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Hydrocephalus Assoc. Profile
Hydrocephalus Assoc.

@HydroAssoc

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Following
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Media
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Statuses
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Our mission is to find a cure for #hydrocephalus & improve the lives of those impacted by the condition.

Bethesda, MD
Joined May 2009
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@HydroAssoc
Hydrocephalus Assoc.
12 hours
Living w/ chronic pain can feel like an emotional rollercoaster. Our new article breaks down how it affects the mind and offers ways to cope. Read more: https://t.co/p24tONzElx
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@HydroAssoc
Hydrocephalus Assoc.
2 days
My Hydro Bear is more than a teddy bear. Its shunt reflects the real experiences of many in our community, helping people feel seen, understood, and less alone. Designed with children in mind but meaningful for all ages 🧸 💙 Order yours today: https://t.co/qZaaP1PKu1
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@HydroAssoc
Hydrocephalus Assoc.
3 days
Preparing for brain surgery can feel overwhelming, but learning what to expect and talking with your care team can make a huge difference. A little prep can support a smoother procedure and recovery! Read the full article to prepare for shunt surgery: https://t.co/ZDx6WMtMpi
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@CUNSGY
CU Neurosurgery
5 days
Congratulations to #ChiefResident Dr. Julia Pazniokas & #PediatricNeurosurgery fellowship director Dr. Mohammed Alshareef on winning the @HydroAssoc Award at the @PedsSection meeting. @CUMedicalSchool @CUAnschutz
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@HydroAssoc
Hydrocephalus Assoc.
5 days
We’re excited to welcome Abhay Moghekar, MBBS, from @HopkinsMedicine as a #HACONNECT26 speaker  🥳 He’ll be part of several key sessions related to Normal Pressure Hydrocephalus (NPH) that you won't want to miss! https://t.co/2VwWFIeCJl
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@HydroAssoc
Hydrocephalus Assoc.
6 days
The holidays can be joyful, but they can also be challenging when you’re living w/ hydrocephalus. If the season brings stress or fatigue, you’re not alone. Our guide offers tips to protect your health, set boundaries & still create space for joy. https://t.co/1CgpcjkrRc
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@HydroAssoc
Hydrocephalus Assoc.
7 days
Did you see @rhettmc & @LinkNeal highlighted HA on their Good @Mythical Morning show?! 🤩 We're grateful for the awareness & for the support of our mission, thanks to the entire Mythical Crew for making it possible💙   https://t.co/nGFpvEGvUW @ChaseHilt @mythicalsociety
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@HydroAssoc
Hydrocephalus Assoc.
8 days
Meet Scott 👋 A work trip turned into a life-threatening illness, months in hospitals & a year of paralysis. What carried him through: resilience, recovery & the steady support of loved ones. Read his full story: https://t.co/z0J819O2zh
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@HydroAssoc
Hydrocephalus Assoc.
9 days
We are excited to name Dr. Thomas Arnold of UC San Francisco as the 2025 Accelerator Award recipient! 🥳 His project, focused on choline’s role in congenital hydrocephalus, represents the kind of bold research that could lead to new non-surgical therapies. https://t.co/6dmd5wZjYj
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@HydroAssoc
Hydrocephalus Assoc.
10 days
Our team is currently in Memphis, attending the AANS/CNS @PedsSection  Meeting. Visit us at booth 304 and be among the first to see our newest program - the Next Steps kit with My Hydro Bear. Learn how to partner with us and start this program at your hospital.
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@HydroAssoc
Hydrocephalus Assoc.
12 days
Did you spot the Hydrocephalus Association cleats on the field last weekend? @Broncos’ Adam Trautman wore his custom cleats proudly during the team’s win, helping raise awareness for the more than 1 million people in the US living with hydrocephalus. https://t.co/mY33cCUPf6
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@HydroAssoc
Hydrocephalus Assoc.
12 days
We’re grateful for the incredible support this community showed yesterday! Every gift, share, and message of support helps move our mission forward 💙 If you weren’t able to participate on Giving Tuesday, you can still support our mission today! https://t.co/2QvdMpyZsK
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@HydroAssoc
Hydrocephalus Assoc.
12 days
There's still time to give! Until midnight, your Giving Tuesday gift will be doubled through a $100,000 match! https://t.co/2QvdMpyZsK Already donated? Please repost this to help us reach even more people 💙
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@HydroAssoc
Hydrocephalus Assoc.
12 days
Breakthroughs don’t happen by chance. They’re made possible by supporters who give what they can — and today even the smallest gift goes twice as far! https://t.co/2QvdMpyZsK
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@HydroAssoc
Hydrocephalus Assoc.
13 days
Thousands reached out to us in their most challenging moments. With your Giving Tuesday gift, thousands more will find support when they need it most! 💙 Make a gift & share this post to help even more families get connected! https://t.co/2QvdMpyZsK
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@HydroAssoc
Hydrocephalus Assoc.
13 days
Doctors once gave Colton a 14% chance of survival. Today, he’s walking, talking, laughing, & loving life—defying every expectation. This Giving Tuesday, you can help more families like Colton’s get the support they need while fueling research for a cure 💙 https://t.co/2QvdMpyZsK
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@HydroAssoc
Hydrocephalus Assoc.
13 days
We’re doubling donations up to $100,000! 💙💙 Your gift today goes twice as far to fuel lifesaving research, strengthen support programs, and help families get answers when they need them most. Make your Giving Tuesday gift: https://t.co/2QvdMpyZsK
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@HydroAssoc
Hydrocephalus Assoc.
14 days
Tomorrow is the big day! And we're secured a match 🎉 You gift will go twice as far this Giving Tuesday thanks to our generous donor matching up to $100,000! Check out our social media toolkit and see how you can give early: https://t.co/2QvdMpyZsK
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@HydroAssoc
Hydrocephalus Assoc.
15 days
Shunt infections are a serious complication for people with hydrocephalus. Knowing the warning signs helps you act quickly. Early recognition saves lives! Get all the details here: https://t.co/Ar01wJ6n5J
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@HydroAssoc
Hydrocephalus Assoc.
16 days
Thinking about your day-to-day and how cognition affects it, where do you wish you had something that made things easier? (Like a tool, routine, or strategy to make things smoother)
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