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Hydrocephalus Assoc. Profile
Hydrocephalus Assoc.

@HydroAssoc

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Following
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Our mission is to find a cure for #hydrocephalus & improve the lives of those impacted by the condition.

Bethesda, MD
Joined May 2009
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@HydroAssoc
Hydrocephalus Assoc.
17 hours
#Hydrocephalus Awareness Month starts soon! This September, we’re busting myths, sharing powerful stories & dropping weekly quizzes to show what life w/ hydrocephalus is really like. Get involved: . #HAM2025 #HAM25 #HydrocephalusAwarenessMonth
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@HydroAssoc
Hydrocephalus Assoc.
2 days
This weekend, our community is coming together in Springdale, Arkansas to raise awareness and fuel progress for hydrocephalus!.Want to be part of the movement? Join, donate, and cheer them on as we keep the momentum going! 💙.
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@grok
Grok
3 days
Join millions who have switched to Grok.
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@HydroAssoc
Hydrocephalus Assoc.
3 days
Meet Delrina! 👋 Diagnosed with congenital hydrocephalus at 2, she’s never let it define her—earning her MBA & raising awareness every step of the way. Read her story: Want to share your story? Submit here:
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@HydroAssoc
Hydrocephalus Assoc.
4 days
National Make-A-Will Month is almost over, but there’s still time to create your will — for free!.Start today and leave a legacy of impact.
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@HydroAssoc
Hydrocephalus Assoc.
5 days
One week to go! Hydrocephalus Awareness Month is almost here—are you ready? Sign up for updates & be part of the movement: #HAM2025 #HAM25 #HydrocephalusAwarenessMonth #Hydrocephalus
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@HydroAssoc
Hydrocephalus Assoc.
6 days
Know a teen or middle schooler with hydrocephalus? Let them know they’re not alone. 💙.Our virtual hangouts offer games, chats & connection with others who get it. Questions? info@hydroassoc.org.Register:
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@HydroAssoc
Hydrocephalus Assoc.
7 days
Save the date! 🥳 On September 23rd, 2025, over 200 Wingstop locations will donate 10% of sales to the Hydrocephalus Association. See if your local store is participating:
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@HydroAssoc
Hydrocephalus Assoc.
8 days
Leslie Charleson, beloved General Hospital star, lived with normal pressure hydrocephalus (NPH). After her passing earlier this year, her closest friends launched an awareness campaign in her memory—turning grief into action. Read how story here:
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@HydroAssoc
Hydrocephalus Assoc.
9 days
Do you notice an increase in hydrocephalus related symptoms when the weather changes? You’re not alone! Help researchers better understand these patterns by completing this Hydrocephalus Weather Survey:
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@HydroAssoc
Hydrocephalus Assoc.
10 days
Episode 3️⃣ of Hydro Heroes Unite is out! This week’s episode is about faith, hope, and fierce advocacy. Listen wherever you get your podcasts:
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@HydroAssoc
Hydrocephalus Assoc.
10 days
Take control of your energy levels by choosing foods that fuel and sustain you. Small changes to your meals and snacks can make a big difference in how you feel each day!.Explore our full nutrition resources and guides:
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@HydroAssoc
Hydrocephalus Assoc.
11 days
Only ONE spot left on the HA Endurance Team for this year’s Marine Corps Marathon in DC on October 26, 2025! Be the missing piece, run for a cause, and make every mile count 🏃‍♂️ .Claim it before it’s gone!
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@HydroAssoc
Hydrocephalus Assoc.
12 days
WALK season kicks off this week! 🥳.Our community is hitting the ground walking—starting with Detroit, Michigan on August 23rd, and Springdale, Arkansas, the following week on August 30th. Ready to join in, show up, or donate? 💙 Find your local WALK:
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@HydroAssoc
Hydrocephalus Assoc.
13 days
Your child’s teacher can’t support what they don’t understand. Give them the tools with our hydrocephalus Teachers’ Guides:
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@HydroAssoc
Hydrocephalus Assoc.
14 days
For the first time, we brought engineers to the heart of hydrocephalus research—hosting our largest research gathering ever! 90+ experts united to explore breakthroughs in treatment & diagnosis. See how this milestone is shaping the future:
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@HydroAssoc
Hydrocephalus Assoc.
15 days
We are 1️⃣ month away from our Genes, Brain Development, and Hydrocephalus Webinar! It’s your chance to hear from leading experts—register now to be part of it:
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@HydroAssoc
Hydrocephalus Assoc.
16 days
Whether you're living with hydrocephalus or supporting someone who is, stress adds up fast. This article shares how mindfulness can help you reset, stay grounded, and build resilience in the everyday moments.
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@HydroAssoc
Hydrocephalus Assoc.
17 days
No matter your age or financial situation, FreeWill makes it simple, secure & free to create your will in just 20 minutes. Protect your loved ones & with an optional legacy gift, we can drive research forward & give more families hope! 💙
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@HydroAssoc
Hydrocephalus Assoc.
18 days
Starting high school is a big milestone & for students with hydrocephalus, it can come with added layers to navigate. Get tips to help you & your family navigate the transition with confidence, clarity & support:.
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@HydroAssoc
Hydrocephalus Assoc.
19 days
📷 Calling all WALK teams!.We’ve updated our Social Media Toolkit with new content to help you promote your event, build your team, and raise awareness. Check it out now:
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