICBDSR
2 years
Thank you to all @icbdsr partners for participating in #WorldBDDay. We look forward to your continued collaboration. #WorldBDDay #EveryJourneyMatters
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@ICBDSR
ICBDSR
2 years
A12. Stay informed of birth defect research, disseminate new findings to colleagues, and collaborate with one another to increase research and surveillance efforts! #WorldBDday #EveryJourneyMatters
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@MotherToBaby
MotherToBaby
2 years
Q6A5 Tobacco products should be avoided during pregnancy. Studies have suggested a small risk for cleft lip or palate with cigarette smoking during pregnancy, especially if the person is a heavy smoker. https://t.co/wSmbLIomjh #WorldBDDay #everyjourneymatters
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@CDC_NCBDDD
CDC_NCBDDD
2 years
A10. Many children living with birth defects require care from a variety of specialists. Coordination of care helps families work with their healthcare team to navigate care. #WorldBDDay #EveryJourneyMatters https://t.co/1gbk6Gr6cf
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@CHeartLink
Children's HeartLink
2 years
A9 3/3 Birth defects screening is also critical for #CHD patients as timely screening for CHD averts unnecessary mortality and complications. #WorldBDday #EveryJourneyMatters
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@MarchofDimes
March of Dimes
2 years
A9b. Early treatment for birth defects is important to prevent more serious health problems. A baby with a birth defect may need a team of providers who work together to give the best all-around care. #WorldBDday #EveryJourneyMatters
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@MarchofDimes
March of Dimes
2 years
A9a. Babies with birth defects often need special medical care and treatments, like medicines or surgery. Sometimes they need assistive devices, like a hearing aid. Babies with birth defects also may need special therapies, like speech therapy. #WorldBDday #EveryJourneyMatters
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@MotherToBaby
MotherToBaby
2 years
Q4A4 For an easy-to-understand Fact Sheet on #COVID19 vaccines in #pregnancy and while #breastfeeding, please visit https://t.co/r3bInuCWy8 #worldbdday #everyjourneymatters
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@ICBDSR
ICBDSR
2 years
A11. Global health systems establishing accurate and precise birth defect surveillance are needed to track improvements in birth defect research and interventions. #WorldBDday #EveryJourneyMatters
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@MarchofDimes
March of Dimes
2 years
A2b. We led the education campaign on #folicacid, having a major impact on increasing awareness of folic acid consumption and resulted in the FDA’s mandatory fortification of wheat flour—resulting in neural tube defects decreasing by 35%. #WorldBDday #EveryJourneyMatters
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