Hydrocephalus Assoc.
@HydroAssoc
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Our mission is to find a cure for #hydrocephalus & improve the lives of those impacted by the condition.
Bethesda, MD
Joined May 2009
When Caroline’s son was diagnosed with hydrocephalus, running became her outlet and her mission! Now she’s training for the Marine Corps Marathon with HA’s Endurance Team. 🏃♀️.We’ve got 1 spot left for this years MCM! Read her story & join the movement:
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Check out our new recognition prizes for the 2025 WALK To End Hydrocephalus season!.Raise $100 to secure your WALK t-shirt; keep climbing up the fundraising ladder to unlock more prizes!. #HAWALK #WALKtoEndHydrocephalus
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Starting college with hydrocephalus?.There’s a lot to prepare, especially when it comes to managing your care! From emergency planning to finding a local neurosurgeon, here’s what students and families need to know before move-in day:
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RT @shuntedmdphd: It was a great 2 days taking in the @HydroAssoc Engineering in Hydrocephalus Research Workshop! Now on to the Society for….
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HA’s 2025 Engineering in Hydrocephalus Research Workshop is underway! Experts from engineering, medicine & research are tackling shunt occlusion and overdrainage—advancing our strategic goal of smarter, more effective hydrocephalus treatments.
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Doctors once said she’d never walk or talk. But Margie has climbed mountains—literally—and created a platform to amplify disabled voices!.Now host of the More Than Able podcast, she’s redefining what it means to live with hydrocephalus. Read her story:👉
hydroassoc.org
Diagnosed with hydrocephalus at 8 months, Margie defied the odds. Now 32, she climbs mountains, hosts a podcast, and proves she's more than able.
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Living with NPH can feel like a rollercoaster. Some days you’re okay, other days, you’re not. But your quality of life still matters. Discover simple ways to stay active, emotionally strong & engaged in what matters most!.Read the full article ▶️
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Happening NOW: The HA Medical Advisory Board is meeting to discuss actions to address gaps in medical care for #hydrocephalus patients. We are honored that Dr. Walter Koroshetz, Director @NIH_NINDS keynotes and shares the incredible advances in neuroscience over the last 75 years
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Living with hydrocephalus means being ready for the unexpected. This article offers practical tips to help patients, parents, and caregivers recognize warning signs and create a personalized emergency plan.
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It’s National Make-A-Will Month! Leave a legacy that protects your loved ones and supports progress in hydrocephalus care. Make your will. Make a difference!
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Join the WALK to End Hydrocephalus and be part of a powerful nationwide movement! Help us raise awareness, build community, and fund life-changing research. Register today:
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Thanks to your generosity, our Spring Appeal was a success! Stephanie Vogt, HA’s Board Chair, has a special message for you. 💙. To see how your support is making a difference, check out the first edition of our Development Round-Up:
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Living with hydrocephalus means juggling medical care, emotional health, daily responsibilities & more—sometimes it feels like one more drop could spill everything. This article offers practical tips for finding balance:
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Want to stay informed and empowered? July's Scoop on Capitol Hill covers the latest policy developments affecting the hydrocephalus community—from medical innovation to Medicaid access—so you know what’s at stake and how to speak up!
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Today marks 35 years of the Americans with Disabilities Act! We celebrate this landmark law that protects the rights of people with disabilities and continues to break down barriers, creating a more inclusive world for all. #ADA35 #ThanksToTheADA
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Shunt systems manage #hydrocephalus by redirecting excess CSF from the brain. While all shunts serve the same basic function, there are different types to meet individual needs. Discover how each type works & what makes them different in this article:
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Are you free today at 3pm ET? Join us for Yoga on the Brain! This meetup is meant to be a space where yoga therapy practices are offered as a tool for supporting personal symptoms of hydrocephalus & neurological conditions. Register here:
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We’re excited to launch the Hydro Heroes Unite podcast in collaboration with Taisha Cameron! 💙 Season 1 dives into pediatric hydrocephalus—created for and with the hydrocephalus community. Listen, share & grow with us:
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We’re officially 365 days away from HA CONNECT 2026! 🎉 What are you most excited for? .If you haven’t signed up for Conference emails yet, now’s the time. Get the latest updates and be the first to know when registration opens:
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RT @wfneurology: It’s #WorldBrainDay!. This year, we’re shining a light on Brain Health for All Ages—because brain health matters at every….
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